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Special Ed 101
encopresis and school
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<blockquote data-quote="Estherfromjerusalem" data-source="post: 6002" data-attributes="member: 77"><p>Dear Jamrobic,</p><p></p><p>What a good aunt you are to help your sister. When I was coping with my son's encopresis, it was him and me (and my husband) against the whole world. Sigh!</p><p></p><p>First of all -- take heart. It does go in the end. But there isn't any magic cure. Has the child been taken to a pediatric gastroenterologist? You say the doctor is helping. I know from my daughter's experience with her twin sons who both had encopresis, and she got really good treatment. The doctor can prescribe two sorts of medication that can help. One of them is to make the stools softer so that they are easier to pass, with less pain or no pain. The other medication makes the bowels move. Both these medications are not very strong, and are just in order to help the situation. Encopresis is a condition, not an illness. It is originally caused by constipation, so what is really important is not to give the child foods that cause constipation, but to make sure she eats plenty of fresh fruits and vegetables, and anything that contains a lot of "roughage" that does down and through and out.</p><p></p><p>As for coping with facing the school administration etc., I don't quite know what to tell you. My son's school was local, and as soon as he was old enough, I gave him a key, and he would phone me (reverse charges) and I would phone the school secretary and just tell her that he had my permission to leave school immediately. It didn't take long for her to understand the situation, and he would immediately leave and come home, let himself in, shower himself and change his clothes, and then either go back to school, or not. Actually, I think that's when our ODD problems began to surface, because he would roam around the streets. I'm not suggesting this to you as a solution; I'm just telling you what I did. I was at work, at the other side of town, and quite desperate.</p><p></p><p>They told me it would disappear with puberty. I didn't believe it. I was deeply depressed. And do you know what? It did disappear, when he was about 13. Just like that. To this day I don't understand it, but that is what usually happens apparently.</p><p></p><p>My daughter was more successful, and got rid of it much earlier with her boys. I think that besides the medications, she also used charts and stuff to encourage the boys -- you know, like if they were clean for a whole day, or two whole days, or a whole week, they got this or that reward, and she put stars on their chart -- you know, that sort of thing.</p><p></p><p>I don't think a child with encopresis needs Special Education. There's nothing wrong with their brains or their behavior. There's definitely something wrong with their bowels. It's like having diabetes or some other physical ailment. However, it is very hard coping with the social side of things. Children are very cruel.</p><p></p><p>Sorry I can't offer you any swift solution. There is also the side of how to cope with it at home. I'll happily tell you how we coped with it. I'm still traumatized, and he's now 20 years old. He's still traumatized too. It's a subject we are not allowed to mention to him. He takes far too many showers, changes his clothes all the time and I have so much laundry from him. But I go along with it and don't say anything, because after all his suffering I certainly don't want to say or do anything to cause more suffering.</p><p></p><p>Wishing you all the best. Feel free to ask anything else.</p><p></p><p>Good luck to your sister and her daughter.</p><p></p><p>Love, Esther</p></blockquote><p></p>
[QUOTE="Estherfromjerusalem, post: 6002, member: 77"] Dear Jamrobic, What a good aunt you are to help your sister. When I was coping with my son's encopresis, it was him and me (and my husband) against the whole world. Sigh! First of all -- take heart. It does go in the end. But there isn't any magic cure. Has the child been taken to a pediatric gastroenterologist? You say the doctor is helping. I know from my daughter's experience with her twin sons who both had encopresis, and she got really good treatment. The doctor can prescribe two sorts of medication that can help. One of them is to make the stools softer so that they are easier to pass, with less pain or no pain. The other medication makes the bowels move. Both these medications are not very strong, and are just in order to help the situation. Encopresis is a condition, not an illness. It is originally caused by constipation, so what is really important is not to give the child foods that cause constipation, but to make sure she eats plenty of fresh fruits and vegetables, and anything that contains a lot of "roughage" that does down and through and out. As for coping with facing the school administration etc., I don't quite know what to tell you. My son's school was local, and as soon as he was old enough, I gave him a key, and he would phone me (reverse charges) and I would phone the school secretary and just tell her that he had my permission to leave school immediately. It didn't take long for her to understand the situation, and he would immediately leave and come home, let himself in, shower himself and change his clothes, and then either go back to school, or not. Actually, I think that's when our ODD problems began to surface, because he would roam around the streets. I'm not suggesting this to you as a solution; I'm just telling you what I did. I was at work, at the other side of town, and quite desperate. They told me it would disappear with puberty. I didn't believe it. I was deeply depressed. And do you know what? It did disappear, when he was about 13. Just like that. To this day I don't understand it, but that is what usually happens apparently. My daughter was more successful, and got rid of it much earlier with her boys. I think that besides the medications, she also used charts and stuff to encourage the boys -- you know, like if they were clean for a whole day, or two whole days, or a whole week, they got this or that reward, and she put stars on their chart -- you know, that sort of thing. I don't think a child with encopresis needs Special Education. There's nothing wrong with their brains or their behavior. There's definitely something wrong with their bowels. It's like having diabetes or some other physical ailment. However, it is very hard coping with the social side of things. Children are very cruel. Sorry I can't offer you any swift solution. There is also the side of how to cope with it at home. I'll happily tell you how we coped with it. I'm still traumatized, and he's now 20 years old. He's still traumatized too. It's a subject we are not allowed to mention to him. He takes far too many showers, changes his clothes all the time and I have so much laundry from him. But I go along with it and don't say anything, because after all his suffering I certainly don't want to say or do anything to cause more suffering. Wishing you all the best. Feel free to ask anything else. Good luck to your sister and her daughter. Love, Esther [/QUOTE]
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