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<blockquote data-quote="timer lady" data-source="post: 63445" data-attributes="member: 393"><p>Well, after attending an appointment with my rheumatologist twice this week, I'm going back to the neurologist this coming Thursday.</p><p></p><p>Rheum doctor believes we're indeed looking at GBS or possibly myathenias gravis versus the others mentioned last week. In the meantime, my primary care doctor is checking into options for a complete check up at Mayo Clinic within the next month. </p><p></p><p>Along with that, a much longer recovery period ahead. Kind of bummed - I struggle with knowing what to do next. Other than learning to pace myself (thanks Marg - still working on that), & ask for help, I'm feeling totally lost.</p><p></p><p>Never thought at my age, I'd lose so many very vital abilities. I do know that I have more abilities than many more have & will use this to keep myself going. </p><p></p><p>AND I've always loved a good mystery. :reading: </p><p></p><p>I keep trying to pick along at the piano. I'm learning to delegate, use grocery delivery services & other things that I have the means to use at this time. The means I didn't have a year ago. My PCAs have been trained in to teach kt to become more self caring - more responsible. </p><p></p><p>I'm hoping to get to the library today & find a good series of books to lose myself in this coming week. I find if I can keep the pain at bay, I can do pretty much anything (except maybe think straight :rofl:).</p><p></p><p>Thanks for all the continued good thoughts.</p></blockquote><p></p>
[QUOTE="timer lady, post: 63445, member: 393"] Well, after attending an appointment with my rheumatologist twice this week, I'm going back to the neurologist this coming Thursday. Rheum doctor believes we're indeed looking at GBS or possibly myathenias gravis versus the others mentioned last week. In the meantime, my primary care doctor is checking into options for a complete check up at Mayo Clinic within the next month. Along with that, a much longer recovery period ahead. Kind of bummed - I struggle with knowing what to do next. Other than learning to pace myself (thanks Marg - still working on that), & ask for help, I'm feeling totally lost. Never thought at my age, I'd lose so many very vital abilities. I do know that I have more abilities than many more have & will use this to keep myself going. AND I've always loved a good mystery. [img]:reading:[/img] I keep trying to pick along at the piano. I'm learning to delegate, use grocery delivery services & other things that I have the means to use at this time. The means I didn't have a year ago. My PCAs have been trained in to teach kt to become more self caring - more responsible. I'm hoping to get to the library today & find a good series of books to lose myself in this coming week. I find if I can keep the pain at bay, I can do pretty much anything (except maybe think straight [img]:rofl:[/img]). Thanks for all the continued good thoughts. [/QUOTE]
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