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What type of professional did you have the best luck with for your child?
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<blockquote data-quote="DazedandConfused" data-source="post: 185373" data-attributes="member: 831"><p><span style="color: #0f2637"><span style="font-family: 'Verdana'">Good question. </span></span></p><p> </p><p><span style="color: #0f2637"><span style="font-family: 'Verdana'">Due to her ALL diagnoses, she has been tested by so many professionals when I think back on it, it's overwhelming.</span></span></p><p> </p><p><span style="color: #0f2637"><span style="font-family: 'Verdana'">I will just list the best and the worst.</span></span></p><p> </p><p><u><span style="color: #0f2637"><span style="font-family: 'Verdana'">Best</span></span></u><span style="color: #0f2637"><span style="font-family: 'Verdana'">: </span></span></p><p> </p><p><span style="color: #0f2637"><span style="font-family: 'Verdana'">Her psychiatrist through a children's therapy center (actually they call it a place for "abused" children because that's what gets the wealthy to donate $$$ to it. It always made me bristle because they did so much more than that). He worked with her therapist for correct diagnoses and to get her on the right medication. It helped immensely, if only for a year, or so. At least, I knew there was some hope. He was very pro-parent with me and was also aware of his limitations as a psychiatrist. In other words, there came a time when he was honest and said, "You know, Daughter may benefit from seeing another psychiatrist with more in an expertise in medication combos than I". Then between he and the therapist, gave me a list of psychiatrists that were known to be very good with prescribing medications in combination. </span></span></p><p> </p><p><span style="color: #0f2637"><span style="font-family: 'Verdana'">Therapist: Also through the children's center. I was so wrung out and very defensive that I was going to be labeled a "bad" parent that I was very aggressive and would jump on any comment she made about my parenting skills. She handled it with tact and compassion. Daughter, through it was a rough road, formed a relationship with her. </span></span></p><p> </p><p><u><span style="color: #0f2637"><span style="font-family: 'Verdana'">Worst:</span></span></u></p><p> </p><p><span style="color: #0f2637"><span style="font-family: 'Verdana'">Neurologist. I know I say find a Neuorpsych through a university teaching hospital pediatric neurology department. I did for daughter, and it was not good (I hadn't found this site, yet). She, in short, dismissed all of my concerns regarding behavior, meltdowns, and some of the outrageous stuff Daughter did with, "Oh, she's just a little sensitive". Yeah, just a little, sheesh! How she said it still irks me, in a little sing-song voice. Grrrr. Anyway, she prescribed Straterra (good ole ADHD diagnoses) and of course, nothing changed.</span></span></p><p> </p><p><span style="color: #0f2637"><span style="font-family: 'Verdana'">For Son:</span></span></p><p> </p><p><u><span style="color: #0f2637"><span style="font-family: 'Verdana'">Best:</span></span></u></p><p> </p><p><span style="color: #0f2637"><span style="font-family: 'Verdana'">neuropsychologist recommended by university teaching hospital pediatric neurology department. Yes, same one I took daughter to. However, different MD, and I WAS DIFFERENT. 1. I was more experienced. 2. I found this website. I knew exactly what I wanted and needed. I spoke with authority with the Neurologist. Anyway, the neuropsychologist, is a mother of five children, including a difficult child. She knew my pain. She was so compassionate and understood how grueling the testing process was going to be for Son. She was determined to do a thorough job and try and gain some insight into Son.</span></span></p><p> </p><p><u><span style="color: #0f2637"><span style="font-family: 'Verdana'">Worst:</span></span></u></p><p> </p><p><span style="color: #0f2637"><span style="font-family: 'Verdana'">Therapist through children's center. Different one than Daughter had. This woman was adamant that Son was an Aspie. Yes, he had a few aspie-like behaviors, but none of the hallmarks. Therapist had a lot of autism knowledge because her autistic brother. We would have these debates back and forth. It was also clear therapy for Son was a disaster. He needed help with life skills, not talk therapy. I discontinued therapy for him. A couple of years later, neuropsychologist testing. The tests confirmed no AS.</span></span></p><p> </p><p><span style="color: #0f2637"><span style="font-family: 'Verdana'">I'm going to give the following professionals a "neutral"-both good and bad.</span></span></p><p> </p><p><span style="color: #0f2637"><span style="font-family: 'Verdana'">Current psychiatrist for Son: Nice guy and he listens to me. Suggested IQ testing on son. Son scores in the mid 70s. Borderline. I don't believe it and question the results. Son keeps up with peers academically, for the most part. What's up? We debate, but he never condescends to me. We try various medications for rages and irritability. This psychiatrist prescribes risperdal and, for the first time, we can do a few typical family things without him deteriorating into an out of control disaster. Currently, he's simply my scrip writer for the risperdal. He also helped daughter in the beginning with her moods and meltdowns before we went to the children's center.</span></span></p><p> </p><p><span style="color: #0f2637"><span style="font-family: 'Verdana'">School District: In the beginning, school kept denying son needed anything beyond what a typical student would get education-wise. Once I got the neuropsychologist results (confirmed mid 70's IQ that I got years before), I wanted him to have comprehensive (as much as one can get through a SD) psycho-educational testing. Of course, by then, I was a seasoned veteran of this difficult child world. I knew who to go to, what to do, and how to do it. I literally handed the request (along with bringing a witness) to the school psychiatric when he came to the school site I work at. He was actually very nice and helpful. Even so much as asking for the tests that neuropsychologist did because he didn't want to give duplicate tests (very important) that might affect the integrity of the results. The result of this was Son getting a 504 plan. However, when he moved onto middle school, and away from me, it was very important that I set up a meeting with all his core academic teachers, and school counselor, to inform them of his 504 plan and my expectations. </span></span></p><p> </p><p><span style="color: #0f2637"><span style="font-family: 'Verdana'">What I have learned on the very rough, sometimes enlightening, and many times frustrating journey with my kids this that I have to lead the way. Not the professionals. I have to be up on my game. My kids are only one of many clients, patients, or students to them. My children will, and have been, like nomads- they come through, perhaps put up a tent, and depending on the resources available, will eventually move on. Sometimes, it's a brief visit, other times, they stay awhile. Yet, it is inevitable they will move on, and the professionals to will move on to new clients, patients, and students. Yet, I make it very clear to all professionals that my children, and I, will have to forever live with the decisions and treatments made by, and with them. So, don't be dissin' mom because she's got game and she'll bring out the</span></span><img src="/community/styles/default/xenforo/smilies/emoticons/sword.gif" class="smilie" loading="lazy" alt=":sword:" title="sword :sword:" data-shortname=":sword:" /><span style="font-size: 22px">!</span></p></blockquote><p></p>
[QUOTE="DazedandConfused, post: 185373, member: 831"] [COLOR=#0f2637][FONT=Verdana]Good question. [/FONT][/COLOR] [COLOR=#0f2637][FONT=Verdana]Due to her ALL diagnoses, she has been tested by so many professionals when I think back on it, it's overwhelming.[/FONT][/COLOR] [COLOR=#0f2637][FONT=Verdana]I will just list the best and the worst.[/FONT][/COLOR] [U][COLOR=#0f2637][FONT=Verdana]Best[/FONT][/COLOR][/U][COLOR=#0f2637][FONT=Verdana]: [/FONT][/COLOR] [COLOR=#0f2637][FONT=Verdana]Her psychiatrist through a children's therapy center (actually they call it a place for "abused" children because that's what gets the wealthy to donate $$$ to it. It always made me bristle because they did so much more than that). He worked with her therapist for correct diagnoses and to get her on the right medication. It helped immensely, if only for a year, or so. At least, I knew there was some hope. He was very pro-parent with me and was also aware of his limitations as a psychiatrist. In other words, there came a time when he was honest and said, "You know, Daughter may benefit from seeing another psychiatrist with more in an expertise in medication combos than I". Then between he and the therapist, gave me a list of psychiatrists that were known to be very good with prescribing medications in combination. [/FONT][/COLOR] [COLOR=#0f2637][FONT=Verdana]Therapist: Also through the children's center. I was so wrung out and very defensive that I was going to be labeled a "bad" parent that I was very aggressive and would jump on any comment she made about my parenting skills. She handled it with tact and compassion. Daughter, through it was a rough road, formed a relationship with her. [/FONT][/COLOR] [U][COLOR=#0f2637][FONT=Verdana]Worst:[/FONT][/COLOR][/U] [COLOR=#0f2637][FONT=Verdana]Neurologist. I know I say find a Neuorpsych through a university teaching hospital pediatric neurology department. I did for daughter, and it was not good (I hadn't found this site, yet). She, in short, dismissed all of my concerns regarding behavior, meltdowns, and some of the outrageous stuff Daughter did with, "Oh, she's just a little sensitive". Yeah, just a little, sheesh! How she said it still irks me, in a little sing-song voice. Grrrr. Anyway, she prescribed Straterra (good ole ADHD diagnoses) and of course, nothing changed.[/FONT][/COLOR] [COLOR=#0f2637][FONT=Verdana]For Son:[/FONT][/COLOR] [U][COLOR=#0f2637][FONT=Verdana]Best:[/FONT][/COLOR][/U] [COLOR=#0f2637][FONT=Verdana]neuropsychologist recommended by university teaching hospital pediatric neurology department. Yes, same one I took daughter to. However, different MD, and I WAS DIFFERENT. 1. I was more experienced. 2. I found this website. I knew exactly what I wanted and needed. I spoke with authority with the Neurologist. Anyway, the neuropsychologist, is a mother of five children, including a difficult child. She knew my pain. She was so compassionate and understood how grueling the testing process was going to be for Son. She was determined to do a thorough job and try and gain some insight into Son.[/FONT][/COLOR] [U][COLOR=#0f2637][FONT=Verdana]Worst:[/FONT][/COLOR][/U] [COLOR=#0f2637][FONT=Verdana]Therapist through children's center. Different one than Daughter had. This woman was adamant that Son was an Aspie. Yes, he had a few aspie-like behaviors, but none of the hallmarks. Therapist had a lot of autism knowledge because her autistic brother. We would have these debates back and forth. It was also clear therapy for Son was a disaster. He needed help with life skills, not talk therapy. I discontinued therapy for him. A couple of years later, neuropsychologist testing. The tests confirmed no AS.[/FONT][/COLOR] [COLOR=#0f2637][FONT=Verdana]I'm going to give the following professionals a "neutral"-both good and bad.[/FONT][/COLOR] [COLOR=#0f2637][FONT=Verdana]Current psychiatrist for Son: Nice guy and he listens to me. Suggested IQ testing on son. Son scores in the mid 70s. Borderline. I don't believe it and question the results. Son keeps up with peers academically, for the most part. What's up? We debate, but he never condescends to me. We try various medications for rages and irritability. This psychiatrist prescribes risperdal and, for the first time, we can do a few typical family things without him deteriorating into an out of control disaster. Currently, he's simply my scrip writer for the risperdal. He also helped daughter in the beginning with her moods and meltdowns before we went to the children's center.[/FONT][/COLOR] [COLOR=#0f2637][FONT=Verdana]School District: In the beginning, school kept denying son needed anything beyond what a typical student would get education-wise. Once I got the neuropsychologist results (confirmed mid 70's IQ that I got years before), I wanted him to have comprehensive (as much as one can get through a SD) psycho-educational testing. Of course, by then, I was a seasoned veteran of this difficult child world. I knew who to go to, what to do, and how to do it. I literally handed the request (along with bringing a witness) to the school psychiatric when he came to the school site I work at. He was actually very nice and helpful. Even so much as asking for the tests that neuropsychologist did because he didn't want to give duplicate tests (very important) that might affect the integrity of the results. The result of this was Son getting a 504 plan. However, when he moved onto middle school, and away from me, it was very important that I set up a meeting with all his core academic teachers, and school counselor, to inform them of his 504 plan and my expectations. [/FONT][/COLOR] [COLOR=#0f2637][FONT=Verdana]What I have learned on the very rough, sometimes enlightening, and many times frustrating journey with my kids this that I have to lead the way. Not the professionals. I have to be up on my game. My kids are only one of many clients, patients, or students to them. My children will, and have been, like nomads- they come through, perhaps put up a tent, and depending on the resources available, will eventually move on. Sometimes, it's a brief visit, other times, they stay awhile. Yet, it is inevitable they will move on, and the professionals to will move on to new clients, patients, and students. Yet, I make it very clear to all professionals that my children, and I, will have to forever live with the decisions and treatments made by, and with them. So, don't be dissin' mom because she's got game and she'll bring out the[/FONT][/COLOR]:sword:[SIZE=6]![/SIZE] [/QUOTE]
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