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<blockquote data-quote="susiestar" data-source="post: 113650" data-attributes="member: 1233"><p>It sounds like he is a pretty happy kid. I would have run from the psychiatrist you saw also.</p><p></p><p>My daughter has Absence Epilepsy, is this the type of epilepsy your son has? I can say that if his medications are in the low therapeautic range you are problem going to have a medication adjustment soon. You problem know more than I do about this, we have only been dealing with this for about a year. I will say that with-o Sara PA's advice we would be treating my daughter for anxiety and inattentive ADHD. Sara advised a neurologist consult BEFORE medications, apparently this was the norm until a few years ago. I am VERY glad we did, because NO ONE expected seizures!!! She is much better, and is happier with herself.</p><p></p><p>I would say that if your son says it was excess energy, maybe before events you should have him do something to work off energy. Laps around the house, jumping on the bed, something that works for him. Sometimes we have to anticipate what may set our kids off and prepare. Sometimes we can head things off at the pass.</p><p></p><p>I also wonder if there is a sensory integration component. Not sure if you are aware of sensory integration disorder, but it is where the brain cannot process the stimuli sent from the senses. I think it is probably vastly underdiagnosed. A shame, as treating it can make a family so much happier.</p><p></p><p>My son reacts very badly in church. For years we could not take thank you in for the service. He just could NOT cope, and afterward we had such a stressed little guy. Now, at the grand old age of 8 (HE thinks he is "practically all grown up"!!!) he can sit through a service with the organ and the choir and everything. It is great to see. </p><p></p><p>This is usually diagnosed by an Occupational Therapist (Occupational Therapist (OT)). I strongly recommend reading "The Out of Sync Child" by Carol Kranowitz, and keeping your mind open. Or, Kranowitz has what is a more useful book to my family, called "The Out of Sync Child Has Fun". It has ALL kinds of exercises that work to help the brain/body sync up better. And they things in the book are FUN!!! Most of them are NOT expensive, and there are ways to modify them for budget, preferences, etc....</p><p></p><p>It willcertainly provide ways for him to use the excess energy. (If it was my budget, I would get the first book at the library and the Has Fun book at the bookstore.</p><p></p><p>The one idea that has helped my Tyler more than any is the Crash Pad. I took 2 twin size flat sheets and sewed them together on 3 sides. Then I put all our out of season blankets, pillows we don't use anymore, and some pillows and fluffy comforters from the thrift store in it. I never did get around to sewing the 4th side shut, but it hasn't been a problem.</p><p></p><p>thank you can jump off the bed or couch onto the crash pad. He can sprawl on it to read a book, roll himself up in it, and even mush it around to make a "nest" to comfort himself when he needs that. Or when he wants to read or watch a video in it. I did have to make a HUGE point that he is NOT to crawl inside it ever. Just scared me to have him do that. But with the 4th side open I can use out of season bedding rather than have to buy items to fill it with.</p><p></p><p>I think this might help, esp as you don't think it is ADHD. Just a thought that hit as I read your post.</p><p></p><p>Welcome to our site, and hope you can help him get a handle on this.</p><p></p><p>Susie</p></blockquote><p></p>
[QUOTE="susiestar, post: 113650, member: 1233"] It sounds like he is a pretty happy kid. I would have run from the psychiatrist you saw also. My daughter has Absence Epilepsy, is this the type of epilepsy your son has? I can say that if his medications are in the low therapeautic range you are problem going to have a medication adjustment soon. You problem know more than I do about this, we have only been dealing with this for about a year. I will say that with-o Sara PA's advice we would be treating my daughter for anxiety and inattentive ADHD. Sara advised a neurologist consult BEFORE medications, apparently this was the norm until a few years ago. I am VERY glad we did, because NO ONE expected seizures!!! She is much better, and is happier with herself. I would say that if your son says it was excess energy, maybe before events you should have him do something to work off energy. Laps around the house, jumping on the bed, something that works for him. Sometimes we have to anticipate what may set our kids off and prepare. Sometimes we can head things off at the pass. I also wonder if there is a sensory integration component. Not sure if you are aware of sensory integration disorder, but it is where the brain cannot process the stimuli sent from the senses. I think it is probably vastly underdiagnosed. A shame, as treating it can make a family so much happier. My son reacts very badly in church. For years we could not take thank you in for the service. He just could NOT cope, and afterward we had such a stressed little guy. Now, at the grand old age of 8 (HE thinks he is "practically all grown up"!!!) he can sit through a service with the organ and the choir and everything. It is great to see. This is usually diagnosed by an Occupational Therapist (Occupational Therapist (OT)). I strongly recommend reading "The Out of Sync Child" by Carol Kranowitz, and keeping your mind open. Or, Kranowitz has what is a more useful book to my family, called "The Out of Sync Child Has Fun". It has ALL kinds of exercises that work to help the brain/body sync up better. And they things in the book are FUN!!! Most of them are NOT expensive, and there are ways to modify them for budget, preferences, etc.... It willcertainly provide ways for him to use the excess energy. (If it was my budget, I would get the first book at the library and the Has Fun book at the bookstore. The one idea that has helped my Tyler more than any is the Crash Pad. I took 2 twin size flat sheets and sewed them together on 3 sides. Then I put all our out of season blankets, pillows we don't use anymore, and some pillows and fluffy comforters from the thrift store in it. I never did get around to sewing the 4th side shut, but it hasn't been a problem. thank you can jump off the bed or couch onto the crash pad. He can sprawl on it to read a book, roll himself up in it, and even mush it around to make a "nest" to comfort himself when he needs that. Or when he wants to read or watch a video in it. I did have to make a HUGE point that he is NOT to crawl inside it ever. Just scared me to have him do that. But with the 4th side open I can use out of season bedding rather than have to buy items to fill it with. I think this might help, esp as you don't think it is ADHD. Just a thought that hit as I read your post. Welcome to our site, and hope you can help him get a handle on this. Susie [/QUOTE]
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