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Just wondering, Have any of you....
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<blockquote data-quote="dreamer" data-source="post: 9434" data-attributes="member: 1697"><p>I am not sure, I got myself all mixed up, thinking about this thread and another thread with a subject "for those of you" </p><p>I am thinking parts of my post there in reply might be pertinant to this thread. Yeesh, LOL------</p><p></p><p>and I was thinking gosh.....people have been mentally ill since beginning of time.and some of them were NOT institutionalized......and SOME of them came to do GREAT things.......even without treatment agencies. </p><p></p><p>I learned something when I became a nurse and that is that professionals are still also simply human beings. If you wind up with professionals that are not so bright, or ones that bring too much personal baggage or biases into their work, they might not end up being quite the kind of help that is helpful? and help that worked for someone else still mgight not work for you and vice versa. </p><p>What worked for my husband did NOT work for my dtr. what worked for me did not work for my husband. One of husband docs was doing good with husband for a while, but yikes, when the agency was in need of more docs, and they gave me husband doctor for a short time- YUK.it did NOT work. </p><p></p><p>something else i have thought a lot about over the last 15 years.....the whole philosphies about some diagnosis'es has changed dramatically and also back and forth 18 years ago, and 15 years ago, not one doctor here here I am WOULD diagnosis a child with bipolar, not AT ALL. We were told time and again over and over it was absolutely parenting and could not be, no way could it be something wrong with the child. </p><p>Ah heck, before difficult child was 5 we were told it could not even be ADD or ADHD till she turned 7, and could not be bipolar till she turned 18. </p><p>We were also told stims absolutely could NOT make an ADD or ADHD child more hyper when she turned 8. </p><p>AT 10 we were told absolutely not, no way did paxil or zoloft make her decide to kill herself. DOcs wanted to know what WE did to make her want to kill herself, and were convinced we could not have been giving her her medications. </p><p></p><p>at 13 they finally conceded that yes, OK she really WAS bipolar.....</p><p>By then a few kids in our area finally began to get a BiPolar (BP) diagnosis. BUT you see.....she was 13 then and she is 18 now......and it was ONLY then that the docs and therapists and everyone else treated it as bipolar. SOoooooo you see- it has only been 5 years since here around me anyone has been doing anything with bipolar in mind. ANd that was the beginnning.......so-------how many different things have they been able to yet try? How do they yet know what has worked and what hasn't? They really have not had that much time to be able to say "this works" "this doesn't" when you are talking about treating the problem. </p><p>ANd when you add in that there were so many many negative results of so many many medications trialed------we have simply been guinea pigs and so far it has all been mostly trial and error and guesswork. And since we DID follow the professional route and do what they said, how can we possibly know how it would have worked out if we had NOT come thru our journey with the professionals? BUT in my humble opinion, doing the journey WITH the professionals did not seem to get us to any much better place so far. I simply do not know how it would have been now if we had not used the agencies and medications etc. </p><p>But I DO know that right now......my dtr is better than she has ever been- no, she is not perfect, no she is not "normal" BUT she is who she is......and we work with that. My husband is not normal by any stretch of the imagination, but with early alzhiemers and brain lesions/tumors, and his age? I give up. we simply live our life around him and love him anyway and deal with that as best we can. </p><p>I also know something else- My son asked his eye surgeon last MARCH to remove his eye if it was not going to be functional and if it was going to be so ugly......my son wanted it removed so my son could MOVE ON and LIVE his life. My son at age 10 thought this up all on his own-----he said if it is going to BE useless, then WHY let it rob me of my life? Well, his docs refused to remove the darned thing and here we are almost a full year later STILL going back and forth 2 nites and 3 days every week to the dang university hospital, living in RMH.....and there is no hope of vision or a better looking eye......just endless ongoing therapies and tests and consults etc.......5 hours from home......</p><p>so here we are still wrapped up involved with treatments and therapies and the docs --it is they who cannot let go. My now 11 yr old son now asks them every visit- do you know what you are ding, and why are you doing it? MY life is focused on one darn useless eye......when I COULD be off learning how to be a part of the world, here I am stuck looking at you guys while you all "study" me. </p><p>Recently my oldest difficult child looked at my son and said...ya know? THats how "I" felt. ALl those years with all the agencies and careplans etc.......so busy doing that, they forgot to let me LIVE. Oh they said they were trying to "teach me" but when and where did I ever get to use what they said they were trying to teach me? </p><p></p><p>And what I finally decided was "the real world" "the outside world" they do not seem to examine people for flaws anywhere near as hard as tdocs and psychiatrists and psychiatric units and ED BD classrooms do. </p><p></p><p>I don't know. I sometimes think the docs and agencies etc are too hyperfocused.</p></blockquote><p></p>
[QUOTE="dreamer, post: 9434, member: 1697"] I am not sure, I got myself all mixed up, thinking about this thread and another thread with a subject "for those of you" I am thinking parts of my post there in reply might be pertinant to this thread. Yeesh, LOL------ and I was thinking gosh.....people have been mentally ill since beginning of time.and some of them were NOT institutionalized......and SOME of them came to do GREAT things.......even without treatment agencies. I learned something when I became a nurse and that is that professionals are still also simply human beings. If you wind up with professionals that are not so bright, or ones that bring too much personal baggage or biases into their work, they might not end up being quite the kind of help that is helpful? and help that worked for someone else still mgight not work for you and vice versa. What worked for my husband did NOT work for my dtr. what worked for me did not work for my husband. One of husband docs was doing good with husband for a while, but yikes, when the agency was in need of more docs, and they gave me husband doctor for a short time- YUK.it did NOT work. something else i have thought a lot about over the last 15 years.....the whole philosphies about some diagnosis'es has changed dramatically and also back and forth 18 years ago, and 15 years ago, not one doctor here here I am WOULD diagnosis a child with bipolar, not AT ALL. We were told time and again over and over it was absolutely parenting and could not be, no way could it be something wrong with the child. Ah heck, before difficult child was 5 we were told it could not even be ADD or ADHD till she turned 7, and could not be bipolar till she turned 18. We were also told stims absolutely could NOT make an ADD or ADHD child more hyper when she turned 8. AT 10 we were told absolutely not, no way did paxil or zoloft make her decide to kill herself. DOcs wanted to know what WE did to make her want to kill herself, and were convinced we could not have been giving her her medications. at 13 they finally conceded that yes, OK she really WAS bipolar..... By then a few kids in our area finally began to get a BiPolar (BP) diagnosis. BUT you see.....she was 13 then and she is 18 now......and it was ONLY then that the docs and therapists and everyone else treated it as bipolar. SOoooooo you see- it has only been 5 years since here around me anyone has been doing anything with bipolar in mind. ANd that was the beginnning.......so-------how many different things have they been able to yet try? How do they yet know what has worked and what hasn't? They really have not had that much time to be able to say "this works" "this doesn't" when you are talking about treating the problem. ANd when you add in that there were so many many negative results of so many many medications trialed------we have simply been guinea pigs and so far it has all been mostly trial and error and guesswork. And since we DID follow the professional route and do what they said, how can we possibly know how it would have worked out if we had NOT come thru our journey with the professionals? BUT in my humble opinion, doing the journey WITH the professionals did not seem to get us to any much better place so far. I simply do not know how it would have been now if we had not used the agencies and medications etc. But I DO know that right now......my dtr is better than she has ever been- no, she is not perfect, no she is not "normal" BUT she is who she is......and we work with that. My husband is not normal by any stretch of the imagination, but with early alzhiemers and brain lesions/tumors, and his age? I give up. we simply live our life around him and love him anyway and deal with that as best we can. I also know something else- My son asked his eye surgeon last MARCH to remove his eye if it was not going to be functional and if it was going to be so ugly......my son wanted it removed so my son could MOVE ON and LIVE his life. My son at age 10 thought this up all on his own-----he said if it is going to BE useless, then WHY let it rob me of my life? Well, his docs refused to remove the darned thing and here we are almost a full year later STILL going back and forth 2 nites and 3 days every week to the dang university hospital, living in RMH.....and there is no hope of vision or a better looking eye......just endless ongoing therapies and tests and consults etc.......5 hours from home...... so here we are still wrapped up involved with treatments and therapies and the docs --it is they who cannot let go. My now 11 yr old son now asks them every visit- do you know what you are ding, and why are you doing it? MY life is focused on one darn useless eye......when I COULD be off learning how to be a part of the world, here I am stuck looking at you guys while you all "study" me. Recently my oldest difficult child looked at my son and said...ya know? THats how "I" felt. ALl those years with all the agencies and careplans etc.......so busy doing that, they forgot to let me LIVE. Oh they said they were trying to "teach me" but when and where did I ever get to use what they said they were trying to teach me? And what I finally decided was "the real world" "the outside world" they do not seem to examine people for flaws anywhere near as hard as tdocs and psychiatrists and psychiatric units and ED BD classrooms do. I don't know. I sometimes think the docs and agencies etc are too hyperfocused. [/QUOTE]
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