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The study results are in: Outcomes of Adults with Childhood EBD

This is a discussion on The study results are in: Outcomes of Adults with Childhood EBD within the Parent Emeritus Archives forum, part of the Best of the Parenting Support Forum; Hi everyone, Sorry I am so late to respond... I am glad you found the result interesting...Thank you for your ...

  1. #31
    Moderator Martie's Avatar
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    Default Re: The study results are in: Outcomes of Adults with Childhood EBD

    Hi everyone,

    Sorry I am so late to respond...

    I am glad you found the result interesting...Thank you for your comments. No one mentioned the EXPULSION RATE. How do our kids get expelled from GRADE SCHOOL (11&#37 ---High school I know how it happens but the rate (20%) is unacceptably high.

    The decision to let each of you decide what "success" means probably caused some "noise" in the data that limited the statistical results. However, I still agree with my own decision in that if I had used "general" success criteria, the only successful adults would have been the 19 who we believe ARE successful in the typical sense based on other answers. THAT would have limited the findings even more ( (a 19 to 82 ratio of success to nonsuccess.) I hope to get this published as an article in a scholarly journal, but I always put things here first, and yes, I am preaching to the choir for sure. This was delivered as a paper at NASP in New Orleans on February 7, 2008.

    Thanks to all of you who participated.

    Martie
    Moderator SpEd101, registered 6-99,
    Mother of an ex-gfg, now 22, who brought me here. He is a greatly improved graduate of an EGBS; musically very gifted; public school through 8th grade and then a private conservatory high school. He graduated from The Juilliard School in NYC in '09; is a master's student at Yale; and is the organ scholar at an Episcopal church in CT.
    ex-pc, female, 24, Wellesley College '07. Majored in English, is currently unemployed and living with her father and Robbie the Rescue dog.

  2. #32
    IsItFridayYet? Shari's Avatar
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    Default Re: The study results are in: Outcomes of Adults with Childhood EBD

    This is great info, Martie. Thank you for compiling it.

    Does anyone have a good place to find other statistical data on EBD adult outcomes?

    I know we're fighting an uphill battle, but all wee gfg's docs avoid that question like the plague. I want to know what I'm fighting.
    Me:30's
    DH:40's
    PC1:adult M
    GFG1:adult M, ADHD/ODD, BP?, NPD?
    Cultured GFG (formerly PC2):teen F, ADD, some processing delays
    Wee GFG:7 M, HYPER; SID, Disorders-Motor Coordination, Attachment, Impulse Control, & Seizure; Docs don't agree on other dx'es; MD's say severe ADHD; Psych says PDD & BP;
    Meds-Risperdal, Depakote
    I say anxiety is the cause for a lot of the hyper, but what do I know...I'm just the mom

  3. #33
    CD Hall of Fame KTMom91's Avatar
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    Default Re: The study results are in: Outcomes of Adults with Childhood EBD

    I found this most interesting...thank you for all your hard work. Since Miss KT is almost 17, it gives me things to think about regarding her future.
    Cast of Characters:

    Me (Mary) - 47, stressed, overweight, Effexor XR, Metformin, and now...Ambien!

    DH - 49, ADD, Ritalin, married 10 years

    GFG (Miss KT) - 18, ADHD/ODD, Ritalin & Risperdal, in college

    Son #1 - 28, electrician, doing well

    Son #2 - 27, computer guru, married to K, baby girl Maddie

    Buddy - my Jack Russell

    Four senior cats and three naughty toy panthers



    "We cannot change the cards we are dealt, just how we play the hand." Randy Pausch, The Last Lecture

  4. #34
    Moderator Martie's Avatar
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    Default Re: The study results are in: Outcomes of Adults with Childhood EBD

    Shari,

    There ARE no other adult outcome studies for EBD that ask the types of questions we did ( which is why we asked.) Most other studies will give graduation rates and later employment rates, sometimes incarceration rates, but we were looking for REASONS in differences in outcomes, which range from very good (one adult with a graduate degree (who is 29 BTW) and several college graduates.) These are among those who we believe would be indistinguishable from the "typical" same aged person. We also counted full time employment as a very good outcome when combined with financial independence. College isn't for everyone.

    What is clear, however, is that despite the huge efforts and supports supplied by families, some adults are very unsuccessful. It is very sad, but if you follow the PE board, you know it is true.

    No retrospective study can establish causality, but we were trying to get at "what made the difference in outcome, after we established that there was a difference.

    In my research fantasy life, I would like to ask the same questions in 5 years of these parents because a number of the EBD adults in this sample are a bit too young to consider the outcome as in any way finished. That will not be possible, however, because we do not know who the respondents are and have no way to contact each person individually.

    Thanks for the question,

    Martie
    Moderator SpEd101, registered 6-99,
    Mother of an ex-gfg, now 22, who brought me here. He is a greatly improved graduate of an EGBS; musically very gifted; public school through 8th grade and then a private conservatory high school. He graduated from The Juilliard School in NYC in '09; is a master's student at Yale; and is the organ scholar at an Episcopal church in CT.
    ex-pc, female, 24, Wellesley College '07. Majored in English, is currently unemployed and living with her father and Robbie the Rescue dog.

  5. #35
    PE Moderator Dammit Janet's Avatar
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    Default Re: The study results are in: Outcomes of Adults with Childhood EBD

    Martie...excellent article. I hope this can help change the status quo. I am going to send this to someone who is running for our state legislature because he used to be the head of exceptional children for our school district when my kids were still there. I know the man personally and I want to know his thoughts on this and what he intends to do to make changes for our kids in this state.

    As a parent who has had both good and bad "outcomes", I really can see both sides. It is sad that we need a study to show that kicking kids out of school leads to a bad outcome.
    Janet, 48,BP, BPD, Arthritis, Anxiety, Fibro,Post Meningitis syndrome, lamictal, topamax, & xanaxER, Ambien
    Tony,47, SO of 27 years
    Billy 29 Aspie-lite Computer geek,works at Radio Shack
    Jamie 26. ADHD Success Story,US Marine Corps 2/03 - 2/07 as a MP. Animal Control Officer-Now.
    Billie Jean 29 Jamies wife
    • Hailie born 7/15/07
    • Michael born 9/29/09
    Cory 24, Bipolar, Personality Disorder NOS-Back home Ugh!! Doing well - Pizza Inn
    • Keyana born 6/6/06

  6. #36
    IsItFridayYet? Shari's Avatar
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    Default Re: The study results are in: Outcomes of Adults with Childhood EBD

    Thanks, Martie. I know I've looked for studies that even just show graduation and employment rates and find very little. The docs won't answer such questions - I always figured it was due to poor prognosis.

    My gfg is one of the respondents who was too young to really tell. He's doing ok right now, but living in the barracks on base, eating every meal there, limited freedom to leave, etc, is a far cry from existing in the real world. Time will tell how the rest of the story plays out. He does, however, tell me that if I'd have left him to his bio parents way back when that he has no doubt he'd already have a rap sheet a mile long. If you do another study in 5 years, I'll answer again.

    Thanks so much for this.
    Me:30's
    DH:40's
    PC1:adult M
    GFG1:adult M, ADHD/ODD, BP?, NPD?
    Cultured GFG (formerly PC2):teen F, ADD, some processing delays
    Wee GFG:7 M, HYPER; SID, Disorders-Motor Coordination, Attachment, Impulse Control, & Seizure; Docs don't agree on other dx'es; MD's say severe ADHD; Psych says PDD & BP;
    Meds-Risperdal, Depakote
    I say anxiety is the cause for a lot of the hyper, but what do I know...I'm just the mom

  7. #37
    CD Hall of Fame TerryJ2's Avatar
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    Default Re: The study results are in: Outcomes of Adults with Childhood EBD

    Wow! Great job. Very interesting. Thank you and congratulations.
    Terry
    53 artist, writer; dh 53 chiro, PC bio dau 19, son gfg 13 open adop at birth, "Aspie lite" (11/08); phosp 1 wk Aug/Sept 08, dx mood disorder NOS, ODD, ADHD. 72 mg Concerta, Imiprimine, occasional clonidine, Neg. in 06 speech cogn; dev delays but catching up; held back 1 yr in school; glaucoma, eyedrops nightly; wheat/gluten allergy; trying to maintain gluten-free-, milk-free diet.
    A man who carries a cat by the tail learns something he can learn in no other way. --Mark Twain

  8. #38
    CD Hall of Fame dreamer's Avatar
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    Default Re: The study results are in: Outcomes of Adults with Childhood EBD

    Martie, Thank you for doing this and also for shareing it here.- for letting us participate if we wanted and for allowing us to view results.
    I know my daughter has been part of MANY MANY research studies, surveys and also clinical trials etc over the years. We have also been involved in many pilot programs and such. I used to be quite active as an advocate and lobbyist and how I have always always hoped that even if something did not help our daughter and or us at the time, maybe MAYBE we could still help in working towards makeing things better for those coming up behind us in this journey.
    Thank you very much for your hard work! I am hopeful it will bring some help and open others eyes to the difficulties and problems at hand. We were honored to particpate!
    Me-50 rheumatic illness & Lupus.
    DH-59 catatonic fugues from combat PTSD, Agent Orange cancers, emphysema, COPD, spinal stenosis, early onset ALzheimers, heart attk 8/09
    Buffy-21Bp-extreme panic attacks. Dr removed all meds 10-04 Homeschooled.
    Dawn-19 in college, had a baby boy 2-09
    Lil Dude-14 mild cp, heterotopia, atypical seizures, 10-05 eye injury/major eyeball rebuilding (2x) now blind in that eye. 2nd surgical repair 3/06- repair failed-homeschooled as of 11-06Civ. Air Patrol

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