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When doctors don't listen to patients (inspired by MM's thread)
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<blockquote data-quote="BusynMember" data-source="post: 550446" data-attributes="member: 1550"><p>Susie, that is EXACATLy what I said and was shot down, but I have heard enough that it is right. Big pharma has a lot to do with what we are given and what our kids are given. Along with that, something I understand less, is this "diagnosis of the week" phenomena. At first it was ADHD. Everything was attributed to ADHD from mild inattention to laziness to wild raging and violence. Then came bipolar. I am personally not convinced anyone can diagnose actual bipolar in children since there is no mania and depressive cycles in most kids and I personally (doesn't mean I'm right) don't buy that the kids just cycle faster. I can see more a diagnosis of emotional dysregulation in moody kids, but bipolar brings out the BIG GUN medications that hurt my son AND me so badly. And it assumes that, as an adult, the child will suffer from out and out bipolar. There are no studies indicating that they are right, but bipolar is definitely one of the newest diagnosis. of the week. Along with that is Aspergers, which has been written out of the DSM. I like the idea of the DSM lumping everything into autistic spectrum disorder, with differing degrees of it being diagnosed, but not making Aspergers seperate.Why?</p><p></p><p>Well, many kids diagnosed with Aspergers are FAR less functioning than my son Sonic and I feel it is merely a "feel good" diagnosis. It hurts more to hear Pervasive Developmental Disorder (PDD)-not otherwise specified or autistic spectrum disorder. My son was actually diagnosed with Pervasive Developmental Disorder (PDD)-not otherwise specified and most of the kids diagnosed with Aspergers that I have met in our large autism parent group have k ids who are far more clueless and less capable than my son. I don't know how most will function on their own, but because of the "Aspergers" label, the parents hold onto the belief that their 21 year olds who can not take care of themselves will be able to be self-sufficient and live like a typical person. Some can. Some with lower functioning autism can (see Donna Williams). Is this the rule? No. Most would in my opinion do better in a setting where they can be looked after at least a little b it, at least in the US (I do not know how this is handled anywhere else). So in my opinion (and I don't mean to offend anyone and am not saying I am right...this is my opinion) this is another big diagnosis of the day. Often Aspegers kids do not get the good services other Autism Spectrum Disorders (ASD) kids are offered and really flounder. I have seen it. Even worse, most are still living at home with Dad and Mom at 29. We have adult kids in our group with aging parents who still take care of their Aspie kids rather than wondering what will happen once they are no longer able to provide for them. I don't know how these "diagnoses of the week" come about. Maybe doctors go to conferences and some doctor has a theory and many jump on the bandwagon. I have come to mistrust, more than anything else, psychiatric diagnosis. Hells bells, at t hree years old I told my sons' psychiatrist I thought he had autism. The little boy would rock and echo and copy what he heard on TV and point rather than speak and potty in his pants...yet "he is too friendly to be autistic so he is ADHD/ODD." Nonsense. In the end we were right.</p><p></p><p>I'll bet Mom Gut is way more accurate than Therapist or even psychiatrist gut. We know our k ids. They see them for limited amounts of time. It is a gift indeed if you find a professional who believes you, the parent, have worthy knowledge. I find neuropsychs to be the most receptive to what we tell them. Poor Sonic had a psyschiatrist who refused to let go of his bipolar diagnosis. If you met sonic, you would never think he has BiPolar (BP) or any mood disorder and you are laypeople. Why did the psychiatrist keep insisting he was right?</p><p></p><p>Ok, probably off topic and serious...I do not mean to offend anyone here. I am simply stating my own opinion. Opinions can be wrong. It is our perception and experience that shapes our opinions.</p></blockquote><p></p>
[QUOTE="BusynMember, post: 550446, member: 1550"] Susie, that is EXACATLy what I said and was shot down, but I have heard enough that it is right. Big pharma has a lot to do with what we are given and what our kids are given. Along with that, something I understand less, is this "diagnosis of the week" phenomena. At first it was ADHD. Everything was attributed to ADHD from mild inattention to laziness to wild raging and violence. Then came bipolar. I am personally not convinced anyone can diagnose actual bipolar in children since there is no mania and depressive cycles in most kids and I personally (doesn't mean I'm right) don't buy that the kids just cycle faster. I can see more a diagnosis of emotional dysregulation in moody kids, but bipolar brings out the BIG GUN medications that hurt my son AND me so badly. And it assumes that, as an adult, the child will suffer from out and out bipolar. There are no studies indicating that they are right, but bipolar is definitely one of the newest diagnosis. of the week. Along with that is Aspergers, which has been written out of the DSM. I like the idea of the DSM lumping everything into autistic spectrum disorder, with differing degrees of it being diagnosed, but not making Aspergers seperate.Why? Well, many kids diagnosed with Aspergers are FAR less functioning than my son Sonic and I feel it is merely a "feel good" diagnosis. It hurts more to hear Pervasive Developmental Disorder (PDD)-not otherwise specified or autistic spectrum disorder. My son was actually diagnosed with Pervasive Developmental Disorder (PDD)-not otherwise specified and most of the kids diagnosed with Aspergers that I have met in our large autism parent group have k ids who are far more clueless and less capable than my son. I don't know how most will function on their own, but because of the "Aspergers" label, the parents hold onto the belief that their 21 year olds who can not take care of themselves will be able to be self-sufficient and live like a typical person. Some can. Some with lower functioning autism can (see Donna Williams). Is this the rule? No. Most would in my opinion do better in a setting where they can be looked after at least a little b it, at least in the US (I do not know how this is handled anywhere else). So in my opinion (and I don't mean to offend anyone and am not saying I am right...this is my opinion) this is another big diagnosis of the day. Often Aspegers kids do not get the good services other Autism Spectrum Disorders (ASD) kids are offered and really flounder. I have seen it. Even worse, most are still living at home with Dad and Mom at 29. We have adult kids in our group with aging parents who still take care of their Aspie kids rather than wondering what will happen once they are no longer able to provide for them. I don't know how these "diagnoses of the week" come about. Maybe doctors go to conferences and some doctor has a theory and many jump on the bandwagon. I have come to mistrust, more than anything else, psychiatric diagnosis. Hells bells, at t hree years old I told my sons' psychiatrist I thought he had autism. The little boy would rock and echo and copy what he heard on TV and point rather than speak and potty in his pants...yet "he is too friendly to be autistic so he is ADHD/ODD." Nonsense. In the end we were right. I'll bet Mom Gut is way more accurate than Therapist or even psychiatrist gut. We know our k ids. They see them for limited amounts of time. It is a gift indeed if you find a professional who believes you, the parent, have worthy knowledge. I find neuropsychs to be the most receptive to what we tell them. Poor Sonic had a psyschiatrist who refused to let go of his bipolar diagnosis. If you met sonic, you would never think he has BiPolar (BP) or any mood disorder and you are laypeople. Why did the psychiatrist keep insisting he was right? Ok, probably off topic and serious...I do not mean to offend anyone here. I am simply stating my own opinion. Opinions can be wrong. It is our perception and experience that shapes our opinions. [/QUOTE]
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