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Meeting with Speech, Occupational Therapist (OT) and PT
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<blockquote data-quote="Dara" data-source="post: 56864" data-attributes="member: 3572"><p>Sammy has always been able to get his point across even with no language. Now he is speaking in small phrases. We are working on cleaning it up so we can understand better and putting more words together. When he speaks, in my mind, I hear the whole sentence he is trying to say. If that makes any sense...</p><p>I would not classify his language delays as severe. They are certainly delayed. He is indeed manipulative. I know that people do not want to believe me in saying this. I know that everyone is telling me here that i dont know what I am talking about. But, everyone who knows Sammy and who has evaluated him all agree that he is manipulative and calculating. These are very basic moves and tactics. He is not sitting somewhere in a lab plotting his next move. </p><p>Sammy DOES NOT have sensory issues. He has been tested and does not have sensory problems. He is sensitive to sounds and sights around him. However, he likes loud noises. The louder the better. He likes to do things on his terms. He doesnt want to touch something you say to touch. However, on his own terms, he will go touch whatever it is. </p><p>As for the therapy, Sammy is resistant to doing what you ask of him. He will scream and tantrum and cry. These therapists at this place we went to said that when a child acts that way, they will put him in the swing for 30 minutes. The session is only 50 minutes. So, if Sammy is in the swing for 30 minutes and screams for about 5 or 10 minutes, when do they teach him how to use the spoon properly or how to use the fork? After the first session, Sammy will know that all he has to do is scream to get out of what they are trying to make him do. This is just fact. It is the way he is. If you dont make him do it he wont. He will try and find any way he can to stop you from doing the task at hand. I have watched him do it for 2 years. Luckily, his ABA therapist doesnt fall for it. </p><p>We are working on finding the right team of people to work with Sammy. We are not saying forget this or that. We are looking for people who will be able to handle the tantrums while trying to teach him the things he needs to know. Finding the right place for help is a very challanging and costly task. We cant afford to keep testing him here and there. Our inusrance doesnt cover any bit of it. We pay in full for every therapy and dr and test that we do. In 3 years we have paid almost 50 thousand dollars for all that we have done. At this point we have to look at all angles and see who we can afford and who will work best with Sammy.</p></blockquote><p></p>
[QUOTE="Dara, post: 56864, member: 3572"] Sammy has always been able to get his point across even with no language. Now he is speaking in small phrases. We are working on cleaning it up so we can understand better and putting more words together. When he speaks, in my mind, I hear the whole sentence he is trying to say. If that makes any sense... I would not classify his language delays as severe. They are certainly delayed. He is indeed manipulative. I know that people do not want to believe me in saying this. I know that everyone is telling me here that i dont know what I am talking about. But, everyone who knows Sammy and who has evaluated him all agree that he is manipulative and calculating. These are very basic moves and tactics. He is not sitting somewhere in a lab plotting his next move. Sammy DOES NOT have sensory issues. He has been tested and does not have sensory problems. He is sensitive to sounds and sights around him. However, he likes loud noises. The louder the better. He likes to do things on his terms. He doesnt want to touch something you say to touch. However, on his own terms, he will go touch whatever it is. As for the therapy, Sammy is resistant to doing what you ask of him. He will scream and tantrum and cry. These therapists at this place we went to said that when a child acts that way, they will put him in the swing for 30 minutes. The session is only 50 minutes. So, if Sammy is in the swing for 30 minutes and screams for about 5 or 10 minutes, when do they teach him how to use the spoon properly or how to use the fork? After the first session, Sammy will know that all he has to do is scream to get out of what they are trying to make him do. This is just fact. It is the way he is. If you dont make him do it he wont. He will try and find any way he can to stop you from doing the task at hand. I have watched him do it for 2 years. Luckily, his ABA therapist doesnt fall for it. We are working on finding the right team of people to work with Sammy. We are not saying forget this or that. We are looking for people who will be able to handle the tantrums while trying to teach him the things he needs to know. Finding the right place for help is a very challanging and costly task. We cant afford to keep testing him here and there. Our inusrance doesnt cover any bit of it. We pay in full for every therapy and dr and test that we do. In 3 years we have paid almost 50 thousand dollars for all that we have done. At this point we have to look at all angles and see who we can afford and who will work best with Sammy. [/QUOTE]
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