First I will begin with a smile as my son is a gift from god. I love him dearly. I had him then had his sister 13 months apart. She is fine. He is not so fine. Im here for advise and maybe a friendship or two with others dealing with the same stuff.
The deal is I have no clue as to what Im dealing with.
He has had sleeping issues his whole life it was like he never got out of the newborn wake up stage until i kept taking him back and forth to dr after doctor. Finally I had to scream malpractice at a ears nose and throat dr. that refused to look at him. He said Oh hes fine. When i said that he did do a x-ray and we didnt even leave the hospital, he was rushed to surgery to remove tonsils that were preventing proper air flow when he laid down. However it took 2 years to do that. His oxygen levels were around 80 percent. He didnt talk until he was 3 yrs old and was in first steps. In my county however , besides first steps , everything else is a "HOT MESS" trying to get any help.
He has speech problems and ADHD. The ADHD is very noticable. He squirms and cant sit still. He does talk and play with other kids and looks people in the eye and shows affection.
However, He does not sleep well he wakes several times during the night and is the last to fall asleep and the first to wake up. He is on Clodine a blood presure medication to help him sleep i guess it works for like 4 hours.
He is on Ritlan which helps some with the other issues Im dealing with.
Main concerns : he is like a light switch one minute hes all about helping me do things and is real quiet and good. The next hes smearing grape jelly in the carpet or dumping eggs on the floor, climbing up the cabinets , rading the fridge not for food to eat but rather to play with. He doesnt really play with toys rather breaks them , I finally had to face the fact that no matter how much dicipline i give this is not changing he will be diciplined then go right back and do it again with in five or so minutes and then try to hide it . Last insedint was right before easter, I had a headache and my fiance , who isnt biologicaly related watched him as i took some Migraine medications and went down to sleep i figured he would at least lay down for awhile it was 10 pm 3 hours after bed time we do have a routine. My son kept getting up being put back into bed , several times till he asked to use the rest room where I found him playing in the toilet with his own poop. I cleaned him up it was 2 am at this time and asked why he did that , that i was yucky and had germs and would make him ill . He just crys when i ask why he does bad things , he will randsack my home in the middle of the night getting into everything pouring things out and all over.
My x hubby and boyfriend are both against medications so I tried to take him off but it only makes everything worse. I have an aniexty problem , that now is getting worse as my boyfriend just walked out and moved because he said my son isnt making progress and he cant deal with all the problems he has and my sons too, he is a professional and feels he may be imbarrassed at a dinner or something, also it was stressing him out to much as well , because he felt he didnt know how to help.
My ex dropped the children from his insurance so we had to go thru medicade which only has on facility in indiana i can take my son to and every time i get the appointment. set for one reason or another they cancel his medicade? that is a whole other issue all together.
The school doesnt seem to care they just said they will help with the speech thats great but i feel im dealing with something much bigger that is getting bigger by the moment. Has anyone dealt with this ? any ideas as to what doctor to take him to ? I dont want a mis diagnosis but I really want him to be ready for school and not to tear up everything in the house the house included its alittle much on me getting up to clean a 3 hour mess up each day that it took him 10 mins to make or whatever. My daughter sometimes will help him make a mess but she the doctor said is only following big bro and her speech is fine.
Im wondering if the low oxygen level due to his tonsils have something to do with what im dealing with now or is it something else.
Im running out of ideas.
