F
flutterbee
Guest
I saw a new doctor on Thursday. She ordered a lot of bloodwork, but said if it all comes back normal then I have a diagnosis of Chronic Fatigue Syndrome. As I explained all of my symptoms to the doctor, we determined it started last year. During the last few weeks I've cycled back into the "always wanting to sleep" phase. No energy. Have to rest after climbing the stairs. Have to put my car in park at a stoplight cause I can't hold the brake. Feeling very spacy. I think I liked the insomnia better. Not only that, but people don't understand CFS. It's not like a broken arm where you can see the problem. It just one more thing for people to tell me I'm doing wrong (you know - the same way we're told how we're not parenting right, thus why we have a difficult child). For any of you that are interested, this is CFS:
CFS Symptoms
I have all of the primary symptoms and almost all of the common symptoms.
Anyway, this is why I've been MIA. I have an IEP meeting Thursday to write the IEP. Talked to the intervention specialist for about an hour on the phone last week. She has a lot of really good ideas. difficult child had some major meltdowns last week. One night in particular I was actually surprised when the police didn't show up at my house cause she was screaming so loud. So far so good this week, but school has been closed because of the cold so that always helps. easy child has been horribly bossy lately, telling me how to parent, etc. One Sunday when I couldn't get up, he came in my room (at 8 am) and was telling me how irresponsible, selfish and lazy I was. I told him if he was going to continue to beat me up then he was going to have to wait til I got up. So after I got up I went in his room and asked him if he would like to continue to beat me up. The kid couldn't backpeddle fast enough. He's mellowed significantly since then. I've also seen the doctor since then and we went to that site above together. That helps. I'm not excusing his behavior, but with so much chaos in the house I know he feels out of control and helpless and he worries about everything.
I do have to say, though, that I am relieved it's CFS and not depression returning. I don't normally share this, but I have battled depression most of my life and 4 years ago was hospitalized with severe depression (psychiatrist at hospital said I was bordering on a psychotic depression). I have overcome it and actually look at it as a blessing cause after having been through such a severe episode I seemed to have overcome it. I take lexapro, but am very gun shy about it returning. It was so oppressive and took a long time to go away and even longer to rebuild my confidence. I didn't feel like it was depression, but was starting to worry/panic because I couldn't figure out what else it could be. So, in that respect I am relieved.
I'll be around when I can. Please know I've kept all of you in my thoughts.
CFS Symptoms
I have all of the primary symptoms and almost all of the common symptoms.
Anyway, this is why I've been MIA. I have an IEP meeting Thursday to write the IEP. Talked to the intervention specialist for about an hour on the phone last week. She has a lot of really good ideas. difficult child had some major meltdowns last week. One night in particular I was actually surprised when the police didn't show up at my house cause she was screaming so loud. So far so good this week, but school has been closed because of the cold so that always helps. easy child has been horribly bossy lately, telling me how to parent, etc. One Sunday when I couldn't get up, he came in my room (at 8 am) and was telling me how irresponsible, selfish and lazy I was. I told him if he was going to continue to beat me up then he was going to have to wait til I got up. So after I got up I went in his room and asked him if he would like to continue to beat me up. The kid couldn't backpeddle fast enough. He's mellowed significantly since then. I've also seen the doctor since then and we went to that site above together. That helps. I'm not excusing his behavior, but with so much chaos in the house I know he feels out of control and helpless and he worries about everything.
I do have to say, though, that I am relieved it's CFS and not depression returning. I don't normally share this, but I have battled depression most of my life and 4 years ago was hospitalized with severe depression (psychiatrist at hospital said I was bordering on a psychotic depression). I have overcome it and actually look at it as a blessing cause after having been through such a severe episode I seemed to have overcome it. I take lexapro, but am very gun shy about it returning. It was so oppressive and took a long time to go away and even longer to rebuild my confidence. I didn't feel like it was depression, but was starting to worry/panic because I couldn't figure out what else it could be. So, in that respect I am relieved.
I'll be around when I can. Please know I've kept all of you in my thoughts.