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Thread: Just can't get excited

  1. #1
    Moderator JJJ's Avatar
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    Angry Just can't get excited

    Kanga has been less than appropriate at our recent family visits (when the younger kids come). Two visits ago she screamed and yelled and refused to visit with them. We ended up getting the crisis counselor and Kanga and I met with her for over an hour and finally got Kanga to spend 10 minutes with her siblings.

    The next visit was better but when Eeyore got agitated because he was scared (of her). She decided visits were stupid.

    She tells her tdoc that the visits don't go well cause she doesn't know who the kids are anymore cause they have changed a lot since she last lived with them almost 2 years ago. (Fair point). So, we are doing tdoc-supervised phone calls with the sibs 1:1.

    Of course, with tdoc prepping her with a list of questions to ask the sibs (how was school? etc) and cue-ing her throughout, it has been fine.

    The thing that gets me is after each one Kanga declares "I am proud of me for talking nice to them." Tone of voice like it is a big freaking deal that she can have a 5-10 minute supervised conversation without being inappropriate.

    I'm sorry. I know that we need to take baby steps. Especially because funding is always tenuous due to quarterly renewals. But, seriously, I'm suppose to do backflips because my 15-year old can do this???

    I really, really want to reply..."Kanga, this is a preschool skill. There is no room for pride in mastering this. This is so basic, it is pathetic that it takes TWO adults to make it happen for you."
    JJJ

    Kanga DD#1 GFG Schitzoaffective; out of our home since 2008 Thank God!

    Eeyore DS#1 age 16 PCish, PDD-Aspergers; Vyvanse 70mg, Trileptal 600mg, Celexa 40mg

    Piglet DD#2 age 14, PC ADD; Adderal 20mg, Ritalin 20mg PRN

    Tigger DS#2 age 12, strong-willed indigo child; Autism & Epilepsy; Clonodine .2mg, Lamictal 300mg, Ativan 1mg

    http://www.conductdisorders.com/foru...evaluation-10/

  2. #2
    CD Hall of Fame ML's Avatar
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    Re: Just can't get excited

    I am sending you great big hugs and prayers for greater strides in her progress. Hugs, ML
    Manster - 12 AS/ADHD/Anxiety/TS/Allergies
    Me - always looking for the balance
    DH - AA/Anxiety&Depression/COPD

  3. #3
    lolcat Big Bad Kitty's Avatar
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    Re: Just can't get excited

    Been thinking about you and Kanga. I see so many of the same traits in Tink. It is just so, so hard. Many hugs to you.
    Big Bad Kitty - Yup, that's me
    Snake, Beefcake, Kidd - my stepsons
    Copper - grown daughter, PC, out on her own
    Tink - 10YO GFG, dx BP, SID. My tomboy princess.
    GingerAle
    I<3TK


    Build a man a fire and he will be warm for a day.
    Set a man on fire and he will be warm for the rest of his life.








  4. #4
    Queen of Hearts timer lady's Avatar
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    Re: Just can't get excited

    Honey, I'm so with you on this. You have got to be so tired of guiding the almost adult/child thru the most simple of tasks.

    I begin to lose my excitement over things kt &/or wm achieve or do b/c many times it's a life skill or expected in the community as a whole. No longer have the cheer leader uniform on & jump for joy b/c wm washed his hands.

    I still consider this to be a good step; the more Kanga practices the more (supposedly) it should become ingrained.

    Just curious, do you ever see Kanga ever being able to live unsupervised in the community?
    Linda
    54, Artist, pianist, acquired brain injury 2007 ~ long road back
    DH, 51: 20 years - passed away 1/09/09

    The Tweedles - Twins adopted in June 2001 ~ Survivors
    17 y/o GFG son aka wm: RAD, Complex PTSD & bipolar. Long term group home.
    17 y/o GFG daughter aka kt: RAD, Complex PTSD with dissociative states, & Bipolar.
    Lenny - my service dog


    Our sorrows and wounds are healed only when we touch them with compassion.
    -- Buddha

  5. #5
    Moderator DDD's Avatar
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    Re: Just can't get excited

    I think certain GFGs (including one I raised) get praised and rewarded for remediation so often that they "see" praise and rewards as the end goal....not the learning of skills. Kanga evidently is parroting what she has heard from the adults using positive behavior modification methods.

    Sadly it reminds me of an often repeated old family story about my eldest sister. She came home from her a birthday party and when asked "Well how was x's party?" Tish replied "I looked so pretty in my little blue dress."

    The story was repeated with a smile for decades because it was so cute.Tish, of course, was three years old. Even though I have never raised a child with complex issues like Kanga..I do understand what you are saying sometimes it is just tooo much. Hugs. DDD
    DH & I have raised our 24 yr.old grandson. At 14 he turned to pot & booze to cope with problems. He's a GFG#1. In 2005 he fell off a balcony, had brain surgery and has TBI effects. His recovery is very stressful. Time will tell if he ends up GFG or PC. Our GFG#2 is 20 and living with his GFGmom again. He is AS and S/A and not up to independent living. We have 6 adult kids & 11 grands. Yikes.

  6. #6
    Moderator JJJ's Avatar
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    Re: Just can't get excited

    Quote Originally Posted by timer lady View Post

    Just curious, do you ever see Kanga ever being able to live unsupervised in the community?
    Short answer: No.

    Long answer: Today I met with the school and had a long conversation with the RTC case manager. The school is going to target her goals more toward functional vocational skills. What surprise me was for THE FIRST TIME EVER we had teachers state that her "emotional disabilities" have a negative impact on her education. In the past she was always perfect at school and they never wanted to admit that she had issues.

    The RTC case manager said the Kanga still needs an extensive amount of time there and that she is scared for us if Kanga is still like this at 17! She said that Kanga gets enraged when ever we have a rule (the current rule is that we will not change her goal to "discharge to apartment with 13 year old boyfriend").

    She did say that she saw no reason that our funding would be lost prior to Kanga turning 18!!!! Let's hope she is right
    JJJ

    Kanga DD#1 GFG Schitzoaffective; out of our home since 2008 Thank God!

    Eeyore DS#1 age 16 PCish, PDD-Aspergers; Vyvanse 70mg, Trileptal 600mg, Celexa 40mg

    Piglet DD#2 age 14, PC ADD; Adderal 20mg, Ritalin 20mg PRN

    Tigger DS#2 age 12, strong-willed indigo child; Autism & Epilepsy; Clonodine .2mg, Lamictal 300mg, Ativan 1mg

    http://www.conductdisorders.com/foru...evaluation-10/

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