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When your parent is a 'difficult child' ?
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<blockquote data-quote="DammitJanet" data-source="post: 80349" data-attributes="member: 1514"><p>BBK, I am not mad at you...lol.. This is just a passionate subject to me because it hits so close to home for me. It obviously hits close to home for you too. I know you didnt mean to upset me, I didnt mean it that way...I was just clarifying that GG didnt upset me that your post did. I, along with a ton of people who take narcotics for chronic pain, get really upset over the addiction/dependence controversy.</p><p></p><p>This is as hot a topic on the boards for fibro/CFS/ME as the subject of saying we are drugging our kids into submission does on this board. It brings out the same knee jerk response. </p><p></p><p>GG...maybe I can more calmly reply to you now that I have had time to cool down after taking a short drive...lmao.</p><p></p><p>I know there are so called experts out there that say all sorts of things about fibro. The truth of the matter is that no one really knows much about it. No one knows why we get it, what is going to happen with it, if it is going to progress, if we will get better, nothing!</p><p></p><p>No one knows how to really treat it, how to make us better, not even what caused it in the first place. We are really lost. Im sure your mom has seen a ton of doctors to get to this diagnosis. She probably has a rheumy doctor, a general practioner or family doctor, a pain specialist, and maybe more by now. She has probably gone through many more doctors trying to find out why she has all this pain and what is wrong with her. By the time the diagnosis of fibro is made, almost everything else is ruled out. </p><p></p><p>We are left to search and figure it out for ourselves what we can do to make things better and live as best we can. Many of us turn to the internet to look for ways that others have found to try and get relief. That can be from massages, PT, water exercise, chiropractic care, medication, supplements, diet, and other protocols. </p><p></p><p>From my experience, and from what I have seen of many others, fibro gets worse. It can go into remission in SOME people but that isnt the case in all people and that is normally in the early stages of the disorder. When you get into the later stages, folks are normally pretty well down for the count. Other things go along with fibro too such as osteo arthritis, herniated disks, IBS, other gastro problems, all of which can lead to pain and disability.</p><p></p><p>The true experts on fibro are the people who have it themselves and so far, all we have found is palliative care. We do the best we can to live as full and rounded a life as we can but sometimes we have to give in to the disease. We have to live our lives around it. </p><p></p><p>I hope I am making sense.</p></blockquote><p></p>
[QUOTE="DammitJanet, post: 80349, member: 1514"] BBK, I am not mad at you...lol.. This is just a passionate subject to me because it hits so close to home for me. It obviously hits close to home for you too. I know you didnt mean to upset me, I didnt mean it that way...I was just clarifying that GG didnt upset me that your post did. I, along with a ton of people who take narcotics for chronic pain, get really upset over the addiction/dependence controversy. This is as hot a topic on the boards for fibro/CFS/ME as the subject of saying we are drugging our kids into submission does on this board. It brings out the same knee jerk response. GG...maybe I can more calmly reply to you now that I have had time to cool down after taking a short drive...lmao. I know there are so called experts out there that say all sorts of things about fibro. The truth of the matter is that no one really knows much about it. No one knows why we get it, what is going to happen with it, if it is going to progress, if we will get better, nothing! No one knows how to really treat it, how to make us better, not even what caused it in the first place. We are really lost. Im sure your mom has seen a ton of doctors to get to this diagnosis. She probably has a rheumy doctor, a general practioner or family doctor, a pain specialist, and maybe more by now. She has probably gone through many more doctors trying to find out why she has all this pain and what is wrong with her. By the time the diagnosis of fibro is made, almost everything else is ruled out. We are left to search and figure it out for ourselves what we can do to make things better and live as best we can. Many of us turn to the internet to look for ways that others have found to try and get relief. That can be from massages, PT, water exercise, chiropractic care, medication, supplements, diet, and other protocols. From my experience, and from what I have seen of many others, fibro gets worse. It can go into remission in SOME people but that isnt the case in all people and that is normally in the early stages of the disorder. When you get into the later stages, folks are normally pretty well down for the count. Other things go along with fibro too such as osteo arthritis, herniated disks, IBS, other gastro problems, all of which can lead to pain and disability. The true experts on fibro are the people who have it themselves and so far, all we have found is palliative care. We do the best we can to live as full and rounded a life as we can but sometimes we have to give in to the disease. We have to live our lives around it. I hope I am making sense. [/QUOTE]
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When your parent is a 'difficult child' ?
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