TheOnlyMe
Relentless Warrior Mom
Well, where to start...........in October my son began to relapse and he still is not stable. Well during this time SSI decides WITHOUT looking at any documentation, I provided to them FOUR times !!! So anyway, my son is a medication change which was causing psychotic symptoms and I get a letter from SSI saying he was stable and no longer Disabled! 
So I file the reconsideration letter within the 10 days, to continue benefits, while son is hospitalized!!!!!!!!!!
I think everything is groovy and THEN I get a letter from Medicaid on 1/28/09 saying, it is cutting him off cuz SSI said he isn't getting anymore benefits! UGH!
So I call National SSI #, actually get a real good CSR! Who tells me I just need to go into the local office, which here in Htown is like asking you to go take a sauna in he--double hockey sticks! So I make an appointment. I get a updated letter from psychiatrist stating he has been relapsing since Oct and still is unstable and SSI needs to consider this while considering his Medicaid and SSI benfits.
I also contact Senate John Coryn's office because his website states
"As your U.S. Senator, one of my most important roles is to serve as your liaison with the federal government and its agencies. I understand how challenging it can be when dealing with the bureaucracy. My staff and I will do everything possible to assist you in resolving any difficulties you may be experiencing. Your needs and concerns are a top priority for me."
I faxed his office on yesterday and when I walked in the SSI office today the District Manager came looking for me before I COULD sit down for my appointment. Asked me if I was my name and did I fax Senator Coryn yesterday? I said, YES, I did! I asked him for a copy of the fax, before he left. The CSR, I got made a copy of the WHOLE file; I sent with the Appeal (at least 3" thick) claim which went back to 1993 of medical records to current!!! In addtion to she reinstated his MEDICAID AND his SSI BENEFITS for MARCH, I asked her for it in writing and she is going to help me get it straighten out, where they are calculating his monthly amount by figuring in my arreas Child support instead of just the Court Ordered amount.
SO HORRAY FOR TODAY.
I thanked the Lord Most of ALL!!!
So I file the reconsideration letter within the 10 days, to continue benefits, while son is hospitalized!!!!!!!!!!I think everything is groovy and THEN I get a letter from Medicaid on 1/28/09 saying, it is cutting him off cuz SSI said he isn't getting anymore benefits! UGH!
So I call National SSI #, actually get a real good CSR! Who tells me I just need to go into the local office, which here in Htown is like asking you to go take a sauna in he--double hockey sticks! So I make an appointment. I get a updated letter from psychiatrist stating he has been relapsing since Oct and still is unstable and SSI needs to consider this while considering his Medicaid and SSI benfits.
I also contact Senate John Coryn's office because his website states
"As your U.S. Senator, one of my most important roles is to serve as your liaison with the federal government and its agencies. I understand how challenging it can be when dealing with the bureaucracy. My staff and I will do everything possible to assist you in resolving any difficulties you may be experiencing. Your needs and concerns are a top priority for me."
I faxed his office on yesterday and when I walked in the SSI office today the District Manager came looking for me before I COULD sit down for my appointment. Asked me if I was my name and did I fax Senator Coryn yesterday? I said, YES, I did! I asked him for a copy of the fax, before he left. The CSR, I got made a copy of the WHOLE file; I sent with the Appeal (at least 3" thick) claim which went back to 1993 of medical records to current!!! In addtion to she reinstated his MEDICAID AND his SSI BENEFITS for MARCH, I asked her for it in writing and she is going to help me get it straighten out, where they are calculating his monthly amount by figuring in my arreas Child support instead of just the Court Ordered amount.
SO HORRAY FOR TODAY.
I thanked the Lord Most of ALL!!!
