Discussion in 'The Watercooler' started by flutterby, Sep 10, 2009.

  1. flutterby

    flutterby Fly away!

    How long does it take Miralax to work?

    My doctor gave me a script. If I take it by 3pm today, will I be safe to go to an appointment at 1pm tomorrow?
  2. gcvmom

    gcvmom Here we go again!

    Safe as in safe to go to a GI appointment? Or safe as in safe to not need to run to the bathroom?

    It probably depends on how much you take. difficult child 1 takes a capful daily and it just keeps him regular. Two capfuls and it keeps his stool pretty loose (as in runny). Any more than that and you're probably going to be inconvenienced, if you know what I mean.
  3. mstang67chic

    mstang67chic Going Green

    And if you take the whole bottle....there won't be any worries tomorrow as everything will have been evacuated within hours.
  4. gcvmom

    gcvmom Here we go again!

    ... including stuff you haven't even eaten yet! :tongue:
  5. flutterby

    flutterby Fly away!

    It's not a GI appointment - it's another appointment that is probably going to be hours long.

    After the prep, I felt fine. All that stuff went away - well, out, actually. :tongue: It started again yesterday. :sick:

    I decided to wait until after the appointment tomorrow. Ugh.
  6. gcvmom

    gcvmom Here we go again!

    Have you had a small bowel follow-through? The fact that they didn't get past your IC valve means they still don't know if there's something going on above your colon.
  7. flutterby

    flutterby Fly away!

    No. My doctor was kind of...I don't know. And I hadn't slept and am tired of not very pleasant tests that find nothing. And I was feeling better. I was hoping it was just a fluke. Apparently, it's not.

    She did say based on my description of things that it sounds like there could be a malabsorption issue.

    What's interesting is that when this starts up, I have breakthrough GERD - and I doubled my GERD medication a few months ago.

    I guess I'll be calling her on Monday and asking for a GI referral. I just get tired of the tests, but I just need to hoover it up.

    I need to try a girlfriend diet, too. I've had a lot of various appointments and it's not letting up until the end of next week. Things that normally shouldn't be an issue, but I'm wiped out. Went to the dentist, Arby's, Verizon store and humane society today - and easy child drove - and I had to take a 3 hour nap. I'm still tired. This is after sleeping the night before last, then from 10am to 6pm yesterday and back in bed at 1am this morning til 8am. So, when I have the energy and the brain power, I'm going to be looking into a girlfriend diet.
  8. gcvmom

    gcvmom Here we go again!

    If you are FOS (full of stool) because things are backing up, I would not be surprised that GERD symptoms could be worse (but again, I'm not a doctor). difficult child 1 gets nauseous when he is fos.

    I know I'm dancing around this, so I'll just cone out and ask if you think it could be Crohn's?
  9. flutterby

    flutterby Fly away!

    I've wondered. Especially with all of my other physical symptoms that can be directly related to Crohn's.

    I'm afraid to think about it too much. Every time we've thought we might be close to a diagnosis, it's not happened. With every test I take I get my hopes up that we'll have answers and it's hard to keep doing that just to be back at square one, Know what I mean??
  10. gcvmom

    gcvmom Here we go again!

    So they haven't ruled it out then?

    Okay, here's my questions:

    Have you been checked for Crohn's antibodies?
    Are you anemic?
    Do you have an elevated SED rate or CRP?
    Is your white cell count elevated?
    Are your platelets elevated?
    Are you fatigued?
    Do you have unexplained fevers (low grade or otherwise)?
    Have you experienced weight loss?
    Do you have constipation?
    Reduced appetite?
    Abdominal pain? Where?
    Are you deficient in any nutrients (zinc especially)?
    Have you experienced bone loss (osteopenia or osteoporosis)?
    Eye inflammation?
    Mouth sores?
    Blood in stool, either occult or frank?
    Did they take biopsies?
    Are your fingernails clubbed?
    Do you have arthritis?
    Kidney or gallstones?
    Skin rashes?

    Have you looked here:


    Of course, having a kid with Crohn's makes me look at some of your symptoms through that lense. I hope that's not what it is. But I especially hope you are seeing someone who can give you an ANSWER.
  11. flutterby

    flutterby Fly away!

    How's that. :tongue:
  12. gcvmom

    gcvmom Here we go again!

    Wow, you DO have a lot of the symptoms.

    FWIW, having or not having the Crohn's antibodies doesn't mean a whole lot. It mainly serves to confirm an already suspected diagnosis.

    Clubbed fingernails happens in a number of diseases, not just Crohn's, and it can also be familial and not be related to disease. But in Crohn's it's a side-effect of the malabsorption.

    And you don't have to have ALL of those symptoms to have Crohn's. It presents in many different ways.

    I really, really think you should consider the upper GI barium study. That's how we found out how extensive difficult child 1's Crohn's was (although he did have some inflammation in his colon, but nowhere near what he had in his small bowel). He had multiple areas of inflammation, distended bowel loops, scarring and stricturing in the small bowel. It completely explained his nausea, fatigue, weight loss, abnormal bloodwork, diarrhea, constipation, pain, cramping, yada, yada, yada. And he did not have all of the symptoms you have!
  13. flutterby

    flutterby Fly away!

    The problem is my symptoms seem to be so generic that they can go with just about anything. But, I will look into a GI.