piglettsmummy
New Member
hey guys, my little girl is 21months old. when she was born we n=knew
something waswrong with her breathing...it was rather irregualr and looked like
she paused every so often. doctors said she was fine but when since the age if 3
months she has stopped breathing during thr night, at 10months doctors did a
sleep study and found out she has between 400-600central apneas a night lasting
about 10-20seconds. MRIscans came back clearn and a CCHS test was negative, she
was given caffeiene medicine failed to stimulate her central nervous system
(this is because they assume a chemoreceptor issue), oxygen lengthend her apneas
and our current treatment a bipap ventilator hasnt worked they way they hoped it
would and she has become dpenedent on it. they dont no what is wrong with her
she is perfectly healthy in every way she suffers regualr secondary lactoose
intolerant episodes but thats it! central sleep apnea has also been ruled out
they believe it could be immaturity of breathing control! i am not convinced. if
her new vent doesnt work they are halting all treatment and allowing her
breathing to continue how it is without any support! please please if anyone can
give ideas of treatment or conditions i would be eternally grateful!!!
thankyouu
something waswrong with her breathing...it was rather irregualr and looked like
she paused every so often. doctors said she was fine but when since the age if 3
months she has stopped breathing during thr night, at 10months doctors did a
sleep study and found out she has between 400-600central apneas a night lasting
about 10-20seconds. MRIscans came back clearn and a CCHS test was negative, she
was given caffeiene medicine failed to stimulate her central nervous system
(this is because they assume a chemoreceptor issue), oxygen lengthend her apneas
and our current treatment a bipap ventilator hasnt worked they way they hoped it
would and she has become dpenedent on it. they dont no what is wrong with her
she is perfectly healthy in every way she suffers regualr secondary lactoose
intolerant episodes but thats it! central sleep apnea has also been ruled out
they believe it could be immaturity of breathing control! i am not convinced. if
her new vent doesnt work they are halting all treatment and allowing her
breathing to continue how it is without any support! please please if anyone can
give ideas of treatment or conditions i would be eternally grateful!!!
thankyouu