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General Parenting
Wilson's Disease???
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<blockquote data-quote="Marguerite" data-source="post: 43222" data-attributes="member: 1991"><p>Andrea, can you get a copy of those blood tests done way back when? I'd pass a copy to whichever doctor is investigating Wilson's. A history of blood results as well as what's been tested, can help with a complex medical history. If ANY liver function tests were done it would be valuable. I doubt very much that they would have tested for copper, but other things might still have been within normal limits, but give a hint, with 20:20 hindsight. Alternatively, it can be reassuring to see a past history of beautifully normal results, to work out that IF this disease proves is really happening, it may have only been for a short time (meaning the damage is reversible).</p><p></p><p>The liver is an amazing organ, in the way it can regenerate. Copper can be removed in various ways.</p><p></p><p>And as you said, whatever it turns out to be, you've been part of a very thorough medical investigation that frankly, is NEVER wasted.</p><p></p><p>Marg</p></blockquote><p></p>
[QUOTE="Marguerite, post: 43222, member: 1991"] Andrea, can you get a copy of those blood tests done way back when? I'd pass a copy to whichever doctor is investigating Wilson's. A history of blood results as well as what's been tested, can help with a complex medical history. If ANY liver function tests were done it would be valuable. I doubt very much that they would have tested for copper, but other things might still have been within normal limits, but give a hint, with 20:20 hindsight. Alternatively, it can be reassuring to see a past history of beautifully normal results, to work out that IF this disease proves is really happening, it may have only been for a short time (meaning the damage is reversible). The liver is an amazing organ, in the way it can regenerate. Copper can be removed in various ways. And as you said, whatever it turns out to be, you've been part of a very thorough medical investigation that frankly, is NEVER wasted. Marg [/QUOTE]
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