Jess and I were talking just now and I was trying to help massage away some pretty nasty muscle spasms in her arms and hands. She is having a bad day and is hurting a lot, so I was trying to help distract her and to loosen up the worst of the muscles. These are not from overuse, the spasms come in just a few seconds time with no warning and the muscles go from normal to rock hard to the point that she can't straighten her fingers. She either has to use her other hand or she has to have someone help her straightne them - and it is not easy. So I was looking at her hand as I worked on it.
I looked up because her face moved in a strange way - saw something that caught my attention from the corner of my eye and it pulled my attention from her hand to her face. She was thrusting her tongue out enough to push her lips out but not to stick it out of her mouth, her mouth wasn't totally closed. It is not something she does normally, not a habit or symptom seen before.
Her eyes were rolling up in her head, eyelids flickering - just as I saw the whites of her eyes I could tell the eye was moving back and forth quickly but could only see the very bottom of her iris and I said her name and she sort of snapped out of it and had no idea what was going on. She said that she felt a huge wave of pain, worse than she was already in, and felt almost like she was falling asleep. Was not hot or cold, didn't smell anything funny or have a strange taste in her mouth. She wasn't even super tired before/after, just that all of a sudden falling asleep feeling.
While she felt like she was falling asleep, this was not like any falling asleep I have ever seen.
What type of seizure would cause her eyes to roll up like that, the tongue thrusting, the sudden falling asleep feeling? I don't know if it is related to the pain and muscle spasms or not. Sadly, the muscle problems have happened before, way more than once, but never did the other stuff happen.
No recent medication changes have happened so t couldn't be because of that. She had an eeg done on Mon but I don't think they found anything - tech made a comment to herself that I overheard and basically she wished she had seen something, so it makes me think it didn't catch anything. This practice does seem to know taht just because an eeg didn't catch it this time doesn't mean it isn't happening - eeg tech told us this and so did the nurse who took a brief medication history over the phone.
We see the doctor on the 11th of Oct, but I am going to call today - both the neuro and the reg doctor.
If anyone has a clue of what type of seizure could cause that, please let me know. not so much cause the muscle spasms, but cause the eyes rolling up and the tongue thrusting, etc...
Thanks.
I looked up because her face moved in a strange way - saw something that caught my attention from the corner of my eye and it pulled my attention from her hand to her face. She was thrusting her tongue out enough to push her lips out but not to stick it out of her mouth, her mouth wasn't totally closed. It is not something she does normally, not a habit or symptom seen before.
Her eyes were rolling up in her head, eyelids flickering - just as I saw the whites of her eyes I could tell the eye was moving back and forth quickly but could only see the very bottom of her iris and I said her name and she sort of snapped out of it and had no idea what was going on. She said that she felt a huge wave of pain, worse than she was already in, and felt almost like she was falling asleep. Was not hot or cold, didn't smell anything funny or have a strange taste in her mouth. She wasn't even super tired before/after, just that all of a sudden falling asleep feeling.
While she felt like she was falling asleep, this was not like any falling asleep I have ever seen.
What type of seizure would cause her eyes to roll up like that, the tongue thrusting, the sudden falling asleep feeling? I don't know if it is related to the pain and muscle spasms or not. Sadly, the muscle problems have happened before, way more than once, but never did the other stuff happen.
No recent medication changes have happened so t couldn't be because of that. She had an eeg done on Mon but I don't think they found anything - tech made a comment to herself that I overheard and basically she wished she had seen something, so it makes me think it didn't catch anything. This practice does seem to know taht just because an eeg didn't catch it this time doesn't mean it isn't happening - eeg tech told us this and so did the nurse who took a brief medication history over the phone.
We see the doctor on the 11th of Oct, but I am going to call today - both the neuro and the reg doctor.
If anyone has a clue of what type of seizure could cause that, please let me know. not so much cause the muscle spasms, but cause the eyes rolling up and the tongue thrusting, etc...
Thanks.