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Why diagnose?
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<blockquote data-quote="susiestar" data-source="post: 288411" data-attributes="member: 1233"><p>I am glad you are recognizing that the staring, the hand going straight, etc really ARE seizures. Sure, she isn't dropping to the floor in convulsions. But she also isn't totally symptom free.</p><p></p><p>My daughter describes it as her brain "checking out". Her friends ALL saw it and knew what it was LONG before we adults did. They love her anyway.</p><p></p><p>It is SO HARD to face your beloved child having seizures. For me, it was extra hard because seh was my "easy" child, the "healthy" one. But she isn't.</p><p></p><p>She falls. A LOT when she is seizing regularly. SHe will be walking or running and just suddenly her legs won't be under her. It can get dangerous. What if she were crossing a street? What if she were driving? We don't know if she will ever be able to get a driver's license. The neurologist says wait and see. (That drives me NUTTY!)</p><p></p><p>She has to be on the bottom row of any choir or performance. If she seized during a performance people would just see her fall. Off a riser it could be dangerous.</p><p></p><p>It takes a while to navigate through this. I do think the communication issues should probably be checked out as SRL suggested. If she cannot communicate she needs special help learning ways to adapt tot hat.</p></blockquote><p></p>
[QUOTE="susiestar, post: 288411, member: 1233"] I am glad you are recognizing that the staring, the hand going straight, etc really ARE seizures. Sure, she isn't dropping to the floor in convulsions. But she also isn't totally symptom free. My daughter describes it as her brain "checking out". Her friends ALL saw it and knew what it was LONG before we adults did. They love her anyway. It is SO HARD to face your beloved child having seizures. For me, it was extra hard because seh was my "easy" child, the "healthy" one. But she isn't. She falls. A LOT when she is seizing regularly. SHe will be walking or running and just suddenly her legs won't be under her. It can get dangerous. What if she were crossing a street? What if she were driving? We don't know if she will ever be able to get a driver's license. The neurologist says wait and see. (That drives me NUTTY!) She has to be on the bottom row of any choir or performance. If she seized during a performance people would just see her fall. Off a riser it could be dangerous. It takes a while to navigate through this. I do think the communication issues should probably be checked out as SRL suggested. If she cannot communicate she needs special help learning ways to adapt tot hat. [/QUOTE]
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