totoro
Mom? What's a difficult child?
it has been over a month. We did it with the support of psychiatrist, therapist, School Nurse and the School plus her Teacher.
She has been on an AP since December of 2006. She has developed severe or worsening drooling, tongue thrust, tics, movement issues, internal agitation, inability to sit still, weight gain that we have had to to monitor and constantly regulate.
Many other issues that I can't think off of the top of my head. Of course the doctor's poo-poo'd these things for the longest time.
But I journal, I keep track.
Our current psychiatrist said, "well lets go for it and see"
We also just wanted to see what she is like now, who she is, what her actual symptoms are, what we are actually treating?
She has just not gotten better and our gut has told us she needs to be seen without medications because she has gotten older and changed.
Everyone has been wonderful.
The first week was great!
She started going back to herself after that, we knew she would, but you know that hopeful feeling?
She has changed though so we do not regret doing this and everyone still agrees.
Her hallucinations have decreased almost to nothing!
Her delusional state has changed also! All of the side affects from all of the various AP's have slowly gone away. Or decreased
I don't know if the Hallucinations and Delusional state has just changed due to her Mental Illness just changing with age? Could be.
She is raging and violent. She is unfocused. She is emotionally labile. Giddy, up and down. He psychiatrist felt our wonderful support system and full time care at home was better than doing this in an Residential Treatment Center (RTC) or hospital.
This past week we trialed Focalin, it really helped a lot, but it caused sleep issues, we will try it again once she is at a therapeutic level of a MS.
We did it maybe to help while we titrated up on a MS.
So now we are titrating up on Lamictal, VERY slow, our psychiatrist is cautious, 5mg 2 weeks, 10 mg 2 weeks and then evaluation.
I don't think any other Teacher or School would have let her stay in the class with her issues. We are so lucky.
Her Teacher told me she will do what ever it takes to get her through this and to make it so husband and I can have an OK night when she gets home.
She has no homework, Teachers decision. They brought in an aide. None of this is on the IEP, just to help for now.
She asked to go back on medications. She is afraid of what is going on in her head, the chaos. She does not like being out of control.
I know some feel like AP's are the only answer, but she has done most. I will not compromise her health and mind more. Sometimes a medication class just doesn't work for someone. Her therapist who has her PHD and specialized in Psycho-Pharmacology is convinced she needs to be off of AP's also.
I am not willing to keep messing with my 8yo in this way. She sat and drooled or paced ticcing' all over the place... not OK. Not adding Congentin to fix a horrible side affect and then add a weight pill on top of it.
Wouldn't do it to myself, why would I do it to my child?
Sorry this is way too long as usual!
Things are not good but we have answers and a new direction. We can't go anywhere or do anything at this point. Little tiny outings very close to home.
But this is my fight and I am willing to do what ever it takes to help my kid.
She has been on an AP since December of 2006. She has developed severe or worsening drooling, tongue thrust, tics, movement issues, internal agitation, inability to sit still, weight gain that we have had to to monitor and constantly regulate.
Many other issues that I can't think off of the top of my head. Of course the doctor's poo-poo'd these things for the longest time.
But I journal, I keep track.
Our current psychiatrist said, "well lets go for it and see"
We also just wanted to see what she is like now, who she is, what her actual symptoms are, what we are actually treating?
She has just not gotten better and our gut has told us she needs to be seen without medications because she has gotten older and changed.
Everyone has been wonderful.
The first week was great!
She started going back to herself after that, we knew she would, but you know that hopeful feeling?
She has changed though so we do not regret doing this and everyone still agrees.
Her hallucinations have decreased almost to nothing!
Her delusional state has changed also! All of the side affects from all of the various AP's have slowly gone away. Or decreased
I don't know if the Hallucinations and Delusional state has just changed due to her Mental Illness just changing with age? Could be.
She is raging and violent. She is unfocused. She is emotionally labile. Giddy, up and down. He psychiatrist felt our wonderful support system and full time care at home was better than doing this in an Residential Treatment Center (RTC) or hospital.
This past week we trialed Focalin, it really helped a lot, but it caused sleep issues, we will try it again once she is at a therapeutic level of a MS.
We did it maybe to help while we titrated up on a MS.
So now we are titrating up on Lamictal, VERY slow, our psychiatrist is cautious, 5mg 2 weeks, 10 mg 2 weeks and then evaluation.
I don't think any other Teacher or School would have let her stay in the class with her issues. We are so lucky.
Her Teacher told me she will do what ever it takes to get her through this and to make it so husband and I can have an OK night when she gets home.
She has no homework, Teachers decision. They brought in an aide. None of this is on the IEP, just to help for now.
She asked to go back on medications. She is afraid of what is going on in her head, the chaos. She does not like being out of control.
I know some feel like AP's are the only answer, but she has done most. I will not compromise her health and mind more. Sometimes a medication class just doesn't work for someone. Her therapist who has her PHD and specialized in Psycho-Pharmacology is convinced she needs to be off of AP's also.
I am not willing to keep messing with my 8yo in this way. She sat and drooled or paced ticcing' all over the place... not OK. Not adding Congentin to fix a horrible side affect and then add a weight pill on top of it.
Wouldn't do it to myself, why would I do it to my child?
Sorry this is way too long as usual!
Things are not good but we have answers and a new direction. We can't go anywhere or do anything at this point. Little tiny outings very close to home.
But this is my fight and I am willing to do what ever it takes to help my kid.
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