Jessie has been complaining that her hands are too sore to open bottles of anything. Her keppra (even in a bottle that is not child proof), canola oil, milk, shampoo, almost anything. She doesn't really complain, she just brings them to me to open. This has been going on for months - since summer. It finally hit me that it has been going on so long. I didn't catch on because she doesn't really complain, she just brings me things to open and says she can't seem to open them. But I started asking questions about WHY she can't open things in the last few months. I looked at her hands the other day. Her knuckles were BLUE. Not the whole hand, just the knuckle. Almost looked bruised, but not quite. When I GENTLY touched the joints I could tell that it was very painful. And they were clearly swollen. This is in addition to the back, knee, shoulder, and neck problems we have been dealing with for years. Do I start looking for a pediatric rheumatologist? Ask my rheumatologist what to do? Start with the pediatrician (who ends up blowing me off as "looking for problems in a healthy kid" when SHE brings these to me, and she ISN"T a "healthy kid"). Suggestions? Thanks.