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<blockquote data-quote="dreamer" data-source="post: 12959" data-attributes="member: 1697"><p>Marg, I know what you mean. And yes, I understand. SOme of us might go off in search of a doctor who will validate us no matter what we are thinking or whatever.....</p><p></p><p>Yes, timerlady, the advice CAN be good....it is true. ALtho there is the flip side, which is the side some of us were also pointing out. </p><p></p><p>Funny, I got accused of Munchausens even when I was not doctor hopping. ANd yeah, me and husband both were ordered in for our own evaluations BEFORE anyone would even SEE my kid. It really is sad. </p><p>ANd then my son, frombirth there were concerns due to medications I took while pregnant and complications I had during the preg and then him being born 2 months early and having a prolonged labor, but- those concerns were dismissed time and time again by the pediatrician, the psychiatrist, the agency where we recieved our health care. ANd sadly, not exactly typical "behavior symptoms"-----but rather, inability to toilet train, inability to ride a bike, inability to control a playball, inability to focus eyes, his pediatrician dismissed as mom seeking perfection in her only male child and last child. Dismissed by psychiatrists, tdocs and all in home agencies - sometimes psychiatrist accusing me of not working with him to teach him, but then later after the in home workers also could not teach him, then, the blame fell on my son haveing an behavior disorder- that if he WANTED to toilet train he WOULD etc. Had I NOT doctor hopped and jumped authority-----he would not have had the MRI that found his brain issues at all, and they would prolly STILL be shoving stims in his face..even tho they made his seizures that they also misdiagnosed worse and made him quite ill. </p><p></p><p>BUT becuz the psychiatrist here local treated us SO shabby and called CPS when we changed docs, it was scary and difficult to move forward and get the proper diagnosis and treatment and care. </p><p></p><p>It is very important to keep an open mind, educate yourself and follow your gut and your heart. It is not always the patients fault when things do not go well. But I also admit, it is also not always the professionals fault, either. </p><p></p><p>Over the many years I have had to face up to facts that my husband is going to continually mentally worsen. That is what happens with his diagnosis. medications are not magically going to make it "all better" Behavior mod took us so far but could not make it ALL go away......As time goes on my husband will continue to become more and more my most difficult difficult child. </p><p>I was frantic my oldest would not be able to function. SHe is not marching to the same beat as the majority of the world. Sadly medications made her march even more strangely. We are not even going to go there- suffice it to say about the ONLY medication NOT trialed was prolly Focalin and Risperdal. 15 years of medication trials and not one single week of anything even closely resembling stability. In the end, she has done better than any other time on no medications at all. I read here daily how Bipolars MUST be medicated. Well, I have not been medicated in 11 years at my docs choice and my oldest has been medication free approx 2 years. There is little doubt in my mind both her and I ARE bipolar.....but there is little doubt in the minds of the professionals caring for her and I and the people around us that we are doing better this way. No- I amnot advocating others do this-----I AM saying....flexibility. Keep an open mind. Follow YOUR gut and YOUR heart. </p><p>Yes her and I do cycle....BUT surprising, I can look around and see so many many other people all over the place EVERYWHERE........who could easily be "sicker" than her or I who DO find a way to live life. </p><p></p><p>Do not run from a doctor just cuz you do not like the diagnosis......but do not stay just cuz ge they are the doctor, they must know.....</p></blockquote><p></p>
[QUOTE="dreamer, post: 12959, member: 1697"] Marg, I know what you mean. And yes, I understand. SOme of us might go off in search of a doctor who will validate us no matter what we are thinking or whatever..... Yes, timerlady, the advice CAN be good....it is true. ALtho there is the flip side, which is the side some of us were also pointing out. Funny, I got accused of Munchausens even when I was not doctor hopping. ANd yeah, me and husband both were ordered in for our own evaluations BEFORE anyone would even SEE my kid. It really is sad. ANd then my son, frombirth there were concerns due to medications I took while pregnant and complications I had during the preg and then him being born 2 months early and having a prolonged labor, but- those concerns were dismissed time and time again by the pediatrician, the psychiatrist, the agency where we recieved our health care. ANd sadly, not exactly typical "behavior symptoms"-----but rather, inability to toilet train, inability to ride a bike, inability to control a playball, inability to focus eyes, his pediatrician dismissed as mom seeking perfection in her only male child and last child. Dismissed by psychiatrists, tdocs and all in home agencies - sometimes psychiatrist accusing me of not working with him to teach him, but then later after the in home workers also could not teach him, then, the blame fell on my son haveing an behavior disorder- that if he WANTED to toilet train he WOULD etc. Had I NOT doctor hopped and jumped authority-----he would not have had the MRI that found his brain issues at all, and they would prolly STILL be shoving stims in his face..even tho they made his seizures that they also misdiagnosed worse and made him quite ill. BUT becuz the psychiatrist here local treated us SO shabby and called CPS when we changed docs, it was scary and difficult to move forward and get the proper diagnosis and treatment and care. It is very important to keep an open mind, educate yourself and follow your gut and your heart. It is not always the patients fault when things do not go well. But I also admit, it is also not always the professionals fault, either. Over the many years I have had to face up to facts that my husband is going to continually mentally worsen. That is what happens with his diagnosis. medications are not magically going to make it "all better" Behavior mod took us so far but could not make it ALL go away......As time goes on my husband will continue to become more and more my most difficult difficult child. I was frantic my oldest would not be able to function. SHe is not marching to the same beat as the majority of the world. Sadly medications made her march even more strangely. We are not even going to go there- suffice it to say about the ONLY medication NOT trialed was prolly Focalin and Risperdal. 15 years of medication trials and not one single week of anything even closely resembling stability. In the end, she has done better than any other time on no medications at all. I read here daily how Bipolars MUST be medicated. Well, I have not been medicated in 11 years at my docs choice and my oldest has been medication free approx 2 years. There is little doubt in my mind both her and I ARE bipolar.....but there is little doubt in the minds of the professionals caring for her and I and the people around us that we are doing better this way. No- I amnot advocating others do this-----I AM saying....flexibility. Keep an open mind. Follow YOUR gut and YOUR heart. Yes her and I do cycle....BUT surprising, I can look around and see so many many other people all over the place EVERYWHERE........who could easily be "sicker" than her or I who DO find a way to live life. Do not run from a doctor just cuz you do not like the diagnosis......but do not stay just cuz ge they are the doctor, they must know..... [/QUOTE]
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