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Chronic Fatigue Syndrome
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<blockquote data-quote="Pam R" data-source="post: 15694" data-attributes="member: 108"><p>Marguerite wrote:</p><p>&gt; It's funny how this illness hits people who used </p><p>&gt; to be high achievers and physically active. Unless </p><p>&gt; we're the ones who really notice the difference?</p><p></p><p>I've often wondered about this. It did seem to more often be the case. But a lot of my contact with others with this has been online, and maybe it's this type of person who is more apt to be online, seeking info and connection.</p><p></p><p>Regarding sleeping during the day, I sleep if I must, but mostly try to rest sitting up, if I can. My sleep got so bad, so messed up, that I would go days with 1 or 2 hours sleep in 24. I know several people who have a hard time with their sleep, and are not careful about sleep hygiene. They know this makes them worse. They can go either way, sleeping all the time or not at all.</p><p></p><p>As far as body temp, I've never been able to regulate mine. If it's below 70F, my body and brain literally shut down. If I must be out in the cold, I dress in many, many layers, and wear heavy Sorels with big tread to keep the contact with the ground minimal. </p><p></p><p>I do okay in high temps to mid 90's, but after that I need help with body temp. If I start to sweat, I know I'm in trouble, as for me, that's not regulating my temp but indicating I'm much too hot and going into heat exhaustion.</p><p></p><p>It's odd how different we can be, with this disease.</p><p></p><p>Pam R.</p></blockquote><p></p>
[QUOTE="Pam R, post: 15694, member: 108"] Marguerite wrote: > It's funny how this illness hits people who used > to be high achievers and physically active. Unless > we're the ones who really notice the difference? I've often wondered about this. It did seem to more often be the case. But a lot of my contact with others with this has been online, and maybe it's this type of person who is more apt to be online, seeking info and connection. Regarding sleeping during the day, I sleep if I must, but mostly try to rest sitting up, if I can. My sleep got so bad, so messed up, that I would go days with 1 or 2 hours sleep in 24. I know several people who have a hard time with their sleep, and are not careful about sleep hygiene. They know this makes them worse. They can go either way, sleeping all the time or not at all. As far as body temp, I've never been able to regulate mine. If it's below 70F, my body and brain literally shut down. If I must be out in the cold, I dress in many, many layers, and wear heavy Sorels with big tread to keep the contact with the ground minimal. I do okay in high temps to mid 90's, but after that I need help with body temp. If I start to sweat, I know I'm in trouble, as for me, that's not regulating my temp but indicating I'm much too hot and going into heat exhaustion. It's odd how different we can be, with this disease. Pam R. [/QUOTE]
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