F
flutterbee
Guest
We finished up testing and then he went over my test scores. I don't have a written report yet - hope to have that in a couple of weeks - but here is the crux of it:
(I may not have all the terminology right - we went over this 3+ hours into a 2 hour appointment.)
VIQ (Verbal IQ - judgment, reasoning, data manipulation) in the 94th percentile
PIQ (Performance (?) IQ - attentional, distractability, short term memory) in the 34th percentile.
Big discrepancy. He said it's left temporal lobe. We still don't know what caused it.
He said I wouldn't be able to do the kind of work that I do anymore. I guess I looked upset because he said, 'That's not a surprise to you, though.' It's not. I was just hoping I was wrong. Also have trouble with sustained effort. He's not seeing me being able to work 40 hours a week consistently. He said I need something where I can work at my own pace and not have tight deadlines. Anyone know of any jobs like that? Cause I sure don't. I have some numbers for vocational rehab.
He's recommending to my neurologist a PET scan. But I don't see my insurance company covering that. He doesn't know the cause of these issues, but he doesn't seem to hold much hope for it improving. In fact, he said he could see me in 2 or 3 years if I felt it was getting worse. These things do get worse with age. I just have a jumpstart.
I still don't have any kind of a diagnosis. I see my GP Monday and I'm going to ask for a new rheumy. I see the neurologist again on the 25th.
I feel stuck in limbo. If I can't work full time consistently, I can't support my family. I have to have health insurance. Very few companies offer benefits to part time employees (although my former employer did and that's possibly an option - just doing different work - or a different level).
For the first time in a very long time, I'm afraid.
(I may not have all the terminology right - we went over this 3+ hours into a 2 hour appointment.)
VIQ (Verbal IQ - judgment, reasoning, data manipulation) in the 94th percentile
PIQ (Performance (?) IQ - attentional, distractability, short term memory) in the 34th percentile.
Big discrepancy. He said it's left temporal lobe. We still don't know what caused it.
He said I wouldn't be able to do the kind of work that I do anymore. I guess I looked upset because he said, 'That's not a surprise to you, though.' It's not. I was just hoping I was wrong. Also have trouble with sustained effort. He's not seeing me being able to work 40 hours a week consistently. He said I need something where I can work at my own pace and not have tight deadlines. Anyone know of any jobs like that? Cause I sure don't. I have some numbers for vocational rehab.
He's recommending to my neurologist a PET scan. But I don't see my insurance company covering that. He doesn't know the cause of these issues, but he doesn't seem to hold much hope for it improving. In fact, he said he could see me in 2 or 3 years if I felt it was getting worse. These things do get worse with age. I just have a jumpstart.
I still don't have any kind of a diagnosis. I see my GP Monday and I'm going to ask for a new rheumy. I see the neurologist again on the 25th.
I feel stuck in limbo. If I can't work full time consistently, I can't support my family. I have to have health insurance. Very few companies offer benefits to part time employees (although my former employer did and that's possibly an option - just doing different work - or a different level).
For the first time in a very long time, I'm afraid.