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Update on Jessie
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<blockquote data-quote="susiestar" data-source="post: 375656" data-attributes="member: 1233"><p>They did an MRI with her under anesthesia. They saw something on it but the endocrinologist said it was supposed to be there in kids so he could do nothing for her. He suggested we see a movement disorder doctor but apparently there are no pediatrician movement disorder docs in our state.</p><p> </p><p>My parents are going to pay for us to go to Dallas for her appointment - mom may even go with us if I want her to. Not sure on that, but she can't be worse than husband who will moan and groan about everything we do that costs anything. He is very scared by any illness and does NOT cope well. He gets upset when I ask questions, esp if the doctor doesn't like them (the pediatrician neuro we got stuck with seems to HATE questions, esp ones that are well thought out and logical. He gets very very condescending when I ask questions, esp when I don't stop asking them until I understand why he is doing what he wants to do - which is mostly nothing.)</p><p> </p><p>I will make sure they test her electrolytes at her next doctor appointment in case it could be that. Sometimes her legs just don't want to work or she has trouble standing up unless she braces her arms on her thighs in a sort of bent over posture. It predates the tremors by about 4 months. </p><p> </p><p>At this point I will try anything. Earlier today she was in tears because it hurt so bad she wanted to die. It breaks my heart. Every therapist we have seen that does not work at Childrens and has NOT seen the file that says it is "just" anxiety says that this is NOT anxiety and that any anxiety is caused by the shaking, not causing it. Even when I tell them what the Children's therapist and docs say they don''t believe it. We have 3 tdocs who have told us this! (When the first therapist the hospital recommended said it was not anxiety caused the docs insisted we needed to see a better qualified therapist and had us see someone else. The new therapist agreed with the first one, which seemed to infuriate the pediatrician neuro.)</p></blockquote><p></p>
[QUOTE="susiestar, post: 375656, member: 1233"] They did an MRI with her under anesthesia. They saw something on it but the endocrinologist said it was supposed to be there in kids so he could do nothing for her. He suggested we see a movement disorder doctor but apparently there are no pediatrician movement disorder docs in our state. My parents are going to pay for us to go to Dallas for her appointment - mom may even go with us if I want her to. Not sure on that, but she can't be worse than husband who will moan and groan about everything we do that costs anything. He is very scared by any illness and does NOT cope well. He gets upset when I ask questions, esp if the doctor doesn't like them (the pediatrician neuro we got stuck with seems to HATE questions, esp ones that are well thought out and logical. He gets very very condescending when I ask questions, esp when I don't stop asking them until I understand why he is doing what he wants to do - which is mostly nothing.) I will make sure they test her electrolytes at her next doctor appointment in case it could be that. Sometimes her legs just don't want to work or she has trouble standing up unless she braces her arms on her thighs in a sort of bent over posture. It predates the tremors by about 4 months. At this point I will try anything. Earlier today she was in tears because it hurt so bad she wanted to die. It breaks my heart. Every therapist we have seen that does not work at Childrens and has NOT seen the file that says it is "just" anxiety says that this is NOT anxiety and that any anxiety is caused by the shaking, not causing it. Even when I tell them what the Children's therapist and docs say they don''t believe it. We have 3 tdocs who have told us this! (When the first therapist the hospital recommended said it was not anxiety caused the docs insisted we needed to see a better qualified therapist and had us see someone else. The new therapist agreed with the first one, which seemed to infuriate the pediatrician neuro.) [/QUOTE]
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