Lyme Disease

Discussion in 'The Watercooler' started by Josie, Feb 6, 2008.

  1. Josie

    Josie Active Member

    Does anyone here have a Lyme Disease success story? My daughter has been diagnosis'ed with Lyme and has been at home in her bed for months. The Lyme boards are full of people who have been sick for years and are still housebound. I'm thinking the ones that get better quickly enough don't stay on those boards. A couple of people from the East coast have told husband that they knew someone who had Lyme and were sick for 6 months and now they are fine. We are in Texas where we supposedly don't have Lyme Disease so I don't know anyone who has been through this.
  2. Lothlorien

    Lothlorien Active Member

    It depends on how early it was caught. In the Notheast, tests are run early.

    My parent's neighbor had it for a while and has some permanent neurological problems because of it, but she's certainly functional. She works and has a full life.

    How long has she had this? Is she on the antibiotics for it and how long has she been on them.
  3. Josie

    Josie Active Member

    She's been really sick with it for about 4 months. She's probably had it 3 1/2 years. She had a bullseye rash then. I didn't know to take her to the doctor until it was gone and then the nurse said they wouldn't do anything without seeing the rash and we didn't have Lyme Disease here.

    She started on the antibiotics on 1/23. Then she had to stop for a few days and start on a lower dose. This is kind of alarming to me because I'm not sure she is on a high enough dose. We are going to a Lyme specialist. We are seeing a different Lyme specialist on 2/27 so I will get a second opinion about the dose then.
  4. SRL

    SRL Active Member

    One of my best friends has Lyme and it wasn't caught for 1 1/2 and it's been quite serious. There is no predicting the course of this disease: some clear up with antibiotics, some with other treatments, sometimes it goes into remission, sometimes it doesn't go away, and sometimes it goes away when there's no clear explanation due to timing or treatment.

    My friend found that she has to limit her time at the Lyme sites because it is so depressing and opinions are so strong as to what helps/what doesn't. As you've probably seen treatments range from convention medicine all the way to some alternative many of us would think are pretty far out there. Visit the doctor, do your research, choose a course, dose liberally with prayer (or whatever) and go with it. I know it's heartwrenching not to have firm answers but very little is know.

    This would be a good time to mention to people that any time you have an unexplained rash, take a picture even if you don't get it checked out. Many doctors won't even recognize the rash. And anyone who has unexplained neurological symptoms should have complete blood work done including for Lyme. My friend's never had a rash.
  5. DDD

    DDD Well-Known Member

    I think you are very wise to seek a second opinion. My friend got Lyme's around eight years ago and was under the weather for only a few months. We live in a small community and Doris (about my age and with a similar personality, lol) called the CDC in Atlanta and arranged for a conference call when she went back to her local MD. The local doctor
    had never treated it before and was "embarrassed" that a patient called in a national then knew she was on the best path
    for recovery. I'll be waiting to read an update after your appointment. Good luck. DDD
  6. Lothlorien

    Lothlorien Active Member

    great idea to go to a specialist.

    I will agree with SRL about taking a picture of unexplained rashes....that's also a great idea.

    Lyme's can take on many forms and/or strange symptoms, from flu like, fever, malaise etc or nothing at all. For some, it doesn't go any further and other's can develop into more serious unexplainable neurological problems (which for a long time, were thought to be a psychological problem, since docs couldn't explain it) I would second SRL's opinion about getting tested, even if you don't live in an area that's common for deer ticks.

    Fairlyoddparent.....I'd want to smack that nurse that told you that!
  7. Josie

    Josie Active Member

    The really sad part is that I'm not sure they agree it is Lyme Disease even now so I think they would still tell people this.

    Even though my child has been basically out of school for 4 months, they weren't very helpful about finding out what was going on. I think they think it was/is all mental.