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New here. Thought we had made it through the worse....
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<blockquote data-quote="MissJuneBug" data-source="post: 710375" data-attributes="member: 21628"><p>I have thought about Disability. He has scoffed at the idea (too proud) but many people with Narcolepsy are on disability.</p><p></p><p>Because of his medical issues, I have a very hard time knowing what is willful defiance, apathy and lack of motivation vs. a medical issue like the narcolepsy, depression, anxiety and substance abuse. Recently his therapist said he is also having a difficult time sorting it out. At first, he suggested we try setting major consequences but a couple of weeks after we started implementing them, he called me and said that he now thinks it's a major depressive disorder and son needs more in-depth treatment than he can provide alone. Actually, I have been saying this for several years but all the professionals son saw didn't think it was necessary.</p><p></p><p> Hence, the move to an IOP. I do think the IOP would be of benefit in a number of different ways - at our local hospital they use a team approach, therefore you have a number of professionals interacting with the patients 12 hour a week, it would give him much needed structure, some socialization and goals. Whether he chooses to do the actual hard work is going to be up to him but, at least, we might get a better perspective about what is going on with him. Sometimes I wonder if there is a more complex issue going on like a Bi-polar disorder.</p><p></p><p>Nothing about any of these situations is easy. But I do feel like we have a good support team with the Narcolepsy expert, the Addiction Medicine Psychiatrist, his therapist and the guidance and support from the Director of a local recovery support center. We are fortunate that we have a lot of contacts in the community through our respective jobs.</p><p></p><p>Sometimes I think this is so much harder because my husband (who has his own very serious neurological disease that affects his cognitive abilities) doesn't handle this well. He gets furious and rages - throwing his own tantrums about the situation. He doesn't understand depression, anxiety or narcolepsy. Son's therapist and I spent a hour a few weeks ago talking to my husband about how depression can severely affect a person's ability to function and that we need to <em>temporarily</em> treat this as a medical condition to get him back on track. Husband remains unconvinced. So I feel like I'm getting emotionally 'beat-up' from both son and husband. I can actually handle son pretty calmly but husband rages at me sometimes like this is my fault. It is very stressful. Had I not gone through many years of CBT, I'm sure I would also be laying in bed with severe depression right now.</p><p></p><p>Thanks for letting me vent and tell my story. I have friends and family I can talk to but, really, unless you have been through it yourself it's hard for people to understand the many nuances that go along with these situations. The human mind always wants a simple cause and effect answer but life is so much more complicated than that.</p><p></p><p>June</p></blockquote><p></p>
[QUOTE="MissJuneBug, post: 710375, member: 21628"] I have thought about Disability. He has scoffed at the idea (too proud) but many people with Narcolepsy are on disability. Because of his medical issues, I have a very hard time knowing what is willful defiance, apathy and lack of motivation vs. a medical issue like the narcolepsy, depression, anxiety and substance abuse. Recently his therapist said he is also having a difficult time sorting it out. At first, he suggested we try setting major consequences but a couple of weeks after we started implementing them, he called me and said that he now thinks it's a major depressive disorder and son needs more in-depth treatment than he can provide alone. Actually, I have been saying this for several years but all the professionals son saw didn't think it was necessary. Hence, the move to an IOP. I do think the IOP would be of benefit in a number of different ways - at our local hospital they use a team approach, therefore you have a number of professionals interacting with the patients 12 hour a week, it would give him much needed structure, some socialization and goals. Whether he chooses to do the actual hard work is going to be up to him but, at least, we might get a better perspective about what is going on with him. Sometimes I wonder if there is a more complex issue going on like a Bi-polar disorder. Nothing about any of these situations is easy. But I do feel like we have a good support team with the Narcolepsy expert, the Addiction Medicine Psychiatrist, his therapist and the guidance and support from the Director of a local recovery support center. We are fortunate that we have a lot of contacts in the community through our respective jobs. Sometimes I think this is so much harder because my husband (who has his own very serious neurological disease that affects his cognitive abilities) doesn't handle this well. He gets furious and rages - throwing his own tantrums about the situation. He doesn't understand depression, anxiety or narcolepsy. Son's therapist and I spent a hour a few weeks ago talking to my husband about how depression can severely affect a person's ability to function and that we need to [I]temporarily[/I] treat this as a medical condition to get him back on track. Husband remains unconvinced. So I feel like I'm getting emotionally 'beat-up' from both son and husband. I can actually handle son pretty calmly but husband rages at me sometimes like this is my fault. It is very stressful. Had I not gone through many years of CBT, I'm sure I would also be laying in bed with severe depression right now. Thanks for letting me vent and tell my story. I have friends and family I can talk to but, really, unless you have been through it yourself it's hard for people to understand the many nuances that go along with these situations. The human mind always wants a simple cause and effect answer but life is so much more complicated than that. June [/QUOTE]
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