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We went to the neuropsychologist!
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<blockquote data-quote="Marguerite" data-source="post: 335763" data-attributes="member: 1991"><p>Thanks, SRL. When it comes down to "neuropsychologist" vs "neuropsychiatrist" I'm a bit in the dark since it is a little different here, we're starting to do things the US way in some areas.</p><p></p><p>But basically you said what I was trying to - even if what they did was not what you asked for, Agee, it is still a very good start and could be leading exactly where you asked anyway. This could simply be a staging post along the way.</p><p></p><p>$1000 for the number of people you had involved plus the level of specialisation plus the time involved - ask around but it could well be fairly standard.</p><p></p><p>You WILL need to use professionals of varying kinds over the years, but in the meantime, and each time, you will learn what you can do for him for yourself, to help him.</p><p></p><p>What worked for us - think from his point of view. Listen to him. Without simply letting him run wild, where you can and where it is 'no skin off your nose' give him what he wants and then watch, and take notes. For example when my boys asked for the big cardboard box the new washing machine came in, I gave it to them, and watched. They put cushions in it. They put a blanket in it. They cut a window in it so they could watch TV through the window. They had the box in the living room, them inside, all top flaps closed, only the little window open. They had threaded the computer game controllers through the window and were playing computer games on the TV outside the box while they were squashed together inside the box, on cushions snuggled under the blanket. It didn't bother me to let them do this and I found it very interesting. I knew the box would fall apart sooner rather than later but in the meantime, the boys had fun and were also exploring interesting aspects of their own Sensory Integration Disorder (SID). I then talked to them about Temple Grandin and the personal "cattle crush" machine or squeeze machine she made for herself, where she was able to control the strength of the squeeze for herself. That was what she wanted - to be held, but on her terms and when she wanted. She says she finds it calms her down, the same way being in a crush seems to calm cattle.</p><p></p><p>There can be surprising things you can discover for yourself and which he can also discover, especially once he realises it's OK and not 'sick' to explore his own feelings and interests like this. </p><p></p><p>You have begun a long, involved journey which is a different path to the one you expected 7 years ago, but has its own rewards.</p><p></p><p>Marg</p></blockquote><p></p>
[QUOTE="Marguerite, post: 335763, member: 1991"] Thanks, SRL. When it comes down to "neuropsychologist" vs "neuropsychiatrist" I'm a bit in the dark since it is a little different here, we're starting to do things the US way in some areas. But basically you said what I was trying to - even if what they did was not what you asked for, Agee, it is still a very good start and could be leading exactly where you asked anyway. This could simply be a staging post along the way. $1000 for the number of people you had involved plus the level of specialisation plus the time involved - ask around but it could well be fairly standard. You WILL need to use professionals of varying kinds over the years, but in the meantime, and each time, you will learn what you can do for him for yourself, to help him. What worked for us - think from his point of view. Listen to him. Without simply letting him run wild, where you can and where it is 'no skin off your nose' give him what he wants and then watch, and take notes. For example when my boys asked for the big cardboard box the new washing machine came in, I gave it to them, and watched. They put cushions in it. They put a blanket in it. They cut a window in it so they could watch TV through the window. They had the box in the living room, them inside, all top flaps closed, only the little window open. They had threaded the computer game controllers through the window and were playing computer games on the TV outside the box while they were squashed together inside the box, on cushions snuggled under the blanket. It didn't bother me to let them do this and I found it very interesting. I knew the box would fall apart sooner rather than later but in the meantime, the boys had fun and were also exploring interesting aspects of their own Sensory Integration Disorder (SID). I then talked to them about Temple Grandin and the personal "cattle crush" machine or squeeze machine she made for herself, where she was able to control the strength of the squeeze for herself. That was what she wanted - to be held, but on her terms and when she wanted. She says she finds it calms her down, the same way being in a crush seems to calm cattle. There can be surprising things you can discover for yourself and which he can also discover, especially once he realises it's OK and not 'sick' to explore his own feelings and interests like this. You have begun a long, involved journey which is a different path to the one you expected 7 years ago, but has its own rewards. Marg [/QUOTE]
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