tired Cheryl
New Member
Just wanted to share a small but very mighty bit of good news:
this evening out of the blue, difficult child comes up to me gives me a hug and says, "I am so glad that you are my Mommy"
I am still blown away by that! and will keep it in my treasure box along with the time 9 months ago (he was barely three years old at the time) when I noticed that he had a fever right after we sat down to dinner with family at a restaurant. I left with him right away and driving home I hear this small voice say, "That was so sweet of you mommy to drive me home because I am sick." My heart just melted! He was not only articulate but empathetic to the fact that I was taking him home due to his illness.
I really needed that gem today because I spent many hours on the phone with the doctors, advocates, other parents, and the SD trying to figure out what will become of my son school-wise. The SD is saying that they need to see the Children's hospital neuropsychologist evaluation report before they decide if they will grant him and evaluation. They would not provide me with the form neurologist requested for OHI. The SD says that they decide if he is OHI after their evaluation. What he had previously was just a screening and they deemed him not in need of services due to him not lagging behind his peers academically. I feel like they are giving me the standard run-around only to deny us again.
Advocates and the psychologists tell me that this particular SD Special Education is notorious for being very difficult and to expect and grueling fight with them.
Other parents warn me to be careful what I am fighting for because many of the SD PPCD programs are not that great, do not have people that can help with his behavior issues, and my son may be in with other children that have very challenging physical needs.
So, here I sit with my recently expelled preschooler. I work part-time at a "real" job while I am building a new facility and opening a new business next month! In addition, I am still going to an internist and hematologist for my own health problems. There were just not enough hours in the day and now I have this very pressing and time consuming problem with finding him a school.
All of the decent preschools and most of the not so decent daycares are all full. Although, I know that these programs are not for my son and that he will most likely have problems and/or be expelled from them as well, I have placed our names on some waiting lists. We have been juggling schedules around the past week but cannot go on forever. Once my new business opens next month I can hire someone baby-sit him there (I think)but that will not be ideal and only a short-term solution. I can not leave him at home with someone. His behaviors and epilepsy will not allow it.
Wish that I had a tape recorder going when he said his sweet words tonight-they are so few and far between. Very precious indeed.
Good-night
Cheryl
this evening out of the blue, difficult child comes up to me gives me a hug and says, "I am so glad that you are my Mommy"
I am still blown away by that! and will keep it in my treasure box along with the time 9 months ago (he was barely three years old at the time) when I noticed that he had a fever right after we sat down to dinner with family at a restaurant. I left with him right away and driving home I hear this small voice say, "That was so sweet of you mommy to drive me home because I am sick." My heart just melted! He was not only articulate but empathetic to the fact that I was taking him home due to his illness.
I really needed that gem today because I spent many hours on the phone with the doctors, advocates, other parents, and the SD trying to figure out what will become of my son school-wise. The SD is saying that they need to see the Children's hospital neuropsychologist evaluation report before they decide if they will grant him and evaluation. They would not provide me with the form neurologist requested for OHI. The SD says that they decide if he is OHI after their evaluation. What he had previously was just a screening and they deemed him not in need of services due to him not lagging behind his peers academically. I feel like they are giving me the standard run-around only to deny us again.
Advocates and the psychologists tell me that this particular SD Special Education is notorious for being very difficult and to expect and grueling fight with them.
Other parents warn me to be careful what I am fighting for because many of the SD PPCD programs are not that great, do not have people that can help with his behavior issues, and my son may be in with other children that have very challenging physical needs.
So, here I sit with my recently expelled preschooler. I work part-time at a "real" job while I am building a new facility and opening a new business next month! In addition, I am still going to an internist and hematologist for my own health problems. There were just not enough hours in the day and now I have this very pressing and time consuming problem with finding him a school.
All of the decent preschools and most of the not so decent daycares are all full. Although, I know that these programs are not for my son and that he will most likely have problems and/or be expelled from them as well, I have placed our names on some waiting lists. We have been juggling schedules around the past week but cannot go on forever. Once my new business opens next month I can hire someone baby-sit him there (I think)but that will not be ideal and only a short-term solution. I can not leave him at home with someone. His behaviors and epilepsy will not allow it.
Wish that I had a tape recorder going when he said his sweet words tonight-they are so few and far between. Very precious indeed.
Good-night
Cheryl