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Why is this happening to our family?
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<blockquote data-quote="buddy" data-source="post: 557133" data-attributes="member: 12886"><p>Hi! I'm sorry you had to search us out but glad you found this awesome forum. My son has all of those symptoms too and he is diagnosed with Autism Spectrum Disorder and brain injury because he had a brain mass which was found and removed at age two. He was treated as behavior only when very young and even a neurologist he saw for seizures refused to say anything was wrong until someone forced the states hand (he is adopted from foster care) and a new neurologist sent him for an emergency cat scan and he went into brain surgery that day. I tell you that not because I think your son has a brain mass but to let you know that many professionals miss things and if your son is this intensively challenged, my instinct would be that there is something going on beyond adhd and a mood disorder. Those are actually symptoms of other issues and another option is that there are other issues that are making him look as if he has adhd/mood disorder. My son's mood disorder when he got older turned out to be temporal lobe seizures. he was tested for that and they said no..that's not it, so medicated him for years for anxiety. (and yes, he is anxious BUT...) in the end another neuro. group found the seizures and he now has some relief. It is really a lot of work to dig through all this, right? I know what you mean about needing to force yourself to feel loving some days. As you said, of course I always love my boy but there are days I feel like if he was gone I would not miss him a bit and even worse, some days I wish he would hurt as much as he is hurting me (he can be aggressive). My grown up brain would never go there but just that fantasy/feeling is sad to me. </p><p></p><p>I agree that a really hopeful option for you would be to have a comprehensive evaluation done by a specific kind of evaluator that is not purely connected to neurological disabilities nor mental health conditions. A neuropsychologist is a good professional who is a psychologist who has expertise in assessment and connecting how the brain works with behaviors. They can help sort through the many options for diagnosis and even if there is not a diagnosis they can help you with obtaining the right direction for therapy and further evaluations. </p><p></p><p>I fully thought the same as IC that I wonder if there is a sensory processing problem and it is very sad that many doctors do not recognize this in infants when they go on far beyond the colic types of crying. I would still try to get a neuropsychologist evaluation but they can take a while and you can often get in to see an occupational therapist (Occupational Therapist (OT)) much sooner. Make sure when you can for the evaluation you say you specifically want someone very skilled in evaluating sensory integration. </p><p></p><p>IT might be subtle so you might not notice this but just in case, is he sensitive to clothing textures, picky about food, does he make noise for noise sake (like loves echo types of places), or cover his ears in noisy places, or maybe he touches everything or refuses to let people touch him? My son has smell sensitivities and sound and searches for extra input like smashing his body into walls and hugging people too hard, etc. </p><p></p><p>How does he do with other kids when he plays? What kinds of things does he like to play with ? Does he make eye contact consistently? Is he super interested in some things like trucks, trains, colors, numbers, anything?? Does he do pretend play that is more than imitation of what he sees and hears? </p><p></p><p>If you decide to get further evaluations, I will share that it is important to state that you want teh evaluations, not to ask if you think that he should have one. many doctors will poo poo it and you are beyond that. Not that you have to be mean or anything, I just go in to our pediatrician. and say I need a referral for X. He has learned now that when I do that (after all these years) it is because something is going to be found. HE has learned a lot from us, lol. </p><p></p><p>Take care and please know you are not alone.</p></blockquote><p></p>
[QUOTE="buddy, post: 557133, member: 12886"] Hi! I'm sorry you had to search us out but glad you found this awesome forum. My son has all of those symptoms too and he is diagnosed with Autism Spectrum Disorder and brain injury because he had a brain mass which was found and removed at age two. He was treated as behavior only when very young and even a neurologist he saw for seizures refused to say anything was wrong until someone forced the states hand (he is adopted from foster care) and a new neurologist sent him for an emergency cat scan and he went into brain surgery that day. I tell you that not because I think your son has a brain mass but to let you know that many professionals miss things and if your son is this intensively challenged, my instinct would be that there is something going on beyond adhd and a mood disorder. Those are actually symptoms of other issues and another option is that there are other issues that are making him look as if he has adhd/mood disorder. My son's mood disorder when he got older turned out to be temporal lobe seizures. he was tested for that and they said no..that's not it, so medicated him for years for anxiety. (and yes, he is anxious BUT...) in the end another neuro. group found the seizures and he now has some relief. It is really a lot of work to dig through all this, right? I know what you mean about needing to force yourself to feel loving some days. As you said, of course I always love my boy but there are days I feel like if he was gone I would not miss him a bit and even worse, some days I wish he would hurt as much as he is hurting me (he can be aggressive). My grown up brain would never go there but just that fantasy/feeling is sad to me. I agree that a really hopeful option for you would be to have a comprehensive evaluation done by a specific kind of evaluator that is not purely connected to neurological disabilities nor mental health conditions. A neuropsychologist is a good professional who is a psychologist who has expertise in assessment and connecting how the brain works with behaviors. They can help sort through the many options for diagnosis and even if there is not a diagnosis they can help you with obtaining the right direction for therapy and further evaluations. I fully thought the same as IC that I wonder if there is a sensory processing problem and it is very sad that many doctors do not recognize this in infants when they go on far beyond the colic types of crying. I would still try to get a neuropsychologist evaluation but they can take a while and you can often get in to see an occupational therapist (Occupational Therapist (OT)) much sooner. Make sure when you can for the evaluation you say you specifically want someone very skilled in evaluating sensory integration. IT might be subtle so you might not notice this but just in case, is he sensitive to clothing textures, picky about food, does he make noise for noise sake (like loves echo types of places), or cover his ears in noisy places, or maybe he touches everything or refuses to let people touch him? My son has smell sensitivities and sound and searches for extra input like smashing his body into walls and hugging people too hard, etc. How does he do with other kids when he plays? What kinds of things does he like to play with ? Does he make eye contact consistently? Is he super interested in some things like trucks, trains, colors, numbers, anything?? Does he do pretend play that is more than imitation of what he sees and hears? If you decide to get further evaluations, I will share that it is important to state that you want teh evaluations, not to ask if you think that he should have one. many doctors will poo poo it and you are beyond that. Not that you have to be mean or anything, I just go in to our pediatrician. and say I need a referral for X. He has learned now that when I do that (after all these years) it is because something is going to be found. HE has learned a lot from us, lol. Take care and please know you are not alone. [/QUOTE]
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