timer lady
Queen of Hearts
Ladies, I'm overwhelmed - in tears here. No one understands situations with difficult children like you.
Fran, my goal at this point (& please forgive me I can't see beyond this) is to just survive. I can no longer find the hows, the help, etc. My brain injury has me losing so many skills.
I had a staffing for ktbug yesterday ~ suffice it to say it was more about our next steps than kt's current situation. We are all keeping in mind how children (not teens) children grieve. kt is grieving - acting out as a 5 or 6 year old. The pros are putting in double time to work on that. Integrated Listening Systems (ILS) hours have been doubled, almost tripled. PCA hours have gone to 8 daily during the summer months. I can, if I travel, take our PCA with us.
In home therapist will be here 3x weekly & dragging kt's cute little behind out of here ~ kicking & screaming if necessary. CADI manager approved PCA hours along with in home therapist to help.
In the meantime, CM is searching for a CADI waiver for me for help with my situation. Help with getting meals on the table, cleaning, etc. I guess (being called the most complex case in the county between tweedles dee & dum, husband's death & my health) the pros are beginning to see me crumble.
I just don't know what is next - what I do know is that our county isn't taking voluntary foster placement at this moment ~ I asked. Now if kt turns into a chronic runaway once more, or continues to self harm or act out in an uncontrollable manner that is another case. Honestly, she's not there yet - just building.
In home therapist will be here in an hour to take kt for individual counseling - she needs it desperately.
I have alone time (except for the construction crew) but I need to practice on the piano & the crew will be on the other end of the house. The team will be checking to be sure I get out of the house to do something for myself - meet a friend for lunch, something. I have my weekly "cripple"
golf league.
I need to complete the final issues of death & am hoping I can convince my dad to come up here for a week to help me. I need to get a hold of a lawyer about special needs trust, power of attorney both for me & to speak for me on behalf of my children should my health take a down turn. I need my dad or my older brother to help.
Fran, my goal at this point (& please forgive me I can't see beyond this) is to just survive. I can no longer find the hows, the help, etc. My brain injury has me losing so many skills.
I had a staffing for ktbug yesterday ~ suffice it to say it was more about our next steps than kt's current situation. We are all keeping in mind how children (not teens) children grieve. kt is grieving - acting out as a 5 or 6 year old. The pros are putting in double time to work on that. Integrated Listening Systems (ILS) hours have been doubled, almost tripled. PCA hours have gone to 8 daily during the summer months. I can, if I travel, take our PCA with us.
In home therapist will be here 3x weekly & dragging kt's cute little behind out of here ~ kicking & screaming if necessary. CADI manager approved PCA hours along with in home therapist to help.
In the meantime, CM is searching for a CADI waiver for me for help with my situation. Help with getting meals on the table, cleaning, etc. I guess (being called the most complex case in the county between tweedles dee & dum, husband's death & my health) the pros are beginning to see me crumble.
I just don't know what is next - what I do know is that our county isn't taking voluntary foster placement at this moment ~ I asked. Now if kt turns into a chronic runaway once more, or continues to self harm or act out in an uncontrollable manner that is another case. Honestly, she's not there yet - just building.
In home therapist will be here in an hour to take kt for individual counseling - she needs it desperately.
I have alone time (except for the construction crew) but I need to practice on the piano & the crew will be on the other end of the house. The team will be checking to be sure I get out of the house to do something for myself - meet a friend for lunch, something. I have my weekly "cripple"
golf league.I need to complete the final issues of death & am hoping I can convince my dad to come up here for a week to help me. I need to get a hold of a lawyer about special needs trust, power of attorney both for me & to speak for me on behalf of my children should my health take a down turn. I need my dad or my older brother to help.
