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Thread: Have our IEP results now what?

  1. #11
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    Re: Have our IEP results now what?

    retainer lenses for nearsightedness? wow, I have never heard of that before. I am really nearsighted, they just increase the strength of the lenses.... Not so big a deal... is she at risk of some serious issue? That is a lot of money. Very interesting. Just curious what it is.

    It certainly wont hurt to apply for ssi. there is a website for you to answer questions about it. If she meets the definition of disabled she should qualify and most people say that they are denied the first time. I know of people who were approved right away and we have a mom here who just found out her gfg was approved the first time too.

    Your daughter is not in quite as severe a situation as hers but she sounds to have more issues than one of the students I helped apply. (he was a gifted/talented aspie). You can also call your county to ask for a developmental disabilities case worker. They can help you apply for any financial assistance. Here many families get a "family grant" or other grants that are nto income dependent. they allow them to pay for things that insurance wont cover. If she is eligible for MA for disabled kids then you may get more coverage too. There are waiting lists for many programs but sign up for them all... time flies and the economy changes and what is a long list one year can be no list in five years. My son got on a waiver back when our state had extra funds they applied to MA and ALL people on ma at the time could just sign up and get the waiver. Thank heaven because it is a lifetime waiver as long as he qualifies (which will be life for him)...

    Keep digging... it is all worth it, but enjoy your time with her too. Take time to do little things. I actually am shy in new situations, but push myself to do things and it is easier for me when it is related to my son... going to sports or activities etc. I volunteer for committees so I can be where he is.
    me: 48, sngl adoptive mom, SLP, now SAHM
    son/gfg 15! , gottcha day 2y10mo, ASD, acquired brain injury (surgery at age 2), borderline cognitive, anxiety, adhd, temporal lobe seizures, attachment issues. Symptoms: severe anxeity, fight or flight, impulsive, verbal and physical aggression, LPD, social issues, obsessive/perseverative/compulsive/tics. Meds: Ritalin, Lyrica, Clonidine/Catapres, Benadryl, Lithium-not helping, going off now: Zyprexa...seems good so far

  2. #12
    Well her nearsightedness is very bad. Her (sperm donor a's I call him) is a level 8(?) with his nearsightedness and the dr suggested I buy them bc he couldn't say she would get worse and honestly after all we have went through the last thing she needs is to lose her sight. After what u said I'm kinda thinking I was dooped. (?) I don't have any visual problems so I'm poorly educated when it comes to that field.

    Im going to try to see what she does qualify for. Especially all that you suggested.

    I am very inverted in public. Online I can be me completely. Bek on the other hand...a social butterfly weird huh?

  3. #13
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    Re: Have our IEP results now what?

    OH I was certainly not suggesting anything! I just have never heard of it and I am curious... I love learning about new stuff. Heck, surely she doesn't need to loose her vision too! How does it work anyway?
    me: 48, sngl adoptive mom, SLP, now SAHM
    son/gfg 15! , gottcha day 2y10mo, ASD, acquired brain injury (surgery at age 2), borderline cognitive, anxiety, adhd, temporal lobe seizures, attachment issues. Symptoms: severe anxeity, fight or flight, impulsive, verbal and physical aggression, LPD, social issues, obsessive/perseverative/compulsive/tics. Meds: Ritalin, Lyrica, Clonidine/Catapres, Benadryl, Lithium-not helping, going off now: Zyprexa...seems good so far

  4. #14
    Oh I thought they ripped me off lol well they are called retainer lenses and like a retainer for orthodontic retainers you wear them at night and they are like contact lenses. What they do is they can't reverse eye problems but they can slow or stop her sight from getting worse. She wears them at night and the first pair is $1200 and the lenses here on out are $600. She wears glasses during the day tho.

    I'm glad you responded back to this bc I called the disabled advocate program here and she qualifies for a lot of programs I faxed them her paper work and tomorrow her case worker is going to call me and start the process. She said they have a camp during the summer that makes learning fun instead of feeling like it's a chore. I called a SSI lawyer also and he said she qualified to apply and I'm heading to his office now with her med records and IEP from wv and here. Thanks to u I got a lot accomplished today and for ONCE I feel like I'm helping her!! Yay!!!

  5. #15
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    Re: Have our IEP results now what?

    OH gosh I have tears in my eyes! I am soooo happy for you!
    me: 48, sngl adoptive mom, SLP, now SAHM
    son/gfg 15! , gottcha day 2y10mo, ASD, acquired brain injury (surgery at age 2), borderline cognitive, anxiety, adhd, temporal lobe seizures, attachment issues. Symptoms: severe anxeity, fight or flight, impulsive, verbal and physical aggression, LPD, social issues, obsessive/perseverative/compulsive/tics. Meds: Ritalin, Lyrica, Clonidine/Catapres, Benadryl, Lithium-not helping, going off now: Zyprexa...seems good so far

  6. #16
    Thank u so much. The Lord I really believe sent me to this site. I have felt so alone for so many months now and since talking to all of you I actually feel like I'm apart of a community. <3

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