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Chronic Fatigue Syndrome
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<blockquote data-quote="Marguerite" data-source="post: 15681" data-attributes="member: 1991"><p>Hi, I can sympathise. CFS is difficult to adapt to and it's even harder for family members to accept. Kids who remember a parent pre-CFS are often very resentful of the changes it imposes and will give you a hard time over it. Other kids adapt.</p><p></p><p>Depression occurs in about 25% of the population. CFS is more like 1 in 2500. But you CAN get depression with CFS - about 25% of patients with CFS will also have clinical depression! (hey, it makes sense - and it was an Aussie researcher, Professor Ian Hickie, who found this out after laborious statistical analysis). Most, if not all, the other CFS patients will get reactive depression at some stage of the illness - ie they will get totally cheese off and depressed because they're chronically ill and they hate it.</p><p></p><p>The best advice I can give you - do the best you can with what you've got and don't let the guilts get you down. Rest when you need to, especially rest your body (but don't overdo the rest - keep as active as you can). If you have an important task coming up - rest beforehand, so you have both the mental and physical energy to cope. Being physically tired will also bring on the brain fog.</p><p></p><p>Some days a walk to the front gate will be exhausting. Other days you could walk for miles. So you do what you can and balance it out. Let go some things, work out what is most important and deal with that. Tick off your achievements as you go and give yourself credit.</p><p></p><p>Live as healthy a lifestyle as you can, treat your symptoms and be gentle with yourself. Keep stress to a minimum (ha!) or at least try to. Exercise as much as you can without burning yourself out. If that exercise is walking ten steps, so be it. if it's swimming ten laps, great. Just do it regularly to keep as fit as you can. If you have a day when you can't do it - don't worry.</p><p></p><p>Some things will make you worse - it could be viruses running around the family, or it could be chemicals you're around. It varies. Not a lot you can do except avoid exposure and live with the inevitable consequences. They will pass.</p><p></p><p>Just do what you can. And talk to people.</p><p></p><p>And finally, a joke for you, written by a friend of mine with CFS - "What do you call someone with CFS who sleeps for 20 hours a day?</p><p>A: An insomniac."</p><p></p><p>Something else this friend did once - he was trying to change the TV station but the remote wouldn't work - until he looked again and realised he was using a pocket calculator. And he was a computer expert! Very embarrassing...</p><p></p><p>Marg</p></blockquote><p></p>
[QUOTE="Marguerite, post: 15681, member: 1991"] Hi, I can sympathise. CFS is difficult to adapt to and it's even harder for family members to accept. Kids who remember a parent pre-CFS are often very resentful of the changes it imposes and will give you a hard time over it. Other kids adapt. Depression occurs in about 25% of the population. CFS is more like 1 in 2500. But you CAN get depression with CFS - about 25% of patients with CFS will also have clinical depression! (hey, it makes sense - and it was an Aussie researcher, Professor Ian Hickie, who found this out after laborious statistical analysis). Most, if not all, the other CFS patients will get reactive depression at some stage of the illness - ie they will get totally cheese off and depressed because they're chronically ill and they hate it. The best advice I can give you - do the best you can with what you've got and don't let the guilts get you down. Rest when you need to, especially rest your body (but don't overdo the rest - keep as active as you can). If you have an important task coming up - rest beforehand, so you have both the mental and physical energy to cope. Being physically tired will also bring on the brain fog. Some days a walk to the front gate will be exhausting. Other days you could walk for miles. So you do what you can and balance it out. Let go some things, work out what is most important and deal with that. Tick off your achievements as you go and give yourself credit. Live as healthy a lifestyle as you can, treat your symptoms and be gentle with yourself. Keep stress to a minimum (ha!) or at least try to. Exercise as much as you can without burning yourself out. If that exercise is walking ten steps, so be it. if it's swimming ten laps, great. Just do it regularly to keep as fit as you can. If you have a day when you can't do it - don't worry. Some things will make you worse - it could be viruses running around the family, or it could be chemicals you're around. It varies. Not a lot you can do except avoid exposure and live with the inevitable consequences. They will pass. Just do what you can. And talk to people. And finally, a joke for you, written by a friend of mine with CFS - "What do you call someone with CFS who sleeps for 20 hours a day? A: An insomniac." Something else this friend did once - he was trying to change the TV station but the remote wouldn't work - until he looked again and realised he was using a pocket calculator. And he was a computer expert! Very embarrassing... Marg [/QUOTE]
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