I am so thankful that my husband is stoned on pain medications most of the time. I don't think he realized all that the various doctors have said. Until we get the PET scan, we won't know the full story.
We had another trip to the ER on Monday night. He got really scared when it was time to go to sleep because he couldn't breathe. They did a CT scan and almost sent us to the city for inpatient treatment. They sent us home because we had an appointment with a radiologist in 6 hours to set up radiation.
The radiologist showed us all the scans done so far. There is the disc that is mostly tumor, the tumor in his neck, and at least 5 tumors in his lungs. It isn't lung cancer (already tested for that), but we still don't know what type of cancer it is. Hopefully the blood work they did will tell them that. Plus a small part of his lung has collapsed. Going in to try to fix it is not advised. It is likely to do more harm than good.
I had the info from the ER with me (ER doctor stressed this). His oncologist's nurse was able to use it to order oxygen. So we have that now. It is allowing him to sleep better. He also feels a lot better. We have had to insist that he not start walking without the walker. He just barely has gotten to the point where he can put both feet flat on the floor when he walks.
We have to have someone with him at all times, esp at night. He hallucinates things. We are pretty sure that it is the pain medications. As long as one of us can tell him that what he is seeing isn't real, he is fine. If he cannot see one of us, then he gets really scared.
I don't know if I can take one more thing. Every time we see a doctor, there is something else that is major. We thought that one of the 2 sites (neck and spine) would be the first one. Now there are 5 more that are not the original site. I can't even think about how much worse this is going to get. At least we don't have to move for another month. Management didn't want to let us stay (we want to move and our lease is up), but the doctor said it would be a really bad thing right now. Too much stress.
Thanks for being here. It means so much. I can't always get away to go talk this out without the kids around. If I fall apart, the kids will have a much harder time coping. This is hard enough for them.
We had another trip to the ER on Monday night. He got really scared when it was time to go to sleep because he couldn't breathe. They did a CT scan and almost sent us to the city for inpatient treatment. They sent us home because we had an appointment with a radiologist in 6 hours to set up radiation.
The radiologist showed us all the scans done so far. There is the disc that is mostly tumor, the tumor in his neck, and at least 5 tumors in his lungs. It isn't lung cancer (already tested for that), but we still don't know what type of cancer it is. Hopefully the blood work they did will tell them that. Plus a small part of his lung has collapsed. Going in to try to fix it is not advised. It is likely to do more harm than good.
I had the info from the ER with me (ER doctor stressed this). His oncologist's nurse was able to use it to order oxygen. So we have that now. It is allowing him to sleep better. He also feels a lot better. We have had to insist that he not start walking without the walker. He just barely has gotten to the point where he can put both feet flat on the floor when he walks.
We have to have someone with him at all times, esp at night. He hallucinates things. We are pretty sure that it is the pain medications. As long as one of us can tell him that what he is seeing isn't real, he is fine. If he cannot see one of us, then he gets really scared.
I don't know if I can take one more thing. Every time we see a doctor, there is something else that is major. We thought that one of the 2 sites (neck and spine) would be the first one. Now there are 5 more that are not the original site. I can't even think about how much worse this is going to get. At least we don't have to move for another month. Management didn't want to let us stay (we want to move and our lease is up), but the doctor said it would be a really bad thing right now. Too much stress.
Thanks for being here. It means so much. I can't always get away to go talk this out without the kids around. If I fall apart, the kids will have a much harder time coping. This is hard enough for them.