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western blot was negative
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<blockquote data-quote="Marguerite" data-source="post: 424252" data-attributes="member: 1991"><p>My neurologist keeps saying, "I'm sure this is MS..." but the tests are always negative. No vision issues either. But otherwise, it resembles MS.</p><p></p><p>I don't like the MRI tunnel either, but I defeated it with logic. I analysed it thoroughly. They can't risk patients not being in perfect condition in the tunnel, so there is absolutely no way you will be suffering from any genuine confinement. For example, part of the fear of small spaces is, not being able to breathe. But when you're in the tunnel they pump air through so much that there is a constant breeze on your face. Plus they have it miked in; you can yell for help if you find it too much. I find if I close my eyes and visualise myself feeling the breeze on my face while standing on the top of a mountain overlooking the ocean, I can manage. I work on visualisation, I practice it over the week before the MRI, and it really helps. My first MRI I was told to bring a tape for me to listen to. I brought in a radio play I like, but the triphammer of the MRI machine drowned it out. I could hear the words and phrases but only dimly. But I know the play so well, I was mentally reciting the lines along with it. It did help.</p><p></p><p>The tunnel can't hurt you. It is made of one solid piece of rigid plastic so there is no way it could collapse on you. In fact, if there was a major earthquake or whatever while you were in the tunnel, you would be safer in there than anywhere else. And as I said - the ventilation is brilliant. See, the tunnel is not a blind ended thing, it is an open-ended tube. And if it's looking at your spinal chord as well as your brain, it will move you through further, so your head is likely to be out the other side.</p><p></p><p>Another thing you can do is visualise the machine studying your body. Visualise the images building up, slice by slice. Mentally put yourself out with the technicians, studying the screen.</p><p></p><p>All sorts of mental tricks can help you cope. But I find meditation/visualisation can work brilliantly. It takes practice, but it really is useful. I've had to have bone scans too. Not quite as confining as MRI, but I had to lie motionless for a lot longer and there is still a ring sort of thing that passes over and around your body. Again, visualisation helped me relax physically and put my mind elsewhere during the test.</p><p></p><p>You can also use distraction - try to mentally inventory your pantry. Or compose a crossword. Or a series of haiku.</p><p></p><p>Marg</p></blockquote><p></p>
[QUOTE="Marguerite, post: 424252, member: 1991"] My neurologist keeps saying, "I'm sure this is MS..." but the tests are always negative. No vision issues either. But otherwise, it resembles MS. I don't like the MRI tunnel either, but I defeated it with logic. I analysed it thoroughly. They can't risk patients not being in perfect condition in the tunnel, so there is absolutely no way you will be suffering from any genuine confinement. For example, part of the fear of small spaces is, not being able to breathe. But when you're in the tunnel they pump air through so much that there is a constant breeze on your face. Plus they have it miked in; you can yell for help if you find it too much. I find if I close my eyes and visualise myself feeling the breeze on my face while standing on the top of a mountain overlooking the ocean, I can manage. I work on visualisation, I practice it over the week before the MRI, and it really helps. My first MRI I was told to bring a tape for me to listen to. I brought in a radio play I like, but the triphammer of the MRI machine drowned it out. I could hear the words and phrases but only dimly. But I know the play so well, I was mentally reciting the lines along with it. It did help. The tunnel can't hurt you. It is made of one solid piece of rigid plastic so there is no way it could collapse on you. In fact, if there was a major earthquake or whatever while you were in the tunnel, you would be safer in there than anywhere else. And as I said - the ventilation is brilliant. See, the tunnel is not a blind ended thing, it is an open-ended tube. And if it's looking at your spinal chord as well as your brain, it will move you through further, so your head is likely to be out the other side. Another thing you can do is visualise the machine studying your body. Visualise the images building up, slice by slice. Mentally put yourself out with the technicians, studying the screen. All sorts of mental tricks can help you cope. But I find meditation/visualisation can work brilliantly. It takes practice, but it really is useful. I've had to have bone scans too. Not quite as confining as MRI, but I had to lie motionless for a lot longer and there is still a ring sort of thing that passes over and around your body. Again, visualisation helped me relax physically and put my mind elsewhere during the test. You can also use distraction - try to mentally inventory your pantry. Or compose a crossword. Or a series of haiku. Marg [/QUOTE]
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