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The Watercooler
I hope I havent worried you guys with my absence but I should be mostly back now.
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<blockquote data-quote="2much2recover" data-source="post: 640592" data-attributes="member: 18366"><p>Sorry, when I wrote that I misread the poster and thought that is was an 18 year old being put on the Fentanyl patch. My diagnosis is CRPS/RSD i.e.Chronic Regional Pain Syndrome/Regional Sympathetic Dystrophy. Basically like MS it is a neurological disease, but instead of destroying muscles it destroys the nerve endings and leads to deterioration of the whole nervous system. It is a burning pain that feels like the effected areas are on (literally) fire. I like to inform people of this disease because it is not well known, has no known cure BUT effects 5% of people who injure a limb. I received the diagnosis after casting (fell off a ladder and shattered my wrist) Once diagnosed, this disease is so debilitating and so unlikely to be cured that it is at the top of the list for immediate permanent disability with SSDI. I wouldn't wish it on my worst enemy.</p><p>Again I apologize, I thought we were talking about a teen being given the patch, and there are young people with this diagnosis as well who may need to use it.</p><p>It is just my thoughts having been down a long trail both with the pain and the treatments. The problem with opiates for pain is they are meant to be for short term pain, not something with a lifetime painful diagnosis. What I found was the more opiates I took, the worse my pain actually got. (the brains way of screaming for more drugs) I would compassionately warn anyone needing these types of drugs to be careful and try to use them as infrequently as possible as I have been there/done that and the withdrawals are HE-double hockey sticks. Also because of my diagnosis I am still prescribed opiates but exhaust all other ways to cope with pain before even thinking about taking one. Doctor says I am not an addict, but because of diagnosis will be dependent on pain medications the rest of my life so I try to NOT use them as much as possible. Having prescriptions at home prevents me from having to go to the emergency room for injections.</p></blockquote><p></p>
[QUOTE="2much2recover, post: 640592, member: 18366"] Sorry, when I wrote that I misread the poster and thought that is was an 18 year old being put on the Fentanyl patch. My diagnosis is CRPS/RSD i.e.Chronic Regional Pain Syndrome/Regional Sympathetic Dystrophy. Basically like MS it is a neurological disease, but instead of destroying muscles it destroys the nerve endings and leads to deterioration of the whole nervous system. It is a burning pain that feels like the effected areas are on (literally) fire. I like to inform people of this disease because it is not well known, has no known cure BUT effects 5% of people who injure a limb. I received the diagnosis after casting (fell off a ladder and shattered my wrist) Once diagnosed, this disease is so debilitating and so unlikely to be cured that it is at the top of the list for immediate permanent disability with SSDI. I wouldn't wish it on my worst enemy. Again I apologize, I thought we were talking about a teen being given the patch, and there are young people with this diagnosis as well who may need to use it. It is just my thoughts having been down a long trail both with the pain and the treatments. The problem with opiates for pain is they are meant to be for short term pain, not something with a lifetime painful diagnosis. What I found was the more opiates I took, the worse my pain actually got. (the brains way of screaming for more drugs) I would compassionately warn anyone needing these types of drugs to be careful and try to use them as infrequently as possible as I have been there/done that and the withdrawals are HE-double hockey sticks. Also because of my diagnosis I am still prescribed opiates but exhaust all other ways to cope with pain before even thinking about taking one. Doctor says I am not an addict, but because of diagnosis will be dependent on pain medications the rest of my life so I try to NOT use them as much as possible. Having prescriptions at home prevents me from having to go to the emergency room for injections. [/QUOTE]
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I hope I havent worried you guys with my absence but I should be mostly back now.
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