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My son was diagnosed with idiopathic chondrolysis/New posts!
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<blockquote data-quote="Lorrineperu" data-source="post: 636352" data-attributes="member: 16975"><p>Hello Carolyn,</p><p></p><p>I'm also in Canada, Toronto to be exact!</p><p></p><p>Your story sounds very similar to mine. My daughter Katie was finally diagnosed with ICH only it took them a year and a half to figure it out. It started with limping, finally after months of trying to get her seen I emailed the head of orthopedics at Sick Kids and he got the ball rolling. The same day she was seen I was told she had a SCFE. They did surgery and pinned it the next morning. We were told in 6 weeks she would be better. But that didn't happen. When she didn't improve they referred us to Rheumatology. She spent a year of trying so many different drugs and nothing worked. Finally they did a biopsy of what little was left of her cartilage and discovered no inflammation. She referred us back to Orthopedics and at that time we were given the diagnosis of Idiopathic Chondrolysis. During this year and a half it developed in her other hip too and so both hips had damage beyond repair. That diagnosis came a year ago approx. </p><p></p><p>Last May 27th my Katie had a left total hip replacement. They brought a adult hip replacement specialist from St. Mikes to work with Dr. Wedge and together they replaced her hip. It was instant pain relief, well except for the surgical pain but that got better quickly. She did however develop a severe DVT in her right leg that sent us back to Sick Kids from Holland Bloorview rehab, and she had to have another surgery but since then that is much improved.</p><p></p><p>On November 3rd she is scheduled to have her right hip replaced. </p><p></p><p>Katie turned 13 in August. It all started 3 years ago Christmas time. Although thinking back the 6 months prior to that she had showed some subtle symptoms that I felt was probably just sore muscles from taekwondo etc. It wasnt tho...</p><p></p><p>Who is your doctors at Sick Kids? </p><p></p><p>I did indeed take Katie out of school because of pain. And I got very insistent with her doctors.</p><p></p><p>Dr. John Wedge at Sick kids has seen about 10 cases of this, he probably has the most experience. He's a little gruff but he knows his stuff!</p><p>Keeping weight off but also mobile is good, swimming is great. I would get a consult with dr. wedge.</p></blockquote><p></p>
[QUOTE="Lorrineperu, post: 636352, member: 16975"] Hello Carolyn, I'm also in Canada, Toronto to be exact! Your story sounds very similar to mine. My daughter Katie was finally diagnosed with ICH only it took them a year and a half to figure it out. It started with limping, finally after months of trying to get her seen I emailed the head of orthopedics at Sick Kids and he got the ball rolling. The same day she was seen I was told she had a SCFE. They did surgery and pinned it the next morning. We were told in 6 weeks she would be better. But that didn't happen. When she didn't improve they referred us to Rheumatology. She spent a year of trying so many different drugs and nothing worked. Finally they did a biopsy of what little was left of her cartilage and discovered no inflammation. She referred us back to Orthopedics and at that time we were given the diagnosis of Idiopathic Chondrolysis. During this year and a half it developed in her other hip too and so both hips had damage beyond repair. That diagnosis came a year ago approx. Last May 27th my Katie had a left total hip replacement. They brought a adult hip replacement specialist from St. Mikes to work with Dr. Wedge and together they replaced her hip. It was instant pain relief, well except for the surgical pain but that got better quickly. She did however develop a severe DVT in her right leg that sent us back to Sick Kids from Holland Bloorview rehab, and she had to have another surgery but since then that is much improved. On November 3rd she is scheduled to have her right hip replaced. Katie turned 13 in August. It all started 3 years ago Christmas time. Although thinking back the 6 months prior to that she had showed some subtle symptoms that I felt was probably just sore muscles from taekwondo etc. It wasnt tho... Who is your doctors at Sick Kids? I did indeed take Katie out of school because of pain. And I got very insistent with her doctors. Dr. John Wedge at Sick kids has seen about 10 cases of this, he probably has the most experience. He's a little gruff but he knows his stuff! Keeping weight off but also mobile is good, swimming is great. I would get a consult with dr. wedge. [/QUOTE]
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