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New here. How do y'all cope with this?
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<blockquote data-quote="Karen &amp; Crew" data-source="post: 23359" data-attributes="member: 3504"><p>Smallworld,</p><p></p><p>He's had neurological evaluations and psychiatric evaluations. I don't know if any of them were combined into a neuropsychiatric evaluation. </p><p></p><p>We started with a developmental pediatrician who specializes in ADHD & "school problems". That was April '05. By July '05 she had referred us to a neurologist for suspected tic disorder and/or Tourettes. Ry's appointment was early September. Along came Katrina and our 4-month exile from NOLA. We did see a neuro while in BFE, FL but he was a real nut case. He put Ry on 40 mg of Strattera and 200 mg of Neurontin. When the Strattera wasn't working in school he said "so bump him up to 80 mg". That never happened because our cherished developmentalist had warned that 40 mg was really the highest he could go.</p><p></p><p>We finally were able to move home December '05 and got back in with the developmentalist. Between January and February we saw 2 different neurologists. The first worked in the same developmentalist. He told us, and I quote, "He has behavior problems. When he acts out just lock him in his room until he repents of his sins. It'll stop eventually." I have no clue what he said after that as I quit listening and within 10 minutes took Ry and left. We saw a 2nd pedi neuro who confirmed tic disorder with a strong suspicion of Tourette's based on previous history.</p><p></p><p>During this time (January - March) we were also seeing a pediatric psychologist for anger management and depression issues as Ry got into this "I wish I were dead, I'm just going to kill myself, I'd be better off dead" phase! At 6 years old!</p><p></p><p>By May our developmentalist who specializes in ADHD and school problems said that Ry's problems were beyond the scope of her expertise and referred us to a psychiatrist. The first shrink we saw suffers from Obsessive Compulsive Disorder (OCD) I believe. Ry familiarizes himself to his surroundings by looking around and touching things. This shrink had a cow when Ry touched a book or a bookend and fussed. I glared at him and he quickly apologized to Ry but the damage had been done. Ry sat in a corner facing away from the doctor and stared at the ceiling refusing to speak the entire visit. The shrink told me he had ADHD and more than likely also had Asperger's but did NOT have tic disorder or Tourette's. We saw this shrink a couple of more times but he wanted Ry to stay on the Tenex which was causing him to sleep through the day and night. He told me we couldn't really do anything with him until he started failing or becoming violent in school. The next week he slapped someone for invading his space during computer class.</p><p></p><p>Off we went back to the developmentalist. She put him on Concerta and referred us to another psychiatric facility. This one was not covered by insurance but at this point I just don't really care. We've been seeing this particular doctor since September and she's amazing. She seems genuinely concerned. We saw an associate of her's for 2 months while she was on maternity leave and at that time Ry was put on Periactin to increase his appetite because he had dropped from a bit over 80 pounds when school started in August to just under 60 at his November appointment.</p><p></p><p>We've just started working on the food issues at his last appointment a month ago. I spoke with the doctor last Monday and told her how he would gag until he vomited at all new foods. I'll ask her about an evaluation by an occupational therapist. I suggested this to our pediatrician almost a year ago and he said an Occupational Therapist (OT) wouldn't do us any good. I also don't know if Ry's food aversions are necessarily a sensory issue. He was a pretty good eater, although slightly picky, until about 13 or 14 months. It was at that time a new teacher was placed in his daycare class. She used to take his food away from him for playing with it. He's always had Obsessive Compulsive Disorder (OCD) ever since he was an infant and she considered taking 1 bite from each toast stick making sure they were the same size after each bite to be playing with his food and she'd take it away from him and throw it out to the squirrels. She also physically abused him (I pulled him from the school and filed criminal charges immediately) and he seemed to get a lot worse after that.</p><p></p><p>OK, so much for a "quick reply". Its late and my coffee has me wired.</p></blockquote><p></p>
[QUOTE="Karen & Crew, post: 23359, member: 3504"] Smallworld, He's had neurological evaluations and psychiatric evaluations. I don't know if any of them were combined into a neuropsychiatric evaluation. We started with a developmental pediatrician who specializes in ADHD & "school problems". That was April '05. By July '05 she had referred us to a neurologist for suspected tic disorder and/or Tourettes. Ry's appointment was early September. Along came Katrina and our 4-month exile from NOLA. We did see a neuro while in BFE, FL but he was a real nut case. He put Ry on 40 mg of Strattera and 200 mg of Neurontin. When the Strattera wasn't working in school he said "so bump him up to 80 mg". That never happened because our cherished developmentalist had warned that 40 mg was really the highest he could go. We finally were able to move home December '05 and got back in with the developmentalist. Between January and February we saw 2 different neurologists. The first worked in the same developmentalist. He told us, and I quote, "He has behavior problems. When he acts out just lock him in his room until he repents of his sins. It'll stop eventually." I have no clue what he said after that as I quit listening and within 10 minutes took Ry and left. We saw a 2nd pedi neuro who confirmed tic disorder with a strong suspicion of Tourette's based on previous history. During this time (January - March) we were also seeing a pediatric psychologist for anger management and depression issues as Ry got into this "I wish I were dead, I'm just going to kill myself, I'd be better off dead" phase! At 6 years old! By May our developmentalist who specializes in ADHD and school problems said that Ry's problems were beyond the scope of her expertise and referred us to a psychiatrist. The first shrink we saw suffers from Obsessive Compulsive Disorder (OCD) I believe. Ry familiarizes himself to his surroundings by looking around and touching things. This shrink had a cow when Ry touched a book or a bookend and fussed. I glared at him and he quickly apologized to Ry but the damage had been done. Ry sat in a corner facing away from the doctor and stared at the ceiling refusing to speak the entire visit. The shrink told me he had ADHD and more than likely also had Asperger's but did NOT have tic disorder or Tourette's. We saw this shrink a couple of more times but he wanted Ry to stay on the Tenex which was causing him to sleep through the day and night. He told me we couldn't really do anything with him until he started failing or becoming violent in school. The next week he slapped someone for invading his space during computer class. Off we went back to the developmentalist. She put him on Concerta and referred us to another psychiatric facility. This one was not covered by insurance but at this point I just don't really care. We've been seeing this particular doctor since September and she's amazing. She seems genuinely concerned. We saw an associate of her's for 2 months while she was on maternity leave and at that time Ry was put on Periactin to increase his appetite because he had dropped from a bit over 80 pounds when school started in August to just under 60 at his November appointment. We've just started working on the food issues at his last appointment a month ago. I spoke with the doctor last Monday and told her how he would gag until he vomited at all new foods. I'll ask her about an evaluation by an occupational therapist. I suggested this to our pediatrician almost a year ago and he said an Occupational Therapist (OT) wouldn't do us any good. I also don't know if Ry's food aversions are necessarily a sensory issue. He was a pretty good eater, although slightly picky, until about 13 or 14 months. It was at that time a new teacher was placed in his daycare class. She used to take his food away from him for playing with it. He's always had Obsessive Compulsive Disorder (OCD) ever since he was an infant and she considered taking 1 bite from each toast stick making sure they were the same size after each bite to be playing with his food and she'd take it away from him and throw it out to the squirrels. She also physically abused him (I pulled him from the school and filed criminal charges immediately) and he seemed to get a lot worse after that. OK, so much for a "quick reply". Its late and my coffee has me wired. [/QUOTE]
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