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what do you think of er???
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<blockquote data-quote="Josie" data-source="post: 417559" data-attributes="member: 1792"><p>You should know there are two standards of care for Lyme. </p><p></p><p>The infectious disease doctor, no doubt, follows the IDSA standard. The IDSA standard relies on a two tiered test to see if it is Lyme per the CDC guidelines. However, the CDC says (or at least used to) on its page that the strict criteria are for reporting purposes only and to use clinical judgement. The IDSA guidelines call for limited treatment with antibiotics and if you still have symptoms after that, call it Post Lyme Syndrome. Symptom relief only at that point.</p><p></p><p>There is another group of doctors that follow ILADS standards of care and believe in diagnosing Lyme clinically, based on symptoms and exposure, with test results providing support for the diagnosis. They believe that ongoing symptoms are due to continued infection and will treat until symptoms are gone. Many of these doctors have come to treat this way after experiencing Lyme themselves or in their family. </p><p></p><p>The whole thing is controversial with the IDSA doctors calling the ILADS doctors quacks and the ILADS doctors and chronic Lyme patients accusing the IDSA doctors of conflicts of interest. The IDSA docs think the science is settled and proven and the ILADS docs think there is a lot that is unknown and that good studies haven't been done.</p><p></p><p>My guess is that you got a doctor in the ER who is more on the ILADS side while the infectious disease doctor goes strictly by the blood test. </p><p></p><p>If you had a positive test, either ELISA or WB, the ILADS docs would probably treat you, while the IDSA docs would say you had to have both, probably along with a swollen knee and a bullseye rash.</p><p></p><p>You need to decide which way you want to approach it and which kind of doctor you want ruling it out. Either way has its own set of risks.</p></blockquote><p></p>
[QUOTE="Josie, post: 417559, member: 1792"] You should know there are two standards of care for Lyme. The infectious disease doctor, no doubt, follows the IDSA standard. The IDSA standard relies on a two tiered test to see if it is Lyme per the CDC guidelines. However, the CDC says (or at least used to) on its page that the strict criteria are for reporting purposes only and to use clinical judgement. The IDSA guidelines call for limited treatment with antibiotics and if you still have symptoms after that, call it Post Lyme Syndrome. Symptom relief only at that point. There is another group of doctors that follow ILADS standards of care and believe in diagnosing Lyme clinically, based on symptoms and exposure, with test results providing support for the diagnosis. They believe that ongoing symptoms are due to continued infection and will treat until symptoms are gone. Many of these doctors have come to treat this way after experiencing Lyme themselves or in their family. The whole thing is controversial with the IDSA doctors calling the ILADS doctors quacks and the ILADS doctors and chronic Lyme patients accusing the IDSA doctors of conflicts of interest. The IDSA docs think the science is settled and proven and the ILADS docs think there is a lot that is unknown and that good studies haven't been done. My guess is that you got a doctor in the ER who is more on the ILADS side while the infectious disease doctor goes strictly by the blood test. If you had a positive test, either ELISA or WB, the ILADS docs would probably treat you, while the IDSA docs would say you had to have both, probably along with a swollen knee and a bullseye rash. You need to decide which way you want to approach it and which kind of doctor you want ruling it out. Either way has its own set of risks. [/QUOTE]
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