I finally have a diagnosis!

Discussion in 'The Watercooler' started by flutterby, Aug 25, 2010.

  1. flutterby

    flutterby Fly away!

    Myasthenia Gravis it is.

    It's such a relief to be able to start treating something. I'm looking forward to getting my life back!
  2. Star*

    Star* call 911........call 911


    What a long road, and what a sense of closure this must be for you. For us all I think. I can't say this is something that is good per se, but like you told me when I had no idea this was even on the table as a diagnosis...it would be good to know, so there could be some sort of treatment regiem begun for your pain. I'll tell you what though....for all those other doctors that put you through the hell they did? (insert unkind things here) How awful this has been for you and your family. I haven't read about MG and don't know anything about it, but I do look forward to learning first hand from you about the treatments. I certainly already know about the journey of pain, and I'm so glad you know what this is and can start dealing with it proactively.

    Many hugs for better days to come.

    Much love,
  3. busywend

    busywend Well-Known Member Staff Member

    What relief you must feel! I am glad you can finally get help and move on!!
  4. Marguerite

    Marguerite Active Member

    That is really good news - now you know why you've been feeling tired and weak. Now you can begin treatment.

    mother in law has had myasthenia in some form since her late teens. She's been on Mestinon for the last 30 years. Still lives in her own home at 86.

    Once you get the medication dose sorted out and stabilised, you will feel such a difference! Be careful of alcohol, though, especially if you're out in public. mother in law's face goes blotchy and red if she drinks even a small amount.

    Take your pills then get your jogging shoes on!

  5. Mattsmom277

    Mattsmom277 Active Member

    You can now move on to treating this and I hope to be reading posts soon that you are feeling much better!!! Whew! What a path you've been on
  6. Fran

    Fran Former desparate mom

    Glad it is a treatable condition and you know what's going on.
  7. trinityroyal

    trinityroyal Well-Known Member

    Flutter, I am so glad that you've finally got a diagnosis and a clear treatment plan. What a relief.

  8. hearts and roses

    hearts and roses Mind Reader

    This is wonderful news! Here's to being pain free and able to move again!
  9. KTMom91

    KTMom91 Well-Known Member

    Heather, I'm so glad you've gotten an answer!
  10. Shari

    Shari IsItFridayYet?

    I am so thankful! Finally....this has been such a long road.
  11. WhymeMom?

    WhymeMom? No real answers to life..

    Happy you can at least formulate a treatment plan........ hoping it goes smoothly!
  12. klmno

    klmno Active Member

    Wow! I have no idea what that is but am glad you have a diagnosis that you believe is accurate and you can start doing something to actually help it now. Here's to a smooth and quick road to feel better!
  13. DaisyFace

    DaisyFace Love me...Love me not

    Well, it feels funny to say "congratulations" over news like this - but it does feel like something worth celebrating. I am so happy to hear that you FINALLY have an answer and now can get on to the business of healing...

    What a relief!
  14. totoro

    totoro Mom? What's a GFG?

    I just want to hug you!!! I am so happy that at least you have some direction on this road now...
  15. DDD

    DDD Well-Known Member

    Now you can face off with the correct issue. I'm sure you'll find the best way to combat the problems. Best of luck.
  16. ThreeShadows

    ThreeShadows Quid me anxia?

    It does feel strange to say congratulations for receiving a diagnosis. It makes me furious that it has taken so long! Isn't it validating to have a professional acknowledge what you knew all along, that something was wrong!!!
  17. Hound dog

    Hound dog Nana's are Beautiful

    Thank God! It's about time!!! Now that they know what it is treatment can begin and the quality of your life can begin to improve. ((((hugs)))) So relieved and glad this has finally come together for you heather!!!
  18. susiestar

    susiestar Roll With It

    HALLELUIAH!!!! It is about dang time!!! I hope and pray that treatment works and you are up and into everything again very soon.

    It is such a relief to know your problems have a name and a specific course of treatment!!!!!

  19. SomewhereOutThere

    SomewhereOutThere Well-Known Member

    Oh, I"m so happy they finally figured it out! I used to feel so bad for you! At least, you know now.
  20. ML

    ML Guest

    Congratulations! What a relief. I'm so glad it's treatable!