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<blockquote data-quote="susiestar" data-source="post: 718264" data-attributes="member: 1233"><p>None of us here mean to chastise you. I promise. SWOT is truly one of the most supportive moms you are going to find. She is mostly going to tell you how things were for her and in her family, rather than to tell you how she thinks you should do it. At least at first. This is a safe place and it is good to come here rather than to go to take the issues to your kids first. You can work them out with us. I wish I had done more of that when my son was young (my oldest) but he was older when I found this site). </p><p></p><p>You need more interventions for your son. He needs an IEP at school. You write a letter requesting this and they provide it. If he has one, great. It should involve some occupational therapy, especially including sensory integration therapy. People with autism have problems because they don't interpret input from their senses the way the rest of the world does. The world is too bright, or not bright enough, too still, or not still enough, foods are too strong tasting, or not strongly flavored enough, textures are wrong, or too wonderful, everything isn't just OK. The world is so much more intense than normal people experience it. I can explain it now, because I would have been diagnosed with something like Aspergers if anyone where we lived knew what that was when I was a kid, and if girls were not such great imitators. Girls express it differently than boys do, some studies have shown. But wow, I could NOT understand how my classmates could tolerate those tags in their shirts, or some of those fabrics from our uniforms (I was in private school). I was, and still am, very much a texture person. Flavors are a big deal, but the texture of the food in my mouth is what makes or breaks it for me. Mushrooms - don't even try it. Not in any form or fashion. They are either slimy or styrofoam. I also cannot touch cotton balls. Even when they were little, I would have my kids get them out of medication bottles.</p><p></p><p>Your son probably experiences the world very intensely and this is a big part of why he has meltdowns or cannot handle certain stores. I know many kids with autism have a hard time with florescent lights. There is help, and that is sensory integration therapy. I wasn't too sure about it when we started. After all, why had NO ONE suggested it for my oldest, who had autism? It was only for my 3rd child that it was suggested. I was shocked at how muchit helped. No medications no how is your mother upsetting you questions, just some activities that my kid LIKED and a program of brushing his body and gentle joint compressions that my child also liked. This REWIRED his brain and helped his brain become more normal? I was willing to try it. My parents were ALWAYS buying the kids art and craft stuff, and we actually had about 70% of the stuff the therapist suggested we buy for the sensory diet (activities to provide the sensory input his brain needed) because they were activities my kid gravitated to. Letting him sit on his head while he watched tv if he wanted? Or while he read a book? No skin off of my nose. </p><p>They said it would help. Sure it was strange, but it hurt no one. In the beginning my child could only cope with half days of school maybe 3 or 4 days a week. He was never a behavior problem, but if he went more often, he had problems. He would vibrate, sort of shake. Like he was cold, but he wasn't. He couldn't eat for a night and sometimes not even the next morning. If I took him to school he would just curl into a ball and shake. It really freaked people out. He would need to just be left alone until his system could handle more sensory input. For what it is worth, this is on the mild end of the autism spectrum. Just with the things I mentioned, we got him from that point in Pre-K to going full days in first grade but only about 3 days a week, sometimes 2 days a week. He was still the top student in his class. It took until 3rd grade for him to only miss 1/4 of the school year. Then in 4th grade magic happened because he only missed school once for being overwhelmed and it was from some huge assembly that a substitute would not let him skip. Since then he has only missed school rarely for being sick. I have to force him to stay home then. </p><p></p><p>This is the kind of help this can do. They may tell you that your son is at the top end of the age range to be helped by this. Insist that they try anyway. They will teach you the technique to do at home. Do it. I did it with my older kids because they said ti would not hurt but would not help. They were dead, flat WRONG. It helped a LOT. My daughter always wanted to do it to me and I was shocked at how much it helped ME. I was in my 30s. I think that someone decided that after a certain age the brain was too old to change. We are learning more each year about how changeable the brain is, and I really think this can help older people with sensory issues. I certainly don't see why it would hurt. You just have to be taught by a professional because if you do it wrong you can cause real harm. </p><p></p><p>Who diagnosed your son's autism? Was he ever seen by a developmental pediatrician? In our area, that is the type of doctor you see and they have all of these doctors and specialists under one roof or at least they tell you about them. Or they refer you to a children's hospital and give you some comprehensive info about all of this. I know the dev pediatrician we saw had nutritionists they used to help with the binge eating and other dietary problems. </p><p></p><p>One thing we found that helped HUGELY was to keep up the level of protein. I kept protein bars in flavors my sons liked. I had them everywhere, but not where my son could get them. I actually put a lock on the bedroom closet and stored them in there. I always had a few in my purse because then if we were out I had a ready snack. Protein seems to sate their need for food faster and it helps prevent the meltdowns. Having the simple carbohydrates, or not having enough protein to operate on, seemed to fuel my boys' meltdowns. If I had to take them anywhere except home after school, they HAD to have protein or it just was not worth the effort. We were guaranteed to have a meltdown. They simply could not cope because they ran out of fuel. If they had a party at school, they needed 2 protein bars to counteract the sugar. I often bought protein bars at BigLots because they had good prices and once we got an Aldi's I got them there.</p></blockquote><p></p>
[QUOTE="susiestar, post: 718264, member: 1233"] None of us here mean to chastise you. I promise. SWOT is truly one of the most supportive moms you are going to find. She is mostly going to tell you how things were for her and in her family, rather than to tell you how she thinks you should do it. At least at first. This is a safe place and it is good to come here rather than to go to take the issues to your kids first. You can work them out with us. I wish I had done more of that when my son was young (my oldest) but he was older when I found this site). You need more interventions for your son. He needs an IEP at school. You write a letter requesting this and they provide it. If he has one, great. It should involve some occupational therapy, especially including sensory integration therapy. People with autism have problems because they don't interpret input from their senses the way the rest of the world does. The world is too bright, or not bright enough, too still, or not still enough, foods are too strong tasting, or not strongly flavored enough, textures are wrong, or too wonderful, everything isn't just OK. The world is so much more intense than normal people experience it. I can explain it now, because I would have been diagnosed with something like Aspergers if anyone where we lived knew what that was when I was a kid, and if girls were not such great imitators. Girls express it differently than boys do, some studies have shown. But wow, I could NOT understand how my classmates could tolerate those tags in their shirts, or some of those fabrics from our uniforms (I was in private school). I was, and still am, very much a texture person. Flavors are a big deal, but the texture of the food in my mouth is what makes or breaks it for me. Mushrooms - don't even try it. Not in any form or fashion. They are either slimy or styrofoam. I also cannot touch cotton balls. Even when they were little, I would have my kids get them out of medication bottles. Your son probably experiences the world very intensely and this is a big part of why he has meltdowns or cannot handle certain stores. I know many kids with autism have a hard time with florescent lights. There is help, and that is sensory integration therapy. I wasn't too sure about it when we started. After all, why had NO ONE suggested it for my oldest, who had autism? It was only for my 3rd child that it was suggested. I was shocked at how muchit helped. No medications no how is your mother upsetting you questions, just some activities that my kid LIKED and a program of brushing his body and gentle joint compressions that my child also liked. This REWIRED his brain and helped his brain become more normal? I was willing to try it. My parents were ALWAYS buying the kids art and craft stuff, and we actually had about 70% of the stuff the therapist suggested we buy for the sensory diet (activities to provide the sensory input his brain needed) because they were activities my kid gravitated to. Letting him sit on his head while he watched tv if he wanted? Or while he read a book? No skin off of my nose. They said it would help. Sure it was strange, but it hurt no one. In the beginning my child could only cope with half days of school maybe 3 or 4 days a week. He was never a behavior problem, but if he went more often, he had problems. He would vibrate, sort of shake. Like he was cold, but he wasn't. He couldn't eat for a night and sometimes not even the next morning. If I took him to school he would just curl into a ball and shake. It really freaked people out. He would need to just be left alone until his system could handle more sensory input. For what it is worth, this is on the mild end of the autism spectrum. Just with the things I mentioned, we got him from that point in Pre-K to going full days in first grade but only about 3 days a week, sometimes 2 days a week. He was still the top student in his class. It took until 3rd grade for him to only miss 1/4 of the school year. Then in 4th grade magic happened because he only missed school once for being overwhelmed and it was from some huge assembly that a substitute would not let him skip. Since then he has only missed school rarely for being sick. I have to force him to stay home then. This is the kind of help this can do. They may tell you that your son is at the top end of the age range to be helped by this. Insist that they try anyway. They will teach you the technique to do at home. Do it. I did it with my older kids because they said ti would not hurt but would not help. They were dead, flat WRONG. It helped a LOT. My daughter always wanted to do it to me and I was shocked at how much it helped ME. I was in my 30s. I think that someone decided that after a certain age the brain was too old to change. We are learning more each year about how changeable the brain is, and I really think this can help older people with sensory issues. I certainly don't see why it would hurt. You just have to be taught by a professional because if you do it wrong you can cause real harm. Who diagnosed your son's autism? Was he ever seen by a developmental pediatrician? In our area, that is the type of doctor you see and they have all of these doctors and specialists under one roof or at least they tell you about them. Or they refer you to a children's hospital and give you some comprehensive info about all of this. I know the dev pediatrician we saw had nutritionists they used to help with the binge eating and other dietary problems. One thing we found that helped HUGELY was to keep up the level of protein. I kept protein bars in flavors my sons liked. I had them everywhere, but not where my son could get them. I actually put a lock on the bedroom closet and stored them in there. I always had a few in my purse because then if we were out I had a ready snack. Protein seems to sate their need for food faster and it helps prevent the meltdowns. Having the simple carbohydrates, or not having enough protein to operate on, seemed to fuel my boys' meltdowns. If I had to take them anywhere except home after school, they HAD to have protein or it just was not worth the effort. We were guaranteed to have a meltdown. They simply could not cope because they ran out of fuel. If they had a party at school, they needed 2 protein bars to counteract the sugar. I often bought protein bars at BigLots because they had good prices and once we got an Aldi's I got them there. [/QUOTE]
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