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<blockquote data-quote="looking4sanity" data-source="post: 54098" data-attributes="member: 3839"><p>HI, I just started this whole Autism Spectrum Disorder road. My son is 2.5 y/o. I thought he was an active/difficult child. Around 18 months I had some concerns and contacted the state early intervention--they said he was above average intelligence not to worry about his speech. They were orifessionals so I was ok. I voiced my concerns again to my pediatrician a few months later when he was getting bitten at daycare and was not crying (an autism trait...high pain tolerance). P doctor told me verbatim "he talks, look at him, don't worry about autism." Well my beautiful boy has had severe febrile seizures and was sent to Vanderbilt neurology for the seizure activity. Preliminary EEG was normal was neurologist said activity could be in the deep brain so I started asking about the weird behavior..repeating things 10-15 times. No being flexible withhis routine. Not playing with other children. Refusing o let daddy do anything for him, etc etc. So in the meantime he was seen by a behavioral psychologist bc we thought these meltdowns were behavioral (maybe ADHD). After the EEG the doctor toldme the beahior was NOT normal and sounded like Pervasive Developmental Disorder (PDD) not otherwise specified or possibly Aspergers. After I picked my jaw from the floor and fought back my tears like a champ I said ok what now. She said I will get in contact with some pplhere at Vanderbilt and we will get th ball rolling. They called today...they have no space for him!! My luck. However, I had to make somecoffee and suck it up and figure it out. We are military so I am alone 90% of the time. I had to get my head together or nothing would get done, ya know. I guss I am giving you some history to lead you to my question to your answer...wellmaybe I can answer it. Ok so I called several docs but they told me, "we do not see kids under 10." I thought f%$# what now. So I got smart and called thebehavioral psychologist my son had seen last weekend and told him the EEG results and told him what the neurologist told me and he gave me the name of a developmental pediatrician. Before this website I had never even heard that term before so I knew when he said it I needed to go there. He said this man came highly recommended so I felt very good about it. Healso told me not to use one person to give us a diagnosis which I have also read here on the site. He said he would be there with us all along the way. He also gave me a bit of info I was not aware of, he said that if you utilize the early intervention people they can pay for the evaluation if the facility requires you to do so. He was a wealth of info. Also, being a mother of 3 inmy heart I knew something was not right with this child. I knew somethingwas off. He is smart as a whip but something is not there. I would start journaling too. A friend of mine told me to video him too bc hedoes not always display the super quirly behaviors in front of other people. If you ever wanna chat feel free to im me on yahoo bc believe me I am looking for someone too. Good luck girl. </p><p>Crystal</p></blockquote><p></p>
[QUOTE="looking4sanity, post: 54098, member: 3839"] HI, I just started this whole Autism Spectrum Disorder road. My son is 2.5 y/o. I thought he was an active/difficult child. Around 18 months I had some concerns and contacted the state early intervention--they said he was above average intelligence not to worry about his speech. They were orifessionals so I was ok. I voiced my concerns again to my pediatrician a few months later when he was getting bitten at daycare and was not crying (an autism trait...high pain tolerance). P doctor told me verbatim "he talks, look at him, don't worry about autism." Well my beautiful boy has had severe febrile seizures and was sent to Vanderbilt neurology for the seizure activity. Preliminary EEG was normal was neurologist said activity could be in the deep brain so I started asking about the weird behavior..repeating things 10-15 times. No being flexible withhis routine. Not playing with other children. Refusing o let daddy do anything for him, etc etc. So in the meantime he was seen by a behavioral psychologist bc we thought these meltdowns were behavioral (maybe ADHD). After the EEG the doctor toldme the beahior was NOT normal and sounded like Pervasive Developmental Disorder (PDD) not otherwise specified or possibly Aspergers. After I picked my jaw from the floor and fought back my tears like a champ I said ok what now. She said I will get in contact with some pplhere at Vanderbilt and we will get th ball rolling. They called today...they have no space for him!! My luck. However, I had to make somecoffee and suck it up and figure it out. We are military so I am alone 90% of the time. I had to get my head together or nothing would get done, ya know. I guss I am giving you some history to lead you to my question to your answer...wellmaybe I can answer it. Ok so I called several docs but they told me, "we do not see kids under 10." I thought f%$# what now. So I got smart and called thebehavioral psychologist my son had seen last weekend and told him the EEG results and told him what the neurologist told me and he gave me the name of a developmental pediatrician. Before this website I had never even heard that term before so I knew when he said it I needed to go there. He said this man came highly recommended so I felt very good about it. Healso told me not to use one person to give us a diagnosis which I have also read here on the site. He said he would be there with us all along the way. He also gave me a bit of info I was not aware of, he said that if you utilize the early intervention people they can pay for the evaluation if the facility requires you to do so. He was a wealth of info. Also, being a mother of 3 inmy heart I knew something was not right with this child. I knew somethingwas off. He is smart as a whip but something is not there. I would start journaling too. A friend of mine told me to video him too bc hedoes not always display the super quirly behaviors in front of other people. If you ever wanna chat feel free to im me on yahoo bc believe me I am looking for someone too. Good luck girl. Crystal [/QUOTE]
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