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Chronic Fatigue Syndrome
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<blockquote data-quote="Pam R" data-source="post: 15695" data-attributes="member: 108"><p>Marguerite wrote:</p><p>&gt; I think the trick with exercise is to stay within </p><p>&gt; your own limitations. I'm rare - I don't suffer </p><p>&gt; from after-effects if I over-exercise, I just collapse.</p><p></p><p>I did that the first day at the gym, even though I had stopped on my own. Sort of alarmed the person who was teaching me about how to use the machines. :smile:</p><p></p><p>Standing is awful also, which is why I was soooo glad to be gifted a wheelchair in 2000. It meant I was much less housebound and could attend things I'd not been able to before. </p><p></p><p>But when I've been caught out without it, I've been known to just sit on the ground, if I need to. I no longer stand til I can't, I just sit, thereby honoring my body's limitations.</p><p></p><p>&gt; Where most people have a full jug of energy, </p><p>&gt; we don't. It's like we only have half a jug </p><p>&gt; (or less). The amount we have in our jug will </p><p>&gt; vary from day to day and we can't always see </p><p>&gt; into the jug - we have to judge by how heavy </p><p>&gt; it feels.</p><p></p><p>I had found a posting called "The Spoon Theory". And it has to do with having so many increments of energy to spend, "spoons", and how you use them and stockpile them. It was written by a person with Lupus, but was very accurate for me. I saved it and have given it out sometimes.</p><p></p><p>Holding the phone is exhausting for me, and our phone company will give you a hands free phone for free with a doctor's recommendation. It's really made a difference for me.</p><p></p><p>I agree that you should not give up. One of the things we have learned is how to create a new life that's full, within our limitations. </p><p></p><p>I went from running a boarding stable, growing enough food for a year, raising and homeschooling my son and actively pursuing a frugal lifestyle, slowly to closing the stable, closing the garden, closing many flower beds, losing old friends and family and sending my son to school.</p><p></p><p>We learned to create new friends and family, new hobbies, resumed homeschooling, and learned new ways of eating and caring for myself and exercising. I learned new ways to find and see joy. And I learned a LOT about navigating the system so we could survive on SSDI. :bravo:</p><p></p><p>It's about being given a lemon and making lemonade. :rofl:</p><p></p><p>Pam R.</p></blockquote><p></p>
[QUOTE="Pam R, post: 15695, member: 108"] Marguerite wrote: > I think the trick with exercise is to stay within > your own limitations. I'm rare - I don't suffer > from after-effects if I over-exercise, I just collapse. I did that the first day at the gym, even though I had stopped on my own. Sort of alarmed the person who was teaching me about how to use the machines. [img]:smile:[/img] Standing is awful also, which is why I was soooo glad to be gifted a wheelchair in 2000. It meant I was much less housebound and could attend things I'd not been able to before. But when I've been caught out without it, I've been known to just sit on the ground, if I need to. I no longer stand til I can't, I just sit, thereby honoring my body's limitations. > Where most people have a full jug of energy, > we don't. It's like we only have half a jug > (or less). The amount we have in our jug will > vary from day to day and we can't always see > into the jug - we have to judge by how heavy > it feels. I had found a posting called "The Spoon Theory". And it has to do with having so many increments of energy to spend, "spoons", and how you use them and stockpile them. It was written by a person with Lupus, but was very accurate for me. I saved it and have given it out sometimes. Holding the phone is exhausting for me, and our phone company will give you a hands free phone for free with a doctor's recommendation. It's really made a difference for me. I agree that you should not give up. One of the things we have learned is how to create a new life that's full, within our limitations. I went from running a boarding stable, growing enough food for a year, raising and homeschooling my son and actively pursuing a frugal lifestyle, slowly to closing the stable, closing the garden, closing many flower beds, losing old friends and family and sending my son to school. We learned to create new friends and family, new hobbies, resumed homeschooling, and learned new ways of eating and caring for myself and exercising. I learned new ways to find and see joy. And I learned a LOT about navigating the system so we could survive on SSDI. [img]:bravo:[/img] It's about being given a lemon and making lemonade. [img]:rofl:[/img] Pam R. [/QUOTE]
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