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flutterbee

Guest
It doesn't matter how he tests. My daughter tests above average in all subjects. However, her diagnosis's do cause an educational impact. Educational impact is ALL that matters, not how far behind the student is, not whether the diagnosis is an Learning Disability (LD) or anxiety or whatever.

If the SD is denying services to children just because they are not yet 2 years behind, they are seriously in violation of the law.
 

TerryJ2

Well-Known Member
Hi Lillyth, welcome.
I can't add much, except I can sympathize with-your not wanting to medicate. My husband is a chiro and was very much against medications until my son was totally out of control. I cannot tell you how many times I told my husband he could shove his philosophy up his nose. The philosophical diff really impacted our marriage. I'm not pro-medication either--believe me, there are too many people out there who drug their kids and think, Oh, good, now that's over with, I can go on with-my life.
That's NOT what we're talking about here.
They can be a tool. They do not have to be a crutch.
Don't be too hard on yourself.

2 yrs ago, our school principal, difficult child's teacher, computer teacher and after school teacher called a mtng and suggested difficult child be tutored outside of school AND held back a yr. They said he's totally disruptive, can't pay attention, can't grasp basic issues like sequencing, etc. We were already seeing a child psychologist so the psychologist wrote a ltr to our pediatrician requesting medications.
The stimulant we chose was a huge help for our son. It helped him focus and actually carry on conversations instead of just yell one or two words across the room. It was like I realized there was a human being inside there and not just a loud animal.

I believe my son is "Aspie-lite" (to steal a phrase from a mom here :) ) and we're still going through testing.
It is a huge emotional loss to think that your child is different and may be on medications forever, but it's a bigger emotional loss to think that your child could be lost forever if he doesn't get the right intervention. medications can be one of many interventions.
 

Lillyth

New Member
Hi Lillyth, welcome.
I can't add much, except I can sympathize with-your not wanting to medicate. My husband is a chiro and was very much against medications until my son was totally out of control. I cannot tell you how many times I told my husband he could shove his philosophy up his nose. The philosophical diff really impacted our marriage. I'm not pro-medication either--believe me, there are too many people out there who drug their kids and think, Oh, good, now that's over with, I can go on with-my life.
That's NOT what we're talking about here.
They can be a tool. They do not have to be a crutch.
Don't be too hard on yourself.

2 yrs ago, our school principal, difficult child's teacher, computer teacher and after school teacher called a mtng and suggested difficult child be tutored outside of school AND held back a yr. They said he's totally disruptive, can't pay attention, can't grasp basic issues like sequencing, etc. We were already seeing a child psychologist so the psychologist wrote a ltr to our pediatrician requesting medications.
The stimulant we chose was a huge help for our son. It helped him focus and actually carry on conversations instead of just yell one or two words across the room. It was like I realized there was a human being inside there and not just a loud animal.

I believe my son is "Aspie-lite" (to steal a phrase from a mom here :) ) and we're still going through testing.
It is a huge emotional loss to think that your child is different and may be on medications forever, but it's a bigger emotional loss to think that your child could be lost forever if he doesn't get the right intervention. medications can be one of many interventions.
Thank you for that. I am hoping that after a few months on it, we will be able to take him off. We're going to keep him on it until Christmas, then ween him off the medications over Christmas Break, then see how he does.

You're right though - it IS a much bigger emotional loss to think he might end up lost. There are worse things than taking drugs every day to function - like, oh, say, ending up in prison later in life...

I will try to remember that...
 

smallworld

Moderator
I just want to respond to something you said in your post to me: TLE is a big deal, especially because the temporal lobes affect emotions and emotional dysregulation can contribute to aggressive behavior. You absolutely should see a neurologist to confirm this diagnosis and start the appropriate treatment. As anti-medication as you might be, epilepsy in any form is nothing to fool around with.

My older daughter has two tiny lesions in her temporal lobes (probably caused by a lack of oxygen in utero), and her neuro said they absolutely could be contributing to her mood disorder. The treatment happens to be anticonvulsants (in her case, Lamictal), which also stabilize the mood.
 

Lillyth

New Member
I just want to respond to something you said in your post to me: TLE is a big deal, especially because the temporal lobes affect emotions and emotional dysregulation can contribute to aggressive behavior. You absolutely should see a neurologist to confirm this diagnosis and start the appropriate treatment. As anti-medication as you might be, epilepsy in any form is nothing to fool around with.

My older daughter has two tiny lesions in her temporal lobes (probably caused by a lack of oxygen in utero), and her neuro said they absolutely could be contributing to her mood disorder. The treatment happens to be anticonvulsants (in her case, Lamictal), which also stabilize the mood.
Thank you for addressing that.

So I need to get him to a neurologist ASAP then - would this be the same person I take him to for further neuropsychologist testing, or are these two separate appointments & issues?
 

smallworld

Moderator
Two separate specialists: A neurologist is a medical doctor with expertise in disorders of the central nervous system. A neuropyschologist is a clinical psychologist (not a medical doctor) who has extra training in how the brain functions. Found at a university or children's hospital, a neuropsychologist typically does many hours of testing (cognitive, achievement, attention, executive function, etc) to assess the cognitive and psychological functioning of the child. If you locate a good pediatric neurologist, he/she should be able to refer you to a competent neuropsychologist.
 

Lillyth

New Member
Two separate specialists: A neurologist is a medical doctor with expertise in disorders of the central nervous system. A neuropyschologist is a clinical psychologist (not a medical doctor) who has extra training in how the brain functions. Found at a university or children's hospital, a neuropsychologist typically does many hours of testing (cognitive, achievement, attention, executive function, etc) to assess the cognitive and psychological functioning of the child. If you locate a good pediatric neurologist, he/she should be able to refer you to a competent neuropsychologist.
Cool. Thank you.

Any idea how to locate a good pediatric neurologist? (My son already saw one referred by his pediatrician, but I was not impressed).
 

Jena

New Member
hi,

i'm jumping in late, but i wanted to say hi and welcome......alot of great supportive people here and also alot of helpful tips and information.........and oh yea great place to vent lol i do it often

welcome again

Jen
 
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