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General Parenting
Wilson's Disease???
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<blockquote data-quote="Marguerite" data-source="post: 42631" data-attributes="member: 1991"><p>Hang in there, don't panic. It takes time to get the diagnosis confirmed and if it is, it really is good news. Caught early, this is treatable and manageable.</p><p></p><p>In the meantime, while you're waiting to find out for sure - talk to your GP. Maybe see if you can restrict copper-containing foods while you're waiting to find out. Talk about it, see what the doctor thinks. It may be a good idea to restrict the diet, or a bad idea (because it might make it harder for a blood tests to show higher Cu levels in the blood). You really need expert advice on this one. You could do some research in the meantime, so you at least have some idea of how to plan menus when/if you have to make the changes.</p><p></p><p>And in the absolute worst case scenario - they can do liver transplants these days. But from your description, it's nowhere near this yet.</p><p></p><p>If difficult child tests positive, you should get easy child tested too.</p><p></p><p>Marg</p></blockquote><p></p>
[QUOTE="Marguerite, post: 42631, member: 1991"] Hang in there, don't panic. It takes time to get the diagnosis confirmed and if it is, it really is good news. Caught early, this is treatable and manageable. In the meantime, while you're waiting to find out for sure - talk to your GP. Maybe see if you can restrict copper-containing foods while you're waiting to find out. Talk about it, see what the doctor thinks. It may be a good idea to restrict the diet, or a bad idea (because it might make it harder for a blood tests to show higher Cu levels in the blood). You really need expert advice on this one. You could do some research in the meantime, so you at least have some idea of how to plan menus when/if you have to make the changes. And in the absolute worst case scenario - they can do liver transplants these days. But from your description, it's nowhere near this yet. If difficult child tests positive, you should get easy child tested too. Marg [/QUOTE]
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