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General Parenting
What to do when parents don't believe diagnosis!!!?
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<blockquote data-quote="buddy" data-source="post: 522082" data-attributes="member: 12886"><p>Exactly why I said I'd be tempted to do that, but in reality it probably does no good...she does not want to hear it. She misread the article and twisted it to her way of thinking (they have found things that trend in kids with autism but there is no way to detect autism on MRI....NO FORM of it except for the diseases that cause autistic symptoms like RETT's syndrome and Turbous Sclerosis (SP?) etc. But primary autism, not able to do it yet. (if they could then our kids would all get the definitive diagnosis really early, right?)</p><p>for example I read an article that they are seeing a general trend (statistically, but not ALL kids have it) that the hippocampus is smaller in kids with autism. OK, well it also is in other issues so...??? not definitive. To come up with that many arguments....really makes me think she just can't face the reality that they may have a life long disability....maybe it is just her personality, but I think on OASIS (that autism site) there are grandparent articles that talk about this kind of thing. I remember a letter from a grandma there that said how helpless they felt and how at first they didn't want to believe. They questioned everything then felt the need to stay out, etc....the whole journey was really interesting to read about. </p><p></p><p>My family is sometimes too close. We have gone to therapy in the past to work on becoming unmeshed (is that a word? lol. we were too enmeshed, so maybe unenmeshed??? I'm brain dead).</p><p></p><p>IT was super hard to start to not ask as many questions, not share opinions unless specifically asked for, not try to solve problems for eachother, not to call the others when concerned over one of us etc. We are much healthier now, We dont talk daily and really do only talk about problems if specifically asked about. </p><p></p><p>Hope you can start the process of doing what husband says and just limit what you discuss. Only your children matter in this situation. You and husband have just about too much to handle as it is, so that is one problem you can actually solve by setting boundaries.</p><p></p><p>HUGS to you as always, Dee</p></blockquote><p></p>
[QUOTE="buddy, post: 522082, member: 12886"] Exactly why I said I'd be tempted to do that, but in reality it probably does no good...she does not want to hear it. She misread the article and twisted it to her way of thinking (they have found things that trend in kids with autism but there is no way to detect autism on MRI....NO FORM of it except for the diseases that cause autistic symptoms like RETT's syndrome and Turbous Sclerosis (SP?) etc. But primary autism, not able to do it yet. (if they could then our kids would all get the definitive diagnosis really early, right?) for example I read an article that they are seeing a general trend (statistically, but not ALL kids have it) that the hippocampus is smaller in kids with autism. OK, well it also is in other issues so...??? not definitive. To come up with that many arguments....really makes me think she just can't face the reality that they may have a life long disability....maybe it is just her personality, but I think on OASIS (that autism site) there are grandparent articles that talk about this kind of thing. I remember a letter from a grandma there that said how helpless they felt and how at first they didn't want to believe. They questioned everything then felt the need to stay out, etc....the whole journey was really interesting to read about. My family is sometimes too close. We have gone to therapy in the past to work on becoming unmeshed (is that a word? lol. we were too enmeshed, so maybe unenmeshed??? I'm brain dead). IT was super hard to start to not ask as many questions, not share opinions unless specifically asked for, not try to solve problems for eachother, not to call the others when concerned over one of us etc. We are much healthier now, We dont talk daily and really do only talk about problems if specifically asked about. Hope you can start the process of doing what husband says and just limit what you discuss. Only your children matter in this situation. You and husband have just about too much to handle as it is, so that is one problem you can actually solve by setting boundaries. HUGS to you as always, Dee [/QUOTE]
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