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lamictal update and question......
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<blockquote data-quote="Shari" data-source="post: 423404" data-attributes="member: 1848"><p>I didn't really mean a chart for just sleep, just using sleep as an example. </p><p> </p><p>For years, I kept a daily log of Wee. It was a regular size calendar, and I'd just note on it if he slept or not (he didn't sleep for years, either - as in, DID NOT SLEEP), if his day was "typical" (for him), calm (for him), or over the top (even for him - not talking compared to typicals here). I also noted his level of physical aggression typical, less, or more. And if there was some "extenuating circumstance" or something unusual that happened that day, I'd note that, too. But the point was, it was all brief. I printed my posts here and my emails to grandma and school, and kept those in a binder, so I could go and reference more info if I needed about what else was going on around any given time. </p><p> </p><p>We hoped to see a pattern of behavior, and we did not, other than to confirm he is seasonal. However, he'd had a neuro appointment in Jan, and they did a depakote level check, and it was low, so we increased his Depakote to what should be a therapeutic level. A month or so later, he went all ape on us again...and I got to digging thru the chart. And because of the chart, we were able to go back and see that many of his really violent outbursts coincided with recent increases in his Depakote. And when I asked the doctor to check, she saw the pattern, also, and I learned that Depakote, when given in too high doses, can cause mania, aggression, etc. And what is considered therapeutic to most people, is too high for Wee. We cut back his dose, and I think he's still on less than half of what is considered "normal" for mood stabilization, but it works for him as much as anything has.</p><p> </p><p> </p><p>We also were able to use the chart to show docs, therapists, etc that we weren't screwing around. When i walked into juvie this winter with 4-3" binders and started throwing reports, evaluations, recommendations, and this kind of info at them, they realized real quick that they weren't dealing with a parent who wasn't involved. not that it will ever save my butt again, but it sure did that time. And when they said "try this medication" I could pull out the calendar and say "this is how he was on that one....not much different, huh?" </p><p> </p><p>I really should be continuing it, but I've gotten a tad lazy. It will bite me in the butt, I'm sure.</p></blockquote><p></p>
[QUOTE="Shari, post: 423404, member: 1848"] I didn't really mean a chart for just sleep, just using sleep as an example. For years, I kept a daily log of Wee. It was a regular size calendar, and I'd just note on it if he slept or not (he didn't sleep for years, either - as in, DID NOT SLEEP), if his day was "typical" (for him), calm (for him), or over the top (even for him - not talking compared to typicals here). I also noted his level of physical aggression typical, less, or more. And if there was some "extenuating circumstance" or something unusual that happened that day, I'd note that, too. But the point was, it was all brief. I printed my posts here and my emails to grandma and school, and kept those in a binder, so I could go and reference more info if I needed about what else was going on around any given time. We hoped to see a pattern of behavior, and we did not, other than to confirm he is seasonal. However, he'd had a neuro appointment in Jan, and they did a depakote level check, and it was low, so we increased his Depakote to what should be a therapeutic level. A month or so later, he went all ape on us again...and I got to digging thru the chart. And because of the chart, we were able to go back and see that many of his really violent outbursts coincided with recent increases in his Depakote. And when I asked the doctor to check, she saw the pattern, also, and I learned that Depakote, when given in too high doses, can cause mania, aggression, etc. And what is considered therapeutic to most people, is too high for Wee. We cut back his dose, and I think he's still on less than half of what is considered "normal" for mood stabilization, but it works for him as much as anything has. We also were able to use the chart to show docs, therapists, etc that we weren't screwing around. When i walked into juvie this winter with 4-3" binders and started throwing reports, evaluations, recommendations, and this kind of info at them, they realized real quick that they weren't dealing with a parent who wasn't involved. not that it will ever save my butt again, but it sure did that time. And when they said "try this medication" I could pull out the calendar and say "this is how he was on that one....not much different, huh?" I really should be continuing it, but I've gotten a tad lazy. It will bite me in the butt, I'm sure. [/QUOTE]
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