Please say prayers (major prayers) for the toughest kidlet I've ever known :( :(

[busywend]

How heartbreaking this whole situation is. I can not imagine praying for a heart and that meaning another family is losing a child. They must be emotionally spent.

Sending MAJOR PRAYERS your way!

[Dammit Janet]

Any news?

[KTMom91]

Saying many prayers.

[judi]

Prayers!

Sounds like the little guy was born with a hypoplastic left heart and his second surgery would have been the Fontan where they would then hook up a left ventricular assist device. If this was a the case, the little guy wouldn't have a detectable pulse or BP because the ventricular assist device is essentually his heart.

[Hound dog]

Saying prayers for this lil fighter, his parents, and the rest of the family.

((hugs))

[Mattsmom277]

Not much new news. They were concerned about a small bleed in the brain and after a CT scan have ruled it out. That is a good thing!
Apparently he's hanging in there pretty tough. They are keeping him very sedated to prevent him pulling out tubes that must remain in place without disturbance. But they do let him be awake a bit, apparently he's listening to books on tapes a bit and tried talking although he can't because of the tube in his throat. They tried him off dialysis to see if he'd have any output but he did not. Apparently they are trying just one time to see if with a diuretic he can produce urine on his own, and if not then he will continue on dialysis.
This little guy desperatly needs a heart. Apparently the parents are bombarded with many specialists helping prepare them for a transplant and to educate them on what happens in caring for a child without a active immune system etc following transplant. I continue to pray and I thank you for yours. I'm sure this family will appreciate knowing that strangers even are routing for their warrior J.

[totoro]

I am sending all of my prayers to this little trooper
Let him make it through this