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western blot was negative
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<blockquote data-quote="DammitJanet" data-source="post: 424304" data-attributes="member: 1514"><p>They thought for awhile I had MS too but ruled it out when no legions were found when they did the MRI's when I had the meningitis. Before that I simply couldnt do the MRI's at all because of severe claustrophobia.I have attempted both the open and closed MRI even with enough benzo's in me that I shouldnt have been able to walk but I couldnt handle them. </p><p></p><p>I, like Marg, do use medication to handle what is going on with me. I couldnt even have any form of quality of life without it. This certainly isnt what I wanted and I have done everything I could to keep myself on as low a dose of pain medication as I can be for as long as I can be because I know this is a life long condition. This means I have had surgery, had multiple consults with an ortho to have shots of this gunk into my knees to replace cartilage, had cortisone shots in so many places, and taken all kinds of medications but this hasnt meant that I could put off pain medications forever. I am now going downhill on a very fast pace. Not real sure why. Suddenly lots of my joints have started to act up. </p><p></p><p>I really hope you dont have something bad and that it is treated easily. I honestly wouldnt wish what I am going through on my worst enemy. My last 15 years have been hell. I havent been in good shape for over 20 years but I really got bad 15 years ago when I was in a car accident. If I had known then how hurt I actually would end up being, I certainly wouldnt have settled...lol.</p></blockquote><p></p>
[QUOTE="DammitJanet, post: 424304, member: 1514"] They thought for awhile I had MS too but ruled it out when no legions were found when they did the MRI's when I had the meningitis. Before that I simply couldnt do the MRI's at all because of severe claustrophobia.I have attempted both the open and closed MRI even with enough benzo's in me that I shouldnt have been able to walk but I couldnt handle them. I, like Marg, do use medication to handle what is going on with me. I couldnt even have any form of quality of life without it. This certainly isnt what I wanted and I have done everything I could to keep myself on as low a dose of pain medication as I can be for as long as I can be because I know this is a life long condition. This means I have had surgery, had multiple consults with an ortho to have shots of this gunk into my knees to replace cartilage, had cortisone shots in so many places, and taken all kinds of medications but this hasnt meant that I could put off pain medications forever. I am now going downhill on a very fast pace. Not real sure why. Suddenly lots of my joints have started to act up. I really hope you dont have something bad and that it is treated easily. I honestly wouldnt wish what I am going through on my worst enemy. My last 15 years have been hell. I havent been in good shape for over 20 years but I really got bad 15 years ago when I was in a car accident. If I had known then how hurt I actually would end up being, I certainly wouldnt have settled...lol. [/QUOTE]
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western blot was negative
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