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Thread: The SSI dilemma

  1. #11
    CD Hall of Fame OTE's Avatar
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    Re: The SSI dilemma

    Here's the answer to where he gets mental health, housing, etc services if he's off medicaid. They talk about a sliding scale but it's hard to imagine it could be much on a minimal income. Might be something like $5 per visit. These people would also help him get his meds.... either samples or with the pharma company programs. Still looking for reg med services.

    http://www.dshs.state.tx.us/mhservic...tServices.shtm

    This is the general concept re where he goes for regular medical care. You'd have to look at the income limit in the particular county. The 21% they suggest here is absurd, I suspect every county has a higher number. The point is to get the hospital/ clinic that would be in his area. They'll have some sort of indigent/ charity care program where there will be a sliding scale and they'll provide EVERY kind of care.

    http://www.dshs.state.tx.us/cihcp/eligibility.shtm

  2. #12

    Re: The SSI dilemma

    Fran - it might be time to look into setting up a special needs trust now. My understanding is that financial gifts count - income and assets are income and assets, no matter who from or how. However, the SNT has wording that specifies that funds in the trust may only be used after all state/federal funding has been exhausted. Much as I dislike having to use attorneys, this trust needs to be set up by an attorney who has a *lot* of experience w/ SNTs or else it's pointless. It is a way to make sure our kids w/ disabilities are not forced to do without just to maintain state/federal benefits.

    While we don't have an "estate" at this point (more like just a lot of debt, LOL), we do have life insurance and our wills do specify that for Boo, his fourth will be put in a SNT, with my bro (for now) the executor of the trust. Hopefully dh and I will live long enough and Diva and Wee will be responsible enough that we can make them executors. We're still on the fence about Ty, but suspect that he also will have to have an SNT.

    The trust can be set up at any time.

  3. #13
    CD Hall of Fame Fran's Avatar
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    Re: The SSI dilemma

    If I give him some of my used furniture does that work against him? Maybe he can pay me for it. [img]/ubbthreads/images/graemlins/rofl.gif[/img]
    Fran
    warrior mom
    member since Oct. 1998
    gfg 27yr old son. Leaving home Sept. 2010 for Texas. Will do training for a career and live on his own.
    Dx: AS,atypical mood disorder,Nonverbal learning disability, executive function difficulty, dyscalculia, dysgraphia and verbal processing difficulty.
    pc: 23. Good boy. Graduated from college and working full time. .

    2 canine companions who are sweeter than sugar- Mr. Darcy and Miss Elizabeth

  4. #14
    CD Hall of Fame Fran's Avatar
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    Re: The SSI dilemma

    Thanks to all of your suggestions and the information.

    OTE sent me this. Thanks. I feel better having this in black and white. Slsh, we are going to do a SNT but like the SSI, I keep hoping gfg won't need it. This will be for later in our life.


    Resources (things owned)

    For a person to get SSI, the resources, or things a person owns, must be worth no more than $2,000; a couple’s resources can be worth up to $3,000.

    The higher limit applies to a couple even if only one member can get SSI. The couple’s resources are counted as if both members were eligible.

    If an eligible couple separates, each person will be treated as an individual starting with the first month after they separate.

    If an unmarried child under age 18 is living at home and the parents’ resources exceed $3,000 ($2,000 if only one parent), the excess may be considered the child’s.

    Money, whether in cash or an account, is considered a resource in the month after it is received, in most cases. Sometimes money does not count as a resource for a limited period of time but then becomes a countable resource if it is not spent within the given time limit.

    In some cases, a person may receive money that does not count as income when received but does count as a resource after received. The next section gives some examples.
    What resources do not count?

    We do not count everything a person owns when we decide whether a person can get SSI. We do not count the following:

    * A home (and adjacent land) where a person lives;
    * Personal effects or household goods with a total value of $2,000 or less. If the total value is more than $2,000, the amount over $2,000 counts. The value is what an item can be sold for, less the amount of any legal debt against it;
    * One car, usually;
    * Life insurance policies with a total face value of $1,500 or less per person;
    * Burial plots or spaces for a person and immediate family;
    * Burial funds of up to $1,500 per person for a person and spouse if specifically set aside for burial. This amount will be reduced by the amount of any life insurance policy;
    * Property needed for a person’s self-support. This includes property used in a trade or business or by the individual as an employee, nonbusiness income-producing property and property used to produce essential goods and services (like rental property or land used to produce food for home consumption);
    * Things that a person who is blind or disabled needs for an approved “plan for achieving self-support;”
    * Disaster assistance and certain native corporation stocks held by natives of Alaska;
    * Any retroactive SSI payments or retroactive Social Security payments are not counted as resources for nine months after they are received. This gives time to make purchases or payments on debts that went unpaid while waiting for the back payments. Any retroactive payments left over after nine months will count as a resource;
    * Crime victims’ compensation payments for nine months after they are received;
    * Grants, scholarships, fellowships and gifts for tuition and fees paid for education expenses for nine months after the month they are received;
    * State and local government relocation assistance for nine months after it is received; and
    * Earned income tax credits for nine months following the month they are received.

    Other rules about resources

    A person who owns more than is allowed because of property that cannot be sold quickly may still be able to get SSI payments by signing an agreement to sell the excess resources.

    If a person gives away or sells a resource for less than it is worth, there may be a period of ineligibility for SSI. The gift or sale also may make him or her ineligible for Medicaid coverage of nursing home services.
    Fran
    warrior mom
    member since Oct. 1998
    gfg 27yr old son. Leaving home Sept. 2010 for Texas. Will do training for a career and live on his own.
    Dx: AS,atypical mood disorder,Nonverbal learning disability, executive function difficulty, dyscalculia, dysgraphia and verbal processing difficulty.
    pc: 23. Good boy. Graduated from college and working full time. .

    2 canine companions who are sweeter than sugar- Mr. Darcy and Miss Elizabeth

  5. #15
    Moderator DDD's Avatar
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    Re: The SSI dilemma

    The more dealings with "the system" one has...the less
    confident in our leadership one becomes! DDD
    DH & I have raised our 25 yr.old grandson. At 14 he turned to pot & booze to cope with problems. He's a GFG#1. In 2005 he fell off a balcony, had brain surgery and has TBI effects. His recovery is very stressful. Time will tell if he ends up GFG or PC. Our GFG#2 is 21 and now lives with his GFGmom. He's ADHD, AS, BP plus. DH and I have 6 children and 11 grands. Yikes!

  6. #16
    CD Hall of Fame OTE's Avatar
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    Re: The SSI dilemma

    I thought about the car. Also searched my memory for my discussions with examiners about the car. You can provide a car for him. He also can own one car himself. I know there's a limit on the value of the car for one program or another but I don't find anything in SSI rules that talk about value of the car. So as long as it's used by him for work or med appts it won't count against him... for SSI purposes anyway. If he's going to apply for something outside of SSI and SSI related medicaid you might have to check whether the car counts.

    This is a much more user friendly explanation of the basic SSI rules. It refers specifically to utilities and says that you can't pay them without it counting against your son.

    http://www.cssny.org/pbrc/consumerbenefits/ssiadult.pdf

    I've also now spent all kinds of time looking for charts of how much income/ gifts he can have and just realized that what I'm thinking of applies only to kids, not to over 18. I'm thinking of the deeming rules.. and I've only ever found charts for a couple of states but it doesn't apply here anyway! DUH!

  7. #17
    Just Plain Ole Tired Marcie Mac's Avatar
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    Re: The SSI dilemma

    Ahh Fran welcome to the World of Disability Money....Poor SO-one year his dad gave him a 10.00 check for his birthday, and the State found out about it and deducted it from his next check. He can't own anything really = his worldly goods never can exceed 2,000. He was a co signer in case of emergency for ME on my checking account - he never took any money out or put any money in, but he was denied because my money was in there and he had access to it - everything was ok again once he had his own checking account which the state checks on a regular basis. If there is one dime extra in there, they wanna know about it. If he lived here for free, he was going to be getting less money, so I turned from girlfriend to landlord in one fell swoop. I don't know how in the heck they expect people to live on like 650.00 a month, but they do. He can get food stamps though - but I had to sign more papers I wasn't feeding him. I do know that one of Dannys friends is on disability, and IS allowed to work but can't exceed some X amount - I have a feeling it is some kind of partial disability - I will ask him next time I see him but Ca. is such a weird state when it comes to benefits.

    SO gets a letter on a timely basis from disability wanting to know if he is able to work, and he has to go in and have their doctors check to make sure he is still disabled, has to bring his bank statements, etc. And they keep trying to push him into finding a job, which would last only as long as it took him to have an attack, then he would be out of work and we would have to do that whole song and dance over and over and over again. If he didn't need the Medi-cal so bad, I would give them the proverbial finger - but you cant get the medical unless you are disabled.

    The whole system irks me to no end. I think on the norm people would rather work than be disabled and have to barely survive. Didn't mean to turn this into a rant on your thread, but jeeze, it just should not be so difficult and confusing.

    Marcie
    Me - 62 -Depression, anxiety,degenerative disc disease, diverticilutis
    Syd SO 53 disabled
    Danny PC/GFG-29 Did Juvy,RTC,Boot Camp-ADHD/Bi-Polar. Emotional age finally catching up Has his own side computer business plus works full time and out on his own
    Jamie - 30 PC still sane after living with gfg
    Brandie GFG - 43 Drama Queen extradonaire. No contact with her or 3 gkids
    My other kids Tillie(Jack) Maggie (Boxer) & Little Bit, Charmin, Joey and Yodi (the birds)
    Member since 10/99

  8. #18
    PE Moderator Dammit Janet's Avatar
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    Re: The SSI dilemma

    It is confusing, stupid, irritating, slow and intended to make you not be on the darn programs. Im still in the applying and being denied stages and I am "borrowing" every month from SO and my boys to keep food in my belly and meds in me. Its a ridiculous situation they put us in to try and get the help we paid for while working.
    Janet, 1/17/62,BP, BPD, Arthritis,degenerative disc disease, PTSD, Fibro, taking a pharmacy it seems
    Tony,9/24/62, Partner since 1983
    Oldest Son (Billy) 4/30/81 M Aspie but not dxd.
    Middle Son (Jamie) 7/11/84. ADHD Success Story, works with the sheriffs dept now
    Youngest son (Cory) 7/24/86, TDD/ADHD. My GFG, working as a cell phone tower climber.

    4 Grandchildren Keyana born 6/6/06, Hailie born 7/15/07, Mikey born 9/29/09 and McKenzie born 9/28/11.

    Two Furkids Buddy a Havanese and Abby a mixed American Bull/Pit bull. Both are a bit GFG.

  9. #19
    Moderator SRL's Avatar
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    Re: The SSI dilemma

    Oh Fran! How in the world do kids without a mom like you (who is literate, intelligent, and who cares) make it through this? [img]/ubbthreads/images/graemlins/confused.gif[/img]

    I have a friend who is currently checking out disability that is set up through her employer due to a chronic illness. The more I hear the more disgusted I become because clearly it doesn't "encourage" anyone who is able to get back to work--I suspect what it does is encourage them to CHEAT! They don't have the restrictions on what you can own but the one restriction they do have is that while you can work a small specific amount to supplement that income it cannot be anything related to your field. She's a teacher and cannot handle a classroom full of junior high kids but she'd make a darn good math tutor but noooo....so instead of being able to do a variation on what she's good at and pays well and could make up that amount doing something she is skilled at her option is to take something that would take more hours to accumulate the same amount of money and that she's totally overqualified for and makes her feel useless. It's a thoroughly impossible situation...
    Me: A former teacher who once had life under control. Now an at-home mom who can't even control the Legos on the living room floor.
    Moderator on Early Childhood

  10. #20
    CD Hall of Fame TYLERFAN's Avatar
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    Re: The SSI dilemma

    Hi Fran:

    I think any help you or anyone gives GFG is considered "income". It's a catch-22. Where is GFG living while trying to get SSI? We had the same problem with DSS when my ex was out on comp. Because my parents were helping they considered that income. Without their help we would have been evicted. It seems you can't win. My mom put money in an account under her name and gave me the debit card to use. Unfortunatly you can't tell them you are helping, even with 1 dollar.....sigh. but that doesn't mean you can't help. The system is backwards and totally unrealistic.
    I wish you luck with this one. Have you gotten any legal advice? I know sometimes a P-Doc or Attny can help expedite the process.
    Best wishes for all concerned.

    Blessings,
    Melissa
    [img]/ubbthreads/images/graemlins/angel.gif[/img]
    Me= Teacher Assistant
    DH: Saint
    GFG=(F)26 DYSLEXIC, ADHD,BP, time on streets,Addict, Storyteller, Exotic Dancer.
    PC:GFG's son...I have sole custody for now.
    Dog: Ebbie the wonder dog



    We Plan, God Laughs.....Author Unknown

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