Forums
New posts
Search forums
What's new
New posts
New profile posts
Latest activity
Internet Search
Members
Current visitors
New profile posts
Search profile posts
Log in
Register
What's new
Search
Search
Search titles only
By:
New posts
Search forums
Menu
Log in
Register
Install the app
Install
Forums
General Discussions
The Watercooler
Chronic Fatigue Syndrome
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an
alternative browser
.
Reply to thread
Message
<blockquote data-quote="Marguerite" data-source="post: 15690" data-attributes="member: 1991"><p>"Balancing act" - you're so right! It starts out like you're walking a balance beam, then you're skilled enough to walk on a tightrope. These days I think I could balance on a razor...</p><p></p><p>About weight gain (not that I'm one to talk) - the more you have to carry around the worse the fatigue. And because I'm no longer burning up calories, I've even had to tell hospital dieticians where to put their advice (I gained weight on their reducing diet because they made me eat more than I already was). So you learn to make your own adaptations (with medical supervision).</p><p></p><p>It's funny how this illness hits people who used to be high achievers and physically active. Unless we're the ones who really notice the difference?</p><p></p><p>I must admit, a lot of doctors advise patients to not sleep during the day, but I cope a lot better when I DO catnap. I long ago gave away the guilt about catnaps because they recharge my batteries. Sometimes I do feel groggy for an hour or more after I wake, but when the energy kicks in (what there is of it) it lasts me longer than if I hadn't napped. I just plan my day around the times I need to be active - in the evenings and with mealtimes. I've even written my recipe book with planned rest breaks. That way I can be resting while a pot is simmering on the stove, or bread is rising.</p><p></p><p>Being out in the cold - it can help, but if you're out long enough to start shivering you have to recognise that your body is working hard and you will feel fatigue and muscle plain as a result. I find my main aim through winter is to not shiver. And I've even checked my temperature - I no longer shiver, unless my core body temp drops below about 35. It's like my body has learned to avoid shivering, too. I'll feel cold and put on warm jackets, but the shivering doesn't start until my temp is almost too low to register on the thermometer.</p><p></p><p>We had a good cartoonist who did a lot of great stuff on CFS. One of my favourites was a short strip - patient in hospital bed, surrounded by doctors saying, "We've done extensive, exhaustive research and combed the world and at last we've found the perfect doctor to treat your illness." Then they stand aside to reveal a witchdoctor in full mask, regalia and rattles.</p><p></p><p>These days I'm the witchdoctor.</p><p></p><p>Marg</p></blockquote><p></p>
[QUOTE="Marguerite, post: 15690, member: 1991"] "Balancing act" - you're so right! It starts out like you're walking a balance beam, then you're skilled enough to walk on a tightrope. These days I think I could balance on a razor... About weight gain (not that I'm one to talk) - the more you have to carry around the worse the fatigue. And because I'm no longer burning up calories, I've even had to tell hospital dieticians where to put their advice (I gained weight on their reducing diet because they made me eat more than I already was). So you learn to make your own adaptations (with medical supervision). It's funny how this illness hits people who used to be high achievers and physically active. Unless we're the ones who really notice the difference? I must admit, a lot of doctors advise patients to not sleep during the day, but I cope a lot better when I DO catnap. I long ago gave away the guilt about catnaps because they recharge my batteries. Sometimes I do feel groggy for an hour or more after I wake, but when the energy kicks in (what there is of it) it lasts me longer than if I hadn't napped. I just plan my day around the times I need to be active - in the evenings and with mealtimes. I've even written my recipe book with planned rest breaks. That way I can be resting while a pot is simmering on the stove, or bread is rising. Being out in the cold - it can help, but if you're out long enough to start shivering you have to recognise that your body is working hard and you will feel fatigue and muscle plain as a result. I find my main aim through winter is to not shiver. And I've even checked my temperature - I no longer shiver, unless my core body temp drops below about 35. It's like my body has learned to avoid shivering, too. I'll feel cold and put on warm jackets, but the shivering doesn't start until my temp is almost too low to register on the thermometer. We had a good cartoonist who did a lot of great stuff on CFS. One of my favourites was a short strip - patient in hospital bed, surrounded by doctors saying, "We've done extensive, exhaustive research and combed the world and at last we've found the perfect doctor to treat your illness." Then they stand aside to reveal a witchdoctor in full mask, regalia and rattles. These days I'm the witchdoctor. Marg [/QUOTE]
Insert quotes…
Verification
Post reply
Forums
General Discussions
The Watercooler
Chronic Fatigue Syndrome
Top